Addy Joy Sooter's brave fight
As most of you that know Matt and Chandra, you know they are the most selfless people. They spend their lives serving others and the Lord.
They will clearly have many hospital bills along with hotel stays, eating out, and other expenses.
I'm doing this because I know that they would never do it for themselves.... so, along with prayers for them and the doctors, I'm creating a way to give to them in their time of need as they do for everyone on a daily basis.
Family and friends we are sorry to let you know like this, but we need your prayers and this was the fastest way we could think of to get the word out. At her well child appointment Friday Addy's doctor was concerned when he saw her because of her recent unsteadiness. He immediately started making phone calls and got us into Arkansas children's in LR Friday night. She had an MRI Saturday morning and the neurologist has come to see us a few times now. There's no way to say this or to lessen the impact so I'll just get it out. There is a mass near her brain stem. We don't know if it's actually in the stem or not, but there aren't any more masses in the spine which is good. The neurology team here will be meeting tomorrow to make a game plan for getting a biopsy. Once we get the biopsy (possibly on Tuesday) we will hopefully be able to make a plan for treatment. Please keep us all in your prayers, but especially Addy. We will keep you updated as best we can here on Facebook from here on out. We do ask that you not call or text us unless we call or text you first. For now we could use prayers that there is a wall/separation between the mass and her brain stem. Thank you! Please feel free to share this as we need all the prayers we can get. Pray for miracles. Pray for strength for Addy. Our hearts are broken for our little girl, but we are doing our best to trust in God and his healing power. We love you all and we thank you for your prayers and support of our little girl during this time.
Baylee,Tristan, Alex, Alidiah, Adea, Maddi, Olivia, Ava, Katie Belle, Braxton, Alice, Julian, Elizabeth, Kaleigh, Seth, Max, Addy Joy.
#Dipg #DefeatDipg #Graymatters #TheyMatter
Addy’s celebration of life is at 2:00 tomorrow and will also be live streaming here on Facebook. Again, All are welcome to join us.
Please say a prayer for us in the morning as we lay our girl to rest.
Addy loved princesses, shopping, dancing, and singing. She loved being outdoors and playing with animals. Addy enjoyed spending time with big brother, listening to him read books and playing games. She was a very joyful little girl who brought an infectious happiness wherever she went. She was strong and determined and fought with so much grace. She will be missed.
She was preceded in death by her great-grandparents.
Addy is survived by her parents; Chandra and Matt Sooter, one brother; Jackson Sooter, maternal grandparents; Don and Christy Cole, paternal grandparents; Ann and Greg Sooter, and a host of loving friends and family.
Visitation will be held Friday, June 8th from 5 to 7pm at First Baptist Church Rogers, Pleasant Grove campus.
A celebration of Addy’s life will be held Saturday, June 9th at 2pm at First Baptist Church Rogers, Pleasant Grove campus.
The family requests that donations be made to the Michael Mosier Defeat DIPG Foundation, the Ronald McDonald House Charities of Arkansas, or the Arkansas Children’s Hospital.
Services have been set for this weekend.
Visitation will be Friday, June 8 at FBC, Rogers, Pleasant Grove campus from 5-7:00pm. All are welcome. If you would like to see Addy and say goodbye you will want to come to this service as this will be the only service at which Addy will be present. We will be laying her to rest in a small family service on Saturday morning.
Saturday at 2:00 will be Addy’s celebration of life service, also to be held at FBC, Rogers, Pleasant Grove campus. Again, all are welcome! This service will also be live streaming via Facebook.
In lieu of flowers please consider making a donation to the Michael Mosier Defeat DIPG Foundation, Arkansas Children's Hospital, or Ronald McDonald House Charities of Arkansas.
Thank you All again for your love and support and for being a part of Addy’s miracle. We hope to see you all this weekend.
Always remember: God is in this situation, He’s up to something, and He’s up to something GOOD.
Thx for the update....Will continue with lots of prayers
So saddened by this news and am praying for all of you! Just think, Jesus our Saviour will be holding her soon and we will see her there!! May our Lord comfort you all in a way only He can!
Please please look into Redox you can pm me for more details
I am terribly saddened by today’s news. Please know that you and little Addy and her entire family are in my thoughts and prayers. She has touched many lives. ❤️
God will answer prayer for Addy.
Thank you everyone who's donated so far!