Mighty Quinn Medical Fund

$29,350 of $45,000 goal

Raised by 212 people in 8 months
After suffering through several miscarriages over the years, we were blessed and surprised this year to discover we were pregnant. Our daughter was especially excited to discover that she would finally become a big sister.

At Nicole’s 20-week ultrasound we learned we were having a boy. We were thrilled to tell our family and friends the baby’s gender, however, the day after the ultrasound we were contacted with the news that the ultrasound report revealed some concerns about our baby. Although doctors couldn’t with certainty tell us what was wrong with our son, they could identify a cystic hygroma on his neck and enlarged lateral ventricles in his brain.


When presented with the option to terminate we refused. Instead, we turned to prayer believing that God, not us, should decide whether our son was to be born. For the remaining months of pregnancy, we prayed for our son and thanked God for the blessing of his little life however long or short it may be.

On October 26th our sweet son Quinn was born.  After a multitude of tests including an MRI, an echocardiogram, and an ultrasound, doctors were able to identify a number of birth defects in his body that will need to be surgically repaired.


Thankfully, however, they have found nothing that is fatal. Through genetic testing, it was discovered that Quinn has a very rare genetic deletion where 263 of his genes are missing.  This type of genetic deletion only occurs in less than 1 in one million people and there is no record of this exact deletion in the international database.  It is this deletion that has caused the many birth defects in Quinn’s body. With the proper surgeries and therapies, however, Quinn should be able to have a positive quality of life.

When he finally opened his eyes and looked at us for the first time, we fell in love with this little guy whose medical diagnosis remains much of a mystery-even to the NICU doctors and nurses we have had to entrust with his care. He has already amazed them multiple times. Quinn first surprised them when he was able to breathe off of the ventilator, and then he surprised them when he pulled out his catheter with his foot and showed us he would pee fine. Even his birth was a surprise when he beat the odds by being one of the 10% of babies with cystic hygromas who survive birth.

Last week, Quinn, had reconstructive surgery on his anus and was also given a G-Tube. Our mighty Quinn still has a long road ahead and will need many more surgeries including surgery on his cystic hygroma, his spinal cord and possibly even his brain. We go to his bedside day and night to hold him, sing to him, hold his tiny hands, and be his advocate amidst a sea of differing medical opinions and insurance challenges. Our beautiful five-year-old daughter Ayven got to meet her brother briefly in the hospital (young children are only allowed in the NICU for fifteen minutes at a time), but we still struggle with the right words to explain to her why her brother can’t come home yet.


We long and pray for the day when Quinn will be released to us and we are thankful for how he continues to get stronger every day. We know God gave us our son for a reason and we are committed to doing everything we can to get him excellent care and the best chance at a full and happy life. 

Even with some insurance coverage our out of pocket costs are extremely expensive. Our resources are dwindling quickly and we are concerned about the future. We love our little Quinn so much and just want to get him the best care possible. We have never asked for any type of financial help for anything before, but this fight for Quinn’s life has humbled us to the core.

Our family would be so blessed and honored by anything you could offer to help Quinn. Please also share this page on your social media accounts and help us share Quinn's story. Our sweet boy is already a miracle baby who has defied the odds just by being born. Will you be a part of his story? ❤️

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We are amazed and blessed to announce that Quinn is 6 months old today! He still has a long road of surgeries and therapies ahead, but we want to pause and celebrate how truly far he has come.

Quinn is growing in size and personality every day. He is a truly loving and social baby who lights up a room with his laughter and smiles. He loves to be held, listen to music, and play with his toys.

He now wears a cranial helmet to hopefully correct his head shape. We can tell it is hot and uncomfortable for him, but like so much he has been through, he tolerates it well.

Quinn is now followed by more than 16 different specialists at Boston Children's Hospital and has been admitted as a patient into their Complex Care Department. As many of you know, Quinn has been diagnosed with 18 different bodily malformations, many of which require surgery. We will be heading back to Boston for Quinn's next round of follow-up appointments at the end of May. During these appointments, doctors will be assessing Quinn's progress as well as making determinations on when to schedule his next surgeries.
We will be driving up to Boston since flying is difficult with all of Quinn’s medical equipment. As you can imagine the cost of making these trips to Boston are extremely expensive. We will have a place to stay once we are in Boston thanks to Quinn's Aunt Carmela and her gracious friends, but we will have the expenses of a rental car for two weeks (possibly longer if needed), gas money, food and lodging on the way to Boston, a plane ticket for Brendan to return to work after assisting with the drive up and then a plane ticket for him to return to Boston when it is time to drive back, in addition to the purchase of items we will need to help Quinn be more comfortable and healthy on the trip.

We have already had to pay out of pocket for various doctor prescribed equipment and therapies that are not covered by our health insurance or Quinn's Medicaid such as his portable oxygen concentrator and his cranial helmet. These costs and the cost of our extremely high deductible insurance have all been extremely difficult for us to manage financially.

Quinn has the potential for a positive future if we are able to provide him with the surgeries and therapies he needs.

It does not come easy for us to ask for help, but we know that we will need help if we are going to be able to help our sweet and mightly Quinn achieve his best potential.
Can you please share Quinn's story and if possible help contribute to his medical expenses so that he can continue to grow and thrive?
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We are so thankful that we have been given the opportunity to bring Quinn to Boston Children's Hospital so that he can be evaluated by some of the best doctors in the country. It is truly an answer to prayer!!

After carefully reviewing Quinn's many medical concerns, Boston Children's Hospital has determined that Quinn will need to see 18 different specialists and have a number of different tests done, including an MRI and a swallow study.

We arrived in Boston just ahead of winter storm Harper and are staying at a friend of the family’s house for the next few weeks so we can take Quinn to his medical appointments. Currently, Quinn's appointments span over the next two-and-half weeks, but we are committed to staying as long as it takes for Quinn to get the treatments and surgeries he needs to thrive.

Today, Tuesday, Jan 22nd is his first day of appointments and he is scheduled to see 8 different specialists and have a swallow study all before 3pm.

We will continue to update everyone as the doctors and surgeons at Boston Children’s Hospital assess Quinn and determine the best course of care for him.

We are so thankful to everyone who has helped contribute to Quinn's GoFundMe and helped make this opportunity possible. Your kindness means so very much and will help us pay for Quinn's substantial medical expenses. Thank you so much for helping us be able to get Quinn the care he needs.

Quinn has continued to show us that he is strong and that he is a fighter. We are so thankful to God for continuously answering our prayers each day as we try our best to help our little boy. Hopefully, his upcoming medical evaluations will bring more hope for a bright future.

Please pray that God will be present in all situations and that His wisdom will guide both us and Quinn's doctors every step of the way. #prayingformiracles #prayingforhealing
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Thank you, everyone, for praying for our son, Quinn! We have definitely felt your prayers and have seen the manifestation of God at work in our lives. Although the last week was one of the most stressful and uncertain we have ever encountered, it finished off with a true Christmas miracle.
We are happy to report that Quinn has been discharged from the hospital and was able to be home with us for Christmas!

Quinn was sent home with Hospice services and will have in-home nurse care, but we are praying that he will continue to show everyone how strong he is so that he can be discharged from hospice as well.
The pediatric hospice organization that will be taking care of Quinn said that they will throw him a huge party if and when he graduates from their services. We believe this is in Quinn's future and look forward to an amazing celebration!

So far, Quinn loves his new bed and seems very relaxed and content in his new surroundings. His big sister, Ayven, is thrilled to be able to see her brother every day and give him “hand hugs.” Quinn has been sleeping great and is loving his extended cuddle time with family.

We will continue to take Quinn to the specialists that were seeing him as a patient while he was in the hospital as well as take the necessary steps to prepare for his next surgeries. We are currently looking into our options to travel to Boston Children's Hospital for his surgeries.

We are hoping and praying for more encouraging growth and development in the next few months. Please continue to keep Quinn in your thoughts and prayers as we continue to learn more about him and how we can best help him thrive. ❤️
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We are excited to share this update on Quinn to everyone who has been sharing his story and supporting us through his journey.

Quinn has been moved to NICU 2 and his doctors are now talking about the possibility of him coming home with nursing care. We will need to be formally trained on how to attend to his medical needs, but the doctors are hopeful that they will be able to discharge him by the end of the month.

There are still a number of things they are hoping will resolve before Quinn can come home, but all in all, Quinn is improving daily and gaining weight. Unfortunately, he has had a small setback with a prolapsed bowel that will most likely need additional surgery to repair outpatient. We are still so thankful for the progress he has been making and know that God has been taking care of him each step of the way.

Please pray that Quinn continues to gain weight every day so that he can get stronger and be able to come home soon. Please also continue to pray for his healing from the top of his head to the soles of his feet. ❤️

Having Quinn come home to us would be the best Christmas present we could hope for this year.

We are so thankful for everyone who has helped by sharing Quinn's GoFundMe so far. Please continue to share Quinn’s story with your community and help our #mightyquinn.
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Raised by 212 people in 8 months
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