Help MayaTheDragon Fight Leukemia
Maya is a sweet, smart, bright, beautiful three year old who needs our help! On Thursday night, Sara and Scott, Maya's mom and dad, noticed some unusual bruising on her and decided to take her to the doctor. They went in next morning and the doctor had them go to the hospital immediately, where tests were done. The shocking news came back that Maya has leukemia. Within an hour, Maya and her family left for Oakland Children's Hospital where she is receiving blood and platelet transfusions. She is waiting for a bone marrow biopsy so that a course of action can be taken.
Maya and her family need our support to help them through this difficult time. One way YOU can help Princess Maya fight is to donate to Go Fund Me. Any amount, large or small, will make a difference and be greatly appreciated. We will keep you informed through Caring Bridge as new information becomes available. Keep sending love, prayers, and positive energy for Princess Maya and the Morrisons!
Maya is still in the maintenance phase, taking daily oral chemo, going in for monthly IV chemo treatments, lumbar punctures, taking rounds of steroids, among other things. But she is doing great and the END is in sight!!! As always, thank you for your love, prayers, support, positive thoughts, .... Love is Life.
Thank you for all of the love and continued prayers. Love is life.
Through out this journey, there have been times when I have had to remind myself to breathe. Just breathe, Sara. You have to breathe. I have held my breath more times than I would like to admit during this journey. And for the last two weeks...I think I have taken sips of air while holding all that I have in. Hoping. Praying. Wishing. Visualizing. Meditating. Holding on to the idea that my little girl is still in remission. I feel like I couldn't really quite catch my breath.
Today we traveled to Dr. Zucker's office for...what seems to have turned into the biggest "lab draw" or test this year. Last year had a few lab draws and diagnostics that were impressionable. Of course, the blood sample that Papez ordered that diagnosed Maya...and the results of her second bone marrow aspiration that indicated she was in remission. We had waited to hear if she was in remission and what risk level she was for what seemed like eternity. Those results were excruciating to wait for. Today's lab draw seemed as terrifying as last year's.
Last week's labs indicated her ANC dropped further to 90 and her WBC increased WBC to 2.1. Dr. Zucker was kind and he physically looked at a blood smear to see if he could see any abnormalities. He called me back immediately and offered good news in that he did not see anything strange. We knew that 6mp takes a while to detox from the body so last week's labs were terrifying but we were instructed to...well to not freak out yet.
Today we got to speak with Dr. Z even though I'm sure he was very busy and we were not scheduled to see him. We were just there for a Budda Button access with Denise. He spoke with us about possibilities and about options. He had not scheduled a bone marrow aspiration yet but that was a possibility depending on what today's labs showed. If no recovery, we'd have to determine if she was still in remission. And we'd ALL start freaking out.
I'm unbelievably happy to say...we will not be needing a bone marrow aspiration this time. She appears to be in classic blood recovery mode and we will be resuming oral chemo tonight with Methotrexate. 6mp will resume as soon as we pick up the new prescription.
These are numbers I never thought I would be so happy to see. While she is anemic at this point, RBC take a while to replete. She's working hard on healing and I know she is well on her way. She continues to eat well, drink, and POOP. Stubbornness is the worst part as she most certainly associates moving her bowel's with some pretty gnarly memories. We'll work through this together and until we are healed from that...there is Mira Lax and CALM to the rescue.
The dragon appears to have been struck out of the sky. She hunkered down in her cave but is peeking out for a return to flight. Her armor is strong but even a dragon is vulnerable. She flies fiercely and flies high. Even with a hemoglobin of 5.7...she shows very little signs. She fights through discomfort and spits fire at weakness. We have been humbled and realize that while our strong dragon continues to win, we cannot let our guard down yet. What we can do is breathe. I work on this as much as possible and I hope today's news helps those of you also holding your breath....exhale. Thank you. We love you. And Love is Life.
Dear family, friends, new friends, old friends, long-lost friends, friends like family, friends of friends, friends of family, colleagues, strangers, supporters, lovers, prayers, and the anonymous. Your support and love is tangible and overwhelmingly beautiful. We have found ourselves in some dark times but the light shining upon us from the people of our world (near and far) has lit the way and made this whole experience manageable. Results are back and Maya has been diagnosed with B cell acute lymphoblastic leukemia. She has an amazingly long road ahead of her filled with chemotherapy, steroids, lumbar punctures, body changes, immunity concerns, and other life changes. Even with all this, it is the most wonderful awful news we could ask for as it is the most treatable and curable type of childhood leukemia. She is due to get her first dose of chemo via lumbar puncture tomorrow along with a power port placement which will stay with her for the next 2.5 years of treatment. She has been amazing and her strength humbles me. She is trying out "strong and calm" as her motto. Scott and I are holding up and very thankful for my parents who have been essential with taking care of Lincoln, playing as much as possible with Maya, and keeping us sane. We are trying to be as present as possible while with the kids so please visit Caring Bridge for updates. Thank you all so much for your love and support. There is not a big enough thank you card in the word to express our gratitude. Love is life.
Please have the family reach out to Northern Nevada Children's Cancer Foundation in Reno. They will be able to support the family both financially and otherwise!