Johns Fight for Life

$71,285 of $64,000 goal

Raised by 197 people in 52 months
I think back over my life and remember all the times I have said and thought how difficult, stressful and challenging life can be. Dealing with a child who has Crohns disease, juggling work with everything that comes with raising children, financial worries and building a house just to name a few.

Today I realise how insignificant these worries really were. Yes, my husband, the father of our 2 boys aged 8 and 10 has incurable cancer. Well, that’s what the Doctors say but we are not going to bow down, give in to this ‘Emperor of All Maladies’.

John was admitted to hospital in late 2013 with chest pains. A CT scan revealed a lump under his liver which confused the doctors. Surgeons found what appeared to be a tumour in John’s gallbladder, rare in most situations, and proceeded to remove 10% of his liver, his gallbladder and the local lymph nodes.

The initial prognosis was good, and we began the process of healing, but the pathology results changed all that.
Our worst fears were confirmed. Stage IV gallbladder cancer or ‘Adenocarcinoma’ had made its way into the lymph nodes. John required 6 months of chemotherapy and radiotherapy.
Obviously this was a huge shock and turned our lives upside down. We approached the treatment, with its ups and (mostly) downs with a single hope – that John’s cancer had been removed without a trace and the ‘metastases’ the doctors warned about didn’t exist. We clung to that and for a year it appeared to be true.

Earlier this year however we were shattered to learn John’s cancer was back.

The metastases had invaded lymph nodes around his heart and neck. The oncologists have told us John’s cancer is incurable, the average survival time is 1-2 years but in Johns case being young, fit, somewhat healthy and having his determination to beat it, we could extend this survival time.

John is currently having chemotherapy drugs called Gemcitabine and Cisplatin and as a result of genetic testing and a small study at The Chris O’Brien Lifehouse his oncologist has recommended a drug called ‘Panitumumab’ unfortunately because this is a very new drug it is not on the PBS and will cost $2000 a week. Also due to some promising results we are flying to The Gold Coast every second week where John has whole body and local hyperthermia. We are determined to fight this disease and try to control and manage it for as long as possible but it will require some fundraising.

I understand there is a great deal of suffering in this world, a lot more people worse off than us and many worthwhile charities, but we are living this nightmare and we need to do what we can to make this possible which means asking for help.

We are also organising fundraising throughout the year so please check back here for updates.

Thank you for taking the time to read this.

Jodi
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One year today John, your body was pushed to its limits, but not your mind.

You lived longer than many but less than many more.

You were a good person, morally and ethically, you deserved longer.

You deserved to be loved by your blood.

You deserved to do what made you happy and smile on the inside.

You deserved more of those thought provoking, titillating, humorous, teaching conversations.

You deserved to be a Dad for longer because you chose to be, wanted to be, they wanted you to be. Being a Dad made you smile, you wanted to teach, you protected, you talked about, you watched, and you played. You had patience, you had so much love, you were worthy of being a Dad longer.

You were deserving of the enjoyment that comes when a little person calls you Pop. To be a part of their lives and watch with fondness, their growth, their milestones, their smiles. You would have been a devoted Pop.

You were deserving of longer friendships.

You deserved to continue to show your love, you did it well in so many ways, it was noticed every day. You deserved to be loved and appreciated for a lifetime which was one of the easiest things to do.

You deserved to just, be……

John, we will take you with us in everything we do, we will take you into the next generations of John Philips. We will show them who you were.


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All Welcome. Keeping Johns love and excitement of the big screen alive.
Can pm me through Facebook if needed.
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FILM 77
One of Johns most passionate hobbies was movies. He loved everything about a good movie. John could tell you anything about a movie, who the actors were, the director and even who composed the music. I was going through our CD collection (that was in storage) recently and seeing the substantial number of film score soundtracks brought back many fond memories. John made me realise and appreciate just how important music was in a movie. Music is what creates emotion whether it be suspense, sadness, anger, surprise, happiness, fear, or romance. Most of the time music is a layer of a movie we do not really remember, pay attention to, or recognise unless of course, it is the soundtrack to Jaws or Star Wars.

While driving in the car John would often start a movie music game. He would play a soundtrack from a movie and we would have to guess the movie. The boys loved it and would never get bored of trying to guess. I was amazed at how the boys and occasionally myself would be able to guess the movie mostly based on the feel the music imparted and some sub-conscious memory.

During the last year John was with us he started exposing the boys to movies of the 80's, the ones still worthwhile watching that is. The first one was The Goonies followed by others including Indiana Jones, Back to the Future and The Terminator. Also, a personal favourite of mine, Stand by Me. John showed the boys this for the shock value of kids smoking and the freedom of kids going on an adventure without adults, learning and bonding. Thanks to one of Johns best mates Bent, he is now sharing with the boys more 80's movies, starting with the classic Top Gun.
A fond memory I have of John and his love of movies is just before John came home from the hospital the boys and I, our good friends Scott and Callum pushed John in his wheelchair up to Dendy in Newtown. In a near empty cinema, we watched King Arthur: Legend of the Sword. When it finished I asked John if he liked that and he said, "that was the best thing ever".

In 2002 John was in between jobs and was offered an unpaid job in the art department on the set of a short film called Mimi. The film company was Blackfella Films in Paddington. It was a satirical written by Warwick Thornton starring Aaron Pedersen, Sophie Lee and David Gulpilil. The short film pokes fun at white art collectors who buy Indigenous art purely for its investment value.
John was ecstatic, overjoyed and just so excited to be part of a movie.
Sixteen years had passed but he still had the script, call sheet, and the wrap party invite in his desk drawer. Something that never made it out of the garage onto a wall in the house, because I could not class it as art, was a framed piece, of part of the wall from the set which had John painted. He even made the frame.

John had aspirations of starting his own film company and I had every confidence in him that he could make this happen. John himself had talents of knowing where to point a camera, he was an awesome editor, artistic, amazing drawer and he had some imaginative stories that could have easily evolved into a movie or book. He even had a name for his film company. Film 77.

Hunter is John when it comes to movies in so many ways. It just makes me smile.

During the last few months John was with us he was very sick and there was no positive outlook from any of the medical profession. John never gave up hope and found it extremely difficult to do any of the things some people do knowing their time with us is limited. He had tried to write letters, but he just could not and talking about trying was one of the saddest times I can remember. The pain and heartache I saw on his face I will never forget. While in the hospital I suggested he compile a top 50 of his most favourite movies and every year I would hold a special screening in his memory. He looked into my eyes and I could see the cogs turning, he said "I like that idea, I really like it". There was no sign of hopelessness just interest, passion and eagerness. I will never forget that look on his face.
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FILM 77
One of Johns most passionate hobbies was movies. He loved everything about a good movie. John could tell you anything about a movie, who the actors were, the director and even who composed the music. I was going through our CD collection (that was in storage) recently and seeing the substantial number of film score soundtracks brought back many fond memories. John made me realise and appreciate just how important music was in a movie. Music is what creates emotion whether it be suspense, sadness, anger, surprise, happiness, fear, or romance. Most of the time music is a layer of a movie we do not really remember, pay attention to, or recognise unless of course, it is the soundtrack to Jaws or Star Wars.

While driving in the car John would often start a movie music game. He would play a soundtrack from a movie and we would have to guess the movie. The boys loved it and would never get bored of trying to guess. I was amazed at how the boys and occasionally myself would be able to guess the movie mostly based on the feel the music imparted and some sub-conscious memory.

During the last year John was with us he started exposing the boys to movies of the 80's, the ones still worthwhile watching that is. The first one was The Goonies followed by others including Indiana Jones, Back to the Future and The Terminator. Also, a personal favourite of mine, Stand by Me. John showed the boys this for the shock value of kids smoking and the freedom of kids going on an adventure without adults, learning and bonding. Thanks to one of Johns best mates Bent, he is now sharing with the boys more 80's movies, starting with the classic Top Gun.
A fond memory I have of John and his love of movies is just before John came home from the hospital the boys and I, our good friends Scott and Callum pushed John in his wheelchair up to Dendy in Newtown. In a near empty cinema, we watched King Arthur: Legend of the Sword. When it finished I asked John if he liked that and he said, "that was the best thing ever".

In 2002 John was in between jobs and was offered an unpaid job in the art department on the set of a short film called Mimi. The film company was Blackfella Films in Paddington. It was a satirical written by Warwick Thornton starring Aaron Pedersen, Sophie Lee and David Gulpilil. The short film pokes fun at white art collectors who buy Indigenous art purely for its investment value.
John was ecstatic, overjoyed and just so excited to be part of a movie.
Sixteen years had passed but he still had the script, call sheet, and the wrap party invite in his desk drawer. Something that never made it out of the garage onto a wall in the house, because I could not class it as art, was a framed piece, of part of the wall from the set which had John painted. He even made the frame.

John had aspirations of starting his own film company and I had every confidence in him that he could make this happen. John himself had talents of knowing where to point a camera, he was an awesome editor, artistic, amazing drawer and he had some imaginative stories that could have easily evolved into a movie or book. He even had a name for his film company. Film 77.

Hunter is John when it comes to movies in so many ways. It just makes me smile.

During the last few months John was with us he was very sick and there was no positive outlook from any of the medical profession. John never gave up hope and found it extremely difficult to do any of the things some people do knowing their time with us is limited. He had tried to write letters, but he just could not and talking about trying was one of the saddest times I can remember. The pain and heartache I saw on his face I will never forget. While in the hospital I suggested he compile a top 50 of his most favourite movies and every year I would hold a special screening in his memory. He looked into my eyes and I could see the cogs turning, he said "I like that idea, I really like it". There was no sign of hopelessness just interest, passion and eagerness. I will never forget that look on his face.



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Read a Previous Update
Colina Ballard
27 months ago

Go on Kyle and Jackie o the more awareness and the amount of listeners they have will definitely put your story out there

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Linda Weaver Teigland
28 months ago

What about fostering a dog. There are plenty that really could use some love...

+ Read More
Sarah Perry
35 months ago

GO FOR IT ........... the love and family experiences can only be healing for John

+ Read More

$71,285 of $64,000 goal

Raised by 197 people in 52 months
Created March 31, 2015
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$50
Anonymous
25 months ago
$1,000
Anonymous
25 months ago
$100
Anonymous
25 months ago
MB
$100
Marrita Bell
25 months ago

Rest In Peace John.... Sending our love to you Jodi and your Boys.

CM
$50
Cherie McClean
25 months ago
JJ
$250
Jaspal Jandu
25 months ago
LA
$500
Lemya Albekaa
25 months ago

We are here for you Jodi RIP John

$50
Anonymous
25 months ago
SF
$1,067
Scott Fulton
25 months ago

Rest in peace John. All our love Team Fulton.

$100
Anonymous
26 months ago
Colina Ballard
27 months ago

Go on Kyle and Jackie o the more awareness and the amount of listeners they have will definitely put your story out there

+ Read More
Linda Weaver Teigland
28 months ago

What about fostering a dog. There are plenty that really could use some love...

+ Read More
Sarah Perry
35 months ago

GO FOR IT ........... the love and family experiences can only be healing for John

+ Read More
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