Addy Joy Sooter's brave fight

$16,357 of $200,000 goal

Raised by 236 people in 32 months
Andrea Butler
on behalf of Matthew Sooter
 ROGERS, AR
Doctors recently found my cousin's, Matt Sooter and his wife Chandra, sweet little girl Addy has a lesion on her brainstem. Everyone is praying it is not DIPG.
As most of you that know Matt and Chandra, you know they are the most selfless people. They spend their lives serving others and the Lord.
They will clearly have many hospital bills along with hotel stays, eating out, and other expenses.
I'm doing this because I know that they would never do it for themselves.... so, along with prayers for them and the doctors, I'm creating a way to give to them in their time of need as they do for everyone on a daily basis.
Thank you

Family and friends we are sorry to let you know like this, but we need your prayers and this was the fastest way we could think of to get the word out. At her well child appointment Friday Addy's doctor was concerned when he saw her because of her recent unsteadiness. He immediately started making phone calls and got us into Arkansas children's in LR Friday night. She had an MRI Saturday morning and the neurologist has come to see us a few times now. There's no way to say this or to lessen the impact so I'll just get it out. There is a mass near her brain stem. We don't know if it's actually in the stem or not, but there aren't any more masses in the spine which is good. The neurology team here will be meeting tomorrow to make a game plan for getting a biopsy. Once we get the biopsy (possibly on Tuesday) we will hopefully be able to make a plan for treatment. Please keep us all in your prayers, but especially Addy. We will keep you updated as best we can here on Facebook from here on out. We do ask that you not call or text us unless we call or text you first. For now we could use prayers that there is a wall/separation between the mass and her brain stem. Thank you! Please feel free to share this as we need all the prayers we can get. Pray for miracles. Pray for strength for Addy. Our hearts are broken for our little girl, but we are doing our best to trust in God and his healing power. We love you all and we thank you for your prayers and support of our little girl during this time.
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Honoring and remembering the seventeen we lost to dipg during the thirty days of June and as I always say, these are only the ones we know about. All of these children and young people deserved so much more, they deserved a cure. Every one of them a beloved child who leaves behind a hole in their family for ever. Please keep their families in your thoughts and prayers always.
Baylee,Tristan, Alex, Alidiah, Adea, Maddi, Olivia, Ava, Katie Belle, Braxton, Alice, Julian, Elizabeth, Kaleigh, Seth, Max, Addy Joy.



#Dipg #DefeatDipg #Graymatters #TheyMatter
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Thank you so much to the many who came and hugged us tonight. It was so good to see all of you. Thank you for being a part of our girl’s life.
Addy’s celebration of life is at 2:00 tomorrow and will also be live streaming here on Facebook. Again, All are welcome to join us.
Please say a prayer for us in the morning as we lay our girl to rest.
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Adalynn Joy Sooter, 4, of Rogers joined her heavenly Father on June 3, 2018. She was born April 28, 2014 in Johnson, Arkansas the daughter of Chandra and Matt Sooter.

Addy loved princesses, shopping, dancing, and singing. She loved being outdoors and playing with animals. Addy enjoyed spending time with big brother, listening to him read books and playing games. She was a very joyful little girl who brought an infectious happiness wherever she went. She was strong and determined and fought with so much grace. She will be missed.

She was preceded in death by her great-grandparents.

Addy is survived by her parents; Chandra and Matt Sooter, one brother; Jackson Sooter, maternal grandparents; Don and Christy Cole, paternal grandparents; Ann and Greg Sooter, and a host of loving friends and family.

Visitation will be held Friday, June 8th from 5 to 7pm at First Baptist Church Rogers, Pleasant Grove campus.

A celebration of Addy’s life will be held Saturday, June 9th at 2pm at First Baptist Church Rogers, Pleasant Grove campus.

The family requests that donations be made to the Michael Mosier Defeat DIPG Foundation, the Ronald McDonald House Charities of Arkansas, or the Arkansas Children’s Hospital.
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Thank you all so much for your prayers and kind words of support over the past couple of days. We miss our sissy, but are glad she’s no longer struggling or in pain. Our sweet girl had one last thing to give before we lay her to rest this weekend. Yesterday, Addy once again made the trip from Rogers to Arkansas Children’s Hospital in Little Rock. This morning she donated her tumors, both brain and spine, to scientific research in hopes of saving future children from a similar fate. Our sweet girl loved helping people and giving gifts so we thought this would be an excellent way of showing her giving heart.
Services have been set for this weekend.

Visitation will be Friday, June 8 at FBC, Rogers, Pleasant Grove campus from 5-7:00pm. All are welcome. If you would like to see Addy and say goodbye you will want to come to this service as this will be the only service at which Addy will be present. We will be laying her to rest in a small family service on Saturday morning.

Saturday at 2:00 will be Addy’s celebration of life service, also to be held at FBC, Rogers, Pleasant Grove campus. Again, all are welcome! This service will also be live streaming via Facebook.

In lieu of flowers please consider making a donation to the Michael Mosier Defeat DIPG Foundation, Arkansas Children's Hospital, or Ronald McDonald House Charities of Arkansas.

Thank you All again for your love and support and for being a part of Addy’s miracle. We hope to see you all this weekend.

Always remember: God is in this situation, He’s up to something, and He’s up to something GOOD.
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Read a Previous Update
Debbie Harriman O'Neal
32 months ago

Thx for the update....Will continue with lots of prayers

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Rowena Rushing Farley
13 months ago

So saddened by this news and am praying for all of you! Just think, Jesus our Saviour will be holding her soon and we will see her there!! May our Lord comfort you all in a way only He can!

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Megan Stevens
14 months ago

Please please look into Redox you can pm me for more details

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Susan Clare
14 months ago

I am terribly saddened by today’s news. Please know that you and little Addy and her entire family are in my thoughts and prayers. She has touched many lives. ❤️

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Barbara Graham
23 months ago

God will answer prayer for Addy.

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Andrea Butler
32 months ago

Thank you everyone who's donated so far!

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$16,357 of $200,000 goal

Raised by 236 people in 32 months
Created November 17, 2016
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EB
$10
Eileen Bingham
11 months ago
1
1
SB
$50
Sharon Betti
13 months ago
1
1
AB
$100
Adrian Baric
13 months ago
1
1

This story/photo has touched me like no other. Terrible terrible news and terrible out come. That photo is so beautiful and so sad at the same time. In her last moments you can just tell Addy was at peace with her older brothers touch. The way she's holding him keeps bringing tears down my eyes every time I look at this picture. I am giving my child an extra hug tonight. That must have been so tough to share but thanks for sharing such an interment moment with your family.

HB
$50
Heidi Baier
13 months ago
JC
$20
JIM CARADONNA
13 months ago
MH
$100
Michael Halbreiner
13 months ago
1
1

Our family's prayers and thoughts are with all of you.

CE
$15
C E
13 months ago

Prayers for your whole family.

MF
$100
michael frasard
13 months ago
JT
$50
James Tokos
13 months ago
$15
Anonymous
13 months ago
Debbie Harriman O'Neal
32 months ago

Thx for the update....Will continue with lots of prayers

+ Read More
Rowena Rushing Farley
13 months ago

So saddened by this news and am praying for all of you! Just think, Jesus our Saviour will be holding her soon and we will see her there!! May our Lord comfort you all in a way only He can!

+ Read More
Megan Stevens
14 months ago

Please please look into Redox you can pm me for more details

+ Read More
Susan Clare
14 months ago

I am terribly saddened by today’s news. Please know that you and little Addy and her entire family are in my thoughts and prayers. She has touched many lives. ❤️

+ Read More
Barbara Graham
23 months ago

God will answer prayer for Addy.

+ Read More
Andrea Butler
32 months ago

Thank you everyone who's donated so far!

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