Amylea Faith Nuñez Medical Fund
She continues to fight alongside her family. Their faith in God, love and prayers have kept their hope strong over the last week as she continues to have seizures. The doctors here in Albuquerque have done everything possible, but now little Amylea is being transported to Denver on December 16th to be treated by a team of Pediatric Neurologists who will take over her care.
As we can only imagine this has been extremely trying on the family. The full medical costs for baby Amylea are unknown and the family is exhausting their paid leave from work.
Baby Amylea's family is asking for your help to get through this tough time. Your donations will help with their unexpected financial burden. Anything will help.
The family appreciates all the love, support and prayers.
Thank you so much and keep the family in your prayers this Christmas season! God Bless.
Hello everyone. Thank you everyone for all the prayers, love, and support. We are truly blessed to have this much support in our journey to help our daughter. She has started the Charlotte's web CBD oil. We are hoping that this oil works for her and help show proof for others suffering from seizures. She right now is enrolled in a case study at Children’s Hospital in Colorado. We will be here for a few months. Her daddy (Ernie ) will be traveling back and forth. There still is no diagnoses for what type of epilepsy she has. We were told yesterday in a meeting with the doctor's that this is a genetic disorder of some sort. We will have to wait to see how her development goes as she grows. As of now there is nothing that they can do . We are blessed that we got to start the charlotte's web CBD oil in hospital. Thank you again for everything.
I want to say thank you to everyone that has help us out during this difficult time. It has been hard but it is nice to have such great support and love from everyone. We are truly blessed. Amylea is slowly recovering from her seizures but still has a long way to go. At this time the doctor's are still waiting on some test results to see what the cause is. Thank you again for all the prayers and love.
I hope you are looking into vaccines as a cause for siezures in your babies! I see many comments here about other babies having siezures. Read the package inserts of the vaccines you are allowing doctors to inject into your children . Hep B at birth could have caused her to have epilepsy. Please stop vaccinating if you still are!
Thank you everyone for your support and prayers. Amylea has been doing better. She went almost 9months without a seizure. She had one before she turned 1 in December. She have had a couple minor ones after that hard one in December. She is starting to eat by mouth. We still need her to drink by mouth in order to take her gtube out. She is not crawling or walking yet. We do get therapy every week for her at home. She is able to sit on her own. We do have some gi issuse that we are working on getting resolved. But she is a very happy and strong baby. Thank you everyone again for the support .
Was the baby vaccinated? I know that seizures are an adverse reaction of vaccinations. nvic.org for more info . Also, if she is vaccine injured the doctor needs to report it and you should call VAERS (vaccine adverse events reporting system) as well as a vaccine injury attorney. There is a Statute Of Limitations to file Vaccine Injury with The Vaccine Injury Court. You cannot sue the hospital, nurses or doctors, or the pharmaceutical companies that manufacture the vaccinations. They are protected by the Govt. of any liability. God Bless your precious baby girl! I hope she has a full recovery, will be praying for you!
Updated on Amylea. She is doing great. She had not had a seizure in about 2months. She is doing great with Tummy time, holding up her head, tracking, cooing, smiling, laughing, and sucking her fingers. All the things that the doctor's said she would not do. I love song her meet mile stones. From being pretty much in a coma having seizures every 30 min to an hour lasting 7min to 66 min. And now having none is the best thing that has happened. She continues to have test done. But as of now she is stable and doing great. We are now on haleigh's hope. We are having alot more success with it. Thank you everyone for all the prayers, love and support.
Updated on Amylea: I want to start with a thank you to everyone that has been there for us through this journey. Amylea is doing great! She is now 6 weeks seizure free. We are hoping to be home soon. We just have a few more test that need to be done and get her to gain weight like she was before. But everyday she is getting stronger and becoming more alert. #teamamylea
UPDATED ON AMYLEA : I know you have been waiting to see how she is doing! We are now at 1 seizure every 28 hours! After a little bump in the road we are now back on track. Amylea did have a fever that may have caused some of her seizures but we are now doing great. We are out of the nicu and hope to continue to progress from here. No more steps back! Thank you everyone for their donation, love, and prayers. It's what keeps us strong! We are going to fight this fight and not give up! #teamamylea
Hello everyone. I first want to start by saying thank you for all your prayers and support. As of right now Amylea is waiting to have surgery to get a g tube put in. This we be the new way to feed her. She is still having seizures and are trying to get them under control. We are still waiting on her genetic test results to come back. We are also looking into using cbd oils for her. The neurology team will conduct a case study on her if they approve her to receive the oils. At this time we have no release date yet. But from what the doctor's say we are looking at a few more months here in denver. Ernie (her daddy) will have to travel back and forth due to work and the other children. Once again thank you for everything.
Respectfully...please investigate vaccines as a possible cause of your daughters seizures. My son had "unexplained" seizures after he was given his MMR, but any vaccine can cause seizures. I never let another vaccine near any of my children and they are all healthy as can be. I hope your sweet little girl continues to improve! She's a cutie!
Prayers and love to you and your baby girl.
Hi! My name is iesha. My sister sent me your gofundme page bc my daughter is having seizures at well. We just got transferred from Vegas to a children's hospital in Utah. The doctors are still trying to find meds that control her seizures . I would love to speak with you about your journey. I am beyond happy your baby is home and healthy :) message me on Facebook anytime !!
Quick update on Amylea: Amylea is now 6months seizure free due to CBD oil! She is a few months behind which is expected. She is doing great. We are still getting bills coming in from her Hospital stay. Thank you again for your support and love. God bless!
Are there any health updates on Amylea? Thanks. :)
Hi All! I am a blogger for Cresco Labs, a legal cannabis cultivator in Illinois, an i just wanted to let you know I just posted a blog post about Amylea. I hope to spread the word that your family needs support, and that CBD dominant cannabis oil is a real medicine for treatment of seizures! God bless Amylea and your whole family! :) http://www.crescolabs.com/infant-reduces-seizures-using-cannabis-oil-after-all-else-fails/
♥ hugs ♥ So glad your daughter has been doing better since when you started treatment last Thursday.
Hello everyone! UPDATE ON AMYLEA : Like always I want to say thank you for all your prayers, love, and support . Amylea is doing better. We were back in the hospital due to her getting chrono virus and a fever. With having epilepsy any change in her little body can cause her to have seizures again. After getting them under control, her cold turned into bronchiolitis. Which made her stay into almost 2weeks. She did spike fever last night which ended us back in the er but no seizures. We are now on day 8 of being seizure free again. She has been improving with her development. She now brings her hand to her mouth and love to look at faces without a yellow mask on. She also has learned to cry when she wants to held, hungry, or just wants attention. This is a big thing for her being that the doctor's said they didn't think that she would interact much. As a matter of fact, they stated that she would have sleeping spells that would last 3-4 days. She no longer has those sleeping spells. She does interact like a normal baby now. Her development is 2 months behind but she's surely is catching up. Also today was the first day that she tried to breastfeed since she was about 6 days old. This is very exciting news for her. Hopefully she will start eating on her own a less g tube feeds. Once again thank you for everything.
Hi Nicole , nowhere in the Amylea´s story could read about the frequency, type and intensity of epileptic episodes Amylea had before starting on Charlotte's Web therapy . May you comment me about it? I know a family whose 8 months´baby maybe could control their epileptic episodes using oil and it will encourage them hear about Amylea´s . My sympathies to you and your family . I will pray to hear your little baby recovers soon.