Main fundraiser photo

Dying Is Expensive

Before I knew what was really wrong with me, when people asked why I was walking strangely, I told them I was attacked by Godzilla. In the legs. I referred to it in conversations with friends and family as "Godzilla Disease". All I really knew was that nothing hurt, but I walked with a little bit of a limp, and when I tried to run, it was like...I had forgotten how. My legs just didn't move like I wanted them to. Eventually I realized I couldn't even stand on my toes. There just wasn't strength there to lift my body up with my feet. And I was getting worse.

Six months later, on April 1st of all dates, Godzilla Disease was given another, scarier name.

Often referred to as Lou Gehrig's Disease, Amyotrophic Lateral Sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.

ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. It comes out of the blue, attacks swiftly, and has no mercy. And, I’ve got it.

If you like, you can read the full story of how I came to my diagnosis here: http://www.gifhy.com/alsfts/2014/04/14/the-road-to-diagnosis-part-one *
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Being sick is very, very expensive.

With that in mind, your donations will go to things like lawyer fees, non-covered equipment purchases, house renovation projects (building ramps and accessibility modifications), etc.  It's completely ridiculous how costly things become when you attach the phrase "medical".

Often when people find out about my diagnosis their first question is, "How can I help?" Well, this is one way. Please become an ALS Godzilla Squad member today and make a direct difference by donating.

From all of us, to all of you, thank you for reading this and as always for your support! ~Godzilla RAWR~

*Forewarning, behind the gifhy link above, there is frank subject matter and adult language. I get sweary.  Proceed as you like.
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Donations 

  • Benjamin Cameron
    • $500 
    • 8 mos
  • Rachel Phariss
    • $50 
    • 8 mos
  • Darrell Goffinet
    • $20 
    • 8 mos
  • Katie M OFarrell
    • $50 
    • 8 mos
  • Jason Bostick
    • $10 
    • 8 mos
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Organizer

Vashti Ross
Organizer
Hillsboro, OR

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