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Baby Hayze's fight -Gastroschisis

$30,038 of $28,000 goal

Raised by 363 people in 7 months
Created July 9, 2017
MJ
Mitzi Jobe
on behalf of catherine consolini
On April 8th, 2017, Baby Hayze Hart was born five weeks early with Gastroschisis. This condition occurs when an opening forms in the baby's abdominal wall. The baby's bowel then pushes through this opening and develops outside of the baby's body in the amniotic fluid. Additionally, he was suffering from respiratory distress syndrome, anemia and is at risk for severe sepsis.
At birth, Baby Hayze immediately underwent surgery due to his stomach partially closing and cutting off blood flow to the exposed intestines. This closing is a rare complication of gastroschisis and was unable to be seen on ultrasound. Further treatment to correct this birth defect was only partially successful and 6 weeks later Baby Hayze returned to surgery so his intestines could be fully enclosed in his body. While in surgery, his doctor discovered 2 suspected areas of atresia. These are areas where the bowel is either extremely narrow or completely closed off. The surgeon decided to give Hayze's body time to heal but a 3rd surgery was likely to happen. 
6 weeks after the second surgery, Baby Hayze returned to surgery for a 3rd time. Both suspected atresia sites were removed. He emerged from surgery with 60 cm of small intestine instead of the normal 170 cm. 

To date, Baby Hayze is still in NICU unable to go home with his Mom, Dad and two loving sisters. Attempts to try and feed Hayze were unsuccessful. Tubes are still in place to drain his stomach and he receives his nutrition through IV TPN and lipids.

His parents were recently advised additional surgery would be necessary and the possible removal of more intestine was in his future. Baby Hayze’s liver is also at risk due to the medications needed to help his pain and condition. 

After doing a lot of research, his parents have found some hope for Baby Hayze at Children’s Hospital in Boston, MA. Doctors there specialize in Baby Hayze’s condition and have experienced success with Omegaven, a treatment that helps to prevent and hopefully reverse liver damage. The Omegaven is FDA approved in only a few States. As you can imagine, a ray of hope has entered the lives of Baby Hayze’s family. On Friday, July 7th, Baby Hayze was accepted to the program in Boston and the doctors have accepted him for care.

Baby Hayze and his mom will  be heading to Boston for a while. They will be separated from Hayze’s two sisters and his Dad who will stay behind to work and earn money for the family. With continued prayers, it is our hope this treatment will be successful and Baby Hayze and his Mom will return home once he is stable. After this, Baby Hayze will need to return to Boston every two months for at least the next few years.  

His parents and family wish to sincerely thank the doctors and staff here in New Orleans. They have been wonderful and supportive. They have dried our tears and celebrated Baby Hayze’s triumphs along with us. 

Baby Hayze will soon need to be medevaced to Boston. As you can imagine, Baby Hayze’s condition has placed huge financial stress on this young family of five. If anyone can possibly donate funds to help absorb costs, travel expenses, lodging and post care, we would be eternally grateful. Any amount will help and be greatly appreciated. 
 
 This is an amazing, precious little boy who is fighting for his life!  Hayze has quite the battle ahead of him. We also ask for your prayers. Please keep Baby Hayze, his parents, sisters and family in your prayers. His parents need the strength of our Lord to continue to touch them.  

Thank you for your love, kindness, compassion and prayers. Keep up with Baby Hayze on Facebook at Pray for Hayze - #HayzeStrong
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UPDATE: Tonight at 6pm, WWLTV Channel 4 will be featuring Hayze's story. You can watch it live at 6pm or check Hayze's page for the online link. Thank you to everyone who has shared Hayze's page and donated. I am forever thankful to you all.

The kindness, love and support as been overwhelming. we want to thank everyone for helping us spread this amazing little boys story. if you would like to contact us directly for more detail information please do so at helpforhayze@gmail.com. thank you again
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UPDATE FROM CATHERINE- "With a heavy heart, I sadly have to let everyone know that Hayze's insurance has decided to revoke their approval for transfer to Boston. I have been fighting them for days and am mentally and physically drained"....

UPDATE ....Hi everyone, Catherine has been fighting diligently with insurance with no success. She has been able to work out the situation with Boston's financial department. However the need to transport Hayze has not been successful in finding a charity AIR AMBULANCE due to the distance. We have found someone who will fly them to Boston, but at a cost. A nurse was kind enough to donate her time to fly with Hayze. It is CRITICAL that we have Hayze transferred to Boston by the end of next week. The cost of the Air Ambulance and the cost for an ambulance to and from airports will run $28,000. The need is URGENT and if you are in a position to help contribute Every donation no matter how larger or small it would be greatly appreciated and will help us reach our goal
We thank you for your continued support, your kindness, love and prayers. Please continue to follow Baby Hayze at facebook page - PRAY FOR HAYZE - #hayzestrong
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Thank you everyone for your continued prayers and support. Some prayers have been answered, please see below -Catherine has an update and is very good news for Hayze. His previous attempts to transfer him to Boston were complicated by Hayze needing immediate surgery in New Orleans and the fighting for insurance approval. Since this last surgery was unsuccessful the insurance and the Doctors have agreed to approve the transfer for Hayze to Boston. This is fantastic news as the insurance will now cover the cost of the medevac for Hayze.
However, Catherine will still have expenses as well as the cost of flying back and forth between Boston and home as she will be separated from Hayze's 2 sisters and Dad. Also, once Hayze is able to finally come home, he will have to return to Boston every 2 months for treatment Your continued support is greatly appreciated. Please also continue to keep Hayze and his family in your prayers for safe travels healing and strength. This is an amazing, precious little boy and is quite the fighter as is his mom. Follow Hayze through all of his journey on facebook @ prayfor hayze#hayzestrong

UPDATE: from Catherine
"As of yesterday afternoon, Hayze has officially been approved for transfer to Boston Children's Hospital and under the care of Dr. Puder. We are very happy that Hayze will be getting the top care in the country but also struggling with being separated. Thank you for all of your continued prayers; we truly appreciate, and need, them."







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$30,038 of $28,000 goal

Raised by 363 people in 7 months
Created July 9, 2017
MJ
Mitzi Jobe
on behalf of catherine consolini
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