Pray for Dorian #dstrong

$55,670 of $75,000 goal

Raised by 873 people in 33 months
Melissa doesn't know i am creating this...well she does now... :)

(written by mommy Melissa)

My heart is left broken......
Yesterday I walked into a clinic room to discuss the few respectable images we were able to retrieve before abandoning Dorian's MRI of his right humerus and shoulder. The scan was getting lengthy and he was fidgety. It's alright, we'll just reschedule the scan and use sedation. I walk in the room and Dorian's oncologist follows.....then our social worker walks in after him. "Stephanie, what are you doing in here?!?! No no no!!! Get out!! WHAT ...THE .....?!?!?!"
There is only one reason for her to be there. Only one. One. One reason. No words are said. I put my head between my knees and try to catch my breath. Still no words are exchanged. None are needed. I catch myself before I crumble to the floor, and I cry until my eyes are swollen.
Today a CT scan confirmed my worst fear. A PET scan made it worse. Dorian's right humerus bone is grossly invaded by rhabdomyosarcoma. He has Rhabdo spots on a rib bone, both legs and a solid tumor under his right knee. My sweet child has relapsed again. This time while he was active on chemotherapy. My boy. My son. My world.

Options are heartbreakingly limited. Together, Chris and I both decided that we are not willing to give up. We head back to Hasbro tomorrow and will begin mapping for radiation. D will have his 104th radiation session Monday morning and will continue daily treatments for 4-5 weeks. We will discuss chemo options for Dorian. At this point, chemo is merely a short term solution to slow progression of disease until we can research and decide on other therapy options.

I can't describe how painful this is. My heart is crushed. My spirit shattered. My body physically hurts from the inside out. I am angry and scared. Dorian is angry and frustrated. But he is ready to fight. He is ready to kick ass again. He is ready to survive!!! Together, we stay D-STRONG!!!!!!

-Melissa will be spending every moment she can with her child. Trying to cherish every moment! I believe this ride is going to be more difficult than ever and they need our help. Please help me to raise money to help her keep up with their living expenses and make some great memories for her and D!

‪#‎cancerfearsme‬ ‪#‎dstrong‬ ‪#‎kickingcancersass‬ ‪#‎rhabdolife‬ ‪#‎relapse‬ ‪#‎fuckcancer‬ ‪#‎myhero‬ ‪#‎momcology‬ ‪#‎cancermessedwiththewrongkid‬ ‪#‎fight‬ ‪#‎survive‬
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Hello all of our #dstrong followers. Im posting an update for 2 reasons.

One, because go fund me has asked me to let you all know that these funds are all being deposited into a bank account. An account labeled "Dorians Miracle". All funds are being used for any needs of Dorian and his family, as well as a new non-profit organization The Dorian J. Murray Foundation.

Second, an update on Dorian. Dorian is a fighter and he is still with us. He is making his transition at this time. Heaven is soon going to have the most beautiful angel ever. Please continue to pray for a peaceful transition and for Dorian's parents, family and friends.

Stay #dstrong forever and always
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Oh, where to begin? I could write a long, long post, detailing everything and share the pain with you, but I'm not going to. Becasue this sucks. It fucking sucks. So I'm just going to be forward and fast.

Please don't read the next part and grab your phone to call or text Chris or me (or Kristy). Please understand that right now, we need space, private time with our son, and can not deal with our phones going off 1000x a day. While we know you only wish to offer your love and support, we just need time.

The MRI of Dorian's spine came back with devestating results. The rhabdo has passed into his spinal cord and small cancer cells are floating in his spinal fluid throughout his spine and brain. This type of spread changes everything. He is no longer elegible for any trial. Chemotherapy, which we knew wasn't a cure anyway, will no longer give him extended time. Chris and I spent hours with our son, holding him, loving him, and deciding next steps. We sat with Dorian today and had the talk no parent should ever have with their child. But we did it. We told him what was happening. We told him he had a choice; continue chemo and possibly gain days or a week at most, or, stay home and be comfortable. Hang out with his family, do some fun things and enjoy the time left. Without the daily visit to the hospital. No chemo. No vomiting. No transfusions. No needles. Dorian easily made his choice; and his father and I support him.

Let me be clear, Dorian is NOT dying today. He isn't dying tomorrow. We have some time, but it is severely limited. This is why I ask that you not all reach out at the same time. We want to spend this time with our son, not on our phones. Send your love to our FB pages. Maybe post a video to D, I'll make sure he sees every single one of them.

This journey has been hard and long. He has fought the most amazing fight and he never gave up. He is, and forever will be, my hero. Always, always, always
D-Strong!!

#dstrong
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Happy Post Thanksgiving! I hope you all enjoyed your day.

There have been some developments with Dorian that I have kept private until both I, and D's father, could wrap our heads around things and make some decisions.

There was a target therapy trial in NYC at Columbia University that we were very excited about. To be considered for this trial, Dorian needed to be 3 weeks out from any chemotherapy and radiation treatments. Dorian met all the elegibility requirements and was approved for the phase 1 trial. Last week, we took a trip to NY to enroll D into the program. We were hoping to start the new drug on monday, but D's platelet count was not high enough to begin. We would need to wait another week and begin the drug on the 30th. Unfortunatly, Monday night I received a call from Columbia and due to an administrative oversight on their end, Dorian was dropped from the trial and his 'spot' was taken by another facility. We were completly blindsided by this and we were left dissapointed and deflated.

On Wednesday Dorian had a PET scan done. The results were devestating. After three weeks of being off chemo, his cancer had "exploded" and was everywhere. The lymph node involvement was getting worse and multiple new boney spots were found as well as growth of a solid tumor in his right leg. We have lost control.

Dad and I were given three options:

Option 1: Take him home and keep him comfortable with pain management and understand that, with no further treatment, we would have about a month or two left with him.

Option 2: Begin another round of chemotherapy right away and try to regain control of his cancer, stop the growth and get him back to a stable state. Reduction of the cancer spots is obviously ideal, but realistically simply halting the growth my be our only outcome.

Option 3: Attempt enrollment at Penn State for an available immunotherapy trial. This would require going through the elegibility process, and not giving any treatment for at least another 10 days. This drug is only available at that facility so we would be traveling back and forth. This drug is very new, with outcomes and side effects unknown.

After considering options 2 and 3 (option 1 was off the table before option 2 was even suggested), long conversations with his doctor, our families and, most importantly, Dorian, and after one of the most difficult talks D's father and I have ever had, we decided that starting chemo immediately was the best choice.

There were so many variables involved with this decision. But ultimately we concluded that this may very well be the last significant decision we make for Dorian and his opinion of it matters. For almost 4 years, we made decisions without getting his opinion of it and basically forced him to do it. This time, his opinion matters and he is old enough to express his thoughts. When asked his thoughts, he responded with the most grown up answer I've ever heard from him. Knowing all his options, he also decided the same option we did. He wants to stay at his hospital and start chemo again.

As I write this, we sit in a hospital room waiting for his chemo to come up from pharmacy. We've already been here almost 8 hours, and will be spending at least 1 night here (more if he gets very sick from it and needs additional hydration).

I'm asking for each of you to please keep your prayers strong and full of healing and comfort for Dorian. We are not ready to say good-bye to our boy. He is not ready to give up. We keep going and continue to stay D-Strong!!!
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Today's ultrasound results show tumor growth in one of the two tumors in the pancreas. Last Tuesday it measured 1.3 centimeters and today it measures 1.6 centimeters. Not substantial growth, but growth nonetheless. The second tumor remained stable. Dorian had an enlarged lymph node in his armpit which we have been watching. We were unsure if it was enlarged due to radiation in that area or if it was the rhabdo. The lymph node has continued to enlarge, confirming it is disease and not radiation damage. Scheduling a bone marrow biopsy to see if the Rhabdo has reached that as well.

A phase 2 trial has opened up at Columbia University Medical Center in NYC and we are moving forward with the eligibility process. Hopeing to have some contact and setup the first phases of meeting the doctors by the end of the week.

Staying #dstrong
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Read a Previous Update
Wycee Liu
27 months ago

Dear Murray family - I am writing to you on behalf of the Chinese Embassy in the USA. The Ambassador wants to send Dorian a gift. Pls kindly provide your mailing address or call me at 202-495-2223 or 202-436-6182. Wycee Liu, Second Secretary.

+ Read More
Joe Peezi
26 months ago
6
6

I organized a Super Bowl pool to raise $ so my friends, colleagues and I could show our love and support to you And your family Dorian! You are all always in our thoughts and prayers. Hopefully our $1,000 donation can help.

+ Read More
Juhamatti Niskasaari
27 months ago
5
5

Hellou to you Man from Finland! Here is about -28 cold so it's in Fahrenheit -18. So very cold. I Don't recommend to go outside in this Weather! :D But i found you at Local News site. And i can say for sure, That 1 Million Finland Citizen knows you! And I can say that it is very famous in our scale, because there is not so many people in Finland :D

+ Read More
Kris Jackson
27 months ago
3
3

Dorian you are famous all throughout Chicago now. Your hashtag #DStrong has been shared everywhere. You are such an inspiration to all of this. Stay strong and keep fighting little buddy.

+ Read More
Omari Hamid
27 months ago
3
3

#Dstrong, You are Famous in Morocco

+ Read More
Laura Lenihan Locke
33 months ago
3
3

Please consider donating even a dollar. Our pint size warrior needs support. Prayers from all faiths, well wishes and lots of thoughts are also needed. Dorian, we love you to the moon and back!

+ Read More
Leslie Lavitt
23 months ago

I can't imagine the heartache you and your family are going through. Having only one child, one I didn't think I could conceive, my miracle child - my world would end if I went through what you are coping with. My prayers, blessings and light are being sent to you.

+ Read More
Louise McRoy
27 months ago

Hey Buddy - I hope you got our good wishes & photo from Australia ? - stay strong and positive - sending hugs x

+ Read More
Tinamarie C Bailey
27 months ago

I left a comment with our donation but it doesn't seem to be there. This is from some of us at the school bus company. Keep fighting Dorian!

+ Read More
Susie Bedel Flemming
27 months ago

My prayers are with all of you. This little guy has completely won my heart the moment I laid eyes on him. Would love to chat with his parents.

+ Read More
Reilly Flaherty
27 months ago

Murray Family, Im currently a Junior at Nichols College and when I heard about Dorian I wanted to pull my entire campus together to show Dorian he is famous on my campus. I made a short video of student faculty and staff. I really hope this gets to you because we are all #DStrong on our campus. Stay Strong Dorian, heres our video honoring your strength! https://www.youtube.com/watch?v=gCJTBbRmlns

+ Read More
Sharon Terzian
27 months ago

We spend a ton of time on Hasbro 5j, tomorrow fund clinics ourselves and I believe have been next door to you on one occasion. My (21 year old with special needs) child has uncontrollable Crohn's Disease. I wish you the best of luck with finding a cure for all these horrible diseases that affect our children!

+ Read More
Marianne Rönnlöf
27 months ago

Hello Dorian I´m from Finland ,love yoy ..........you are so strong :) Hugs from me and my family ......yoy are a fighter :)

+ Read More
Danielle Nicole Drayton-Barnes
27 months ago

Sending love to you and your family from across the state line in Norwich, CT. Stay strong little man, and I'm praying for you Melissa and Chris. We love you! #DSTRONG forever!

+ Read More
Kaitlyn Farrand
27 months ago

DSTRONG! You are famous and loved! You are a fighter

+ Read More
Melissa Wells
27 months ago

#DSTRONG YOU ARE MY HERO IF YOU EVER NEED ANYTHING PLEASE SEND ME A EMAIL OR A TEXT ON FACEBOOK ANYTIME YOU WANT TO JUST TALK I AM HERE FIGHTING WITH YOU ALL THE WAY YOUR FRIEND MELISSA WELLS

+ Read More
Brenda Young Barrera
27 months ago

Praying for you in Wyoming, MIchigan. #Dstrong

+ Read More
Debra Halcomb Cress
27 months ago

You are famous in Tennessee prayers you're way little man

+ Read More
Patrick Cummings
27 months ago

Dorian you are famous. Be strong little buddy.

+ Read More
Paige McCoy
27 months ago

Hey everyone! I'm from Chuck E. Cheese's in Warwick, RI and I'm here advertising our Kick Out Cancer with #Dstrong Day event we're holding Saturday the 30th! Everyone should come dressed in gold (color of childhood cancer) to support the cause. Donations will be collected throughout the whole day and will ALL be donated to THIS gofundme page! Check out our Facebook page for more details! https://www.facebook.com/chuckecheesewarwickri/?ref=hl

+ Read More

$55,670 of $75,000 goal

Raised by 873 people in 33 months
Created July 24, 2015
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$30
Anonymous
24 months ago
$20
Anne Rich
25 months ago

All of you are in my prayers ....Dorians memory will always stay with me what an inspiration he was and still is The strength all of you have shown throughout all of this is also inspirational God Bless each and every one of you and always look for signs :)

MP
$300
Michelle Pinto
25 months ago
1
1

autographed print

$28
Gerald Slattery
25 months ago

My son and I have followed Dorian and his family for months now and it breaks our hearts that Dorian has gained his Angel wings. My son is 7 yrs old and even though we didn't know Dorian personally he was always looking for new pictures and stories about how he was doing . We are #Dstrong and will always be #Dstrong. We still talking about him often !

RM
$50
Rosanne Morissette
25 months ago

Comfort and love to the amazing parents of a beautiful, amazing boy who got into all our hearts. "#D Strong" forever, Dorian.

$250
Anonymous
25 months ago
Wycee Liu
27 months ago

Dear Murray family - I am writing to you on behalf of the Chinese Embassy in the USA. The Ambassador wants to send Dorian a gift. Pls kindly provide your mailing address or call me at 202-495-2223 or 202-436-6182. Wycee Liu, Second Secretary.

+ Read More
Joe Peezi
26 months ago
6
6

I organized a Super Bowl pool to raise $ so my friends, colleagues and I could show our love and support to you And your family Dorian! You are all always in our thoughts and prayers. Hopefully our $1,000 donation can help.

+ Read More
Juhamatti Niskasaari
27 months ago
5
5

Hellou to you Man from Finland! Here is about -28 cold so it's in Fahrenheit -18. So very cold. I Don't recommend to go outside in this Weather! :D But i found you at Local News site. And i can say for sure, That 1 Million Finland Citizen knows you! And I can say that it is very famous in our scale, because there is not so many people in Finland :D

+ Read More
Kris Jackson
27 months ago
3
3

Dorian you are famous all throughout Chicago now. Your hashtag #DStrong has been shared everywhere. You are such an inspiration to all of this. Stay strong and keep fighting little buddy.

+ Read More
Omari Hamid
27 months ago
3
3

#Dstrong, You are Famous in Morocco

+ Read More
Laura Lenihan Locke
33 months ago
3
3

Please consider donating even a dollar. Our pint size warrior needs support. Prayers from all faiths, well wishes and lots of thoughts are also needed. Dorian, we love you to the moon and back!

+ Read More
Leslie Lavitt
23 months ago

I can't imagine the heartache you and your family are going through. Having only one child, one I didn't think I could conceive, my miracle child - my world would end if I went through what you are coping with. My prayers, blessings and light are being sent to you.

+ Read More
Louise McRoy
27 months ago

Hey Buddy - I hope you got our good wishes & photo from Australia ? - stay strong and positive - sending hugs x

+ Read More
Tinamarie C Bailey
27 months ago

I left a comment with our donation but it doesn't seem to be there. This is from some of us at the school bus company. Keep fighting Dorian!

+ Read More
Susie Bedel Flemming
27 months ago

My prayers are with all of you. This little guy has completely won my heart the moment I laid eyes on him. Would love to chat with his parents.

+ Read More
Reilly Flaherty
27 months ago

Murray Family, Im currently a Junior at Nichols College and when I heard about Dorian I wanted to pull my entire campus together to show Dorian he is famous on my campus. I made a short video of student faculty and staff. I really hope this gets to you because we are all #DStrong on our campus. Stay Strong Dorian, heres our video honoring your strength! https://www.youtube.com/watch?v=gCJTBbRmlns

+ Read More
Sharon Terzian
27 months ago

We spend a ton of time on Hasbro 5j, tomorrow fund clinics ourselves and I believe have been next door to you on one occasion. My (21 year old with special needs) child has uncontrollable Crohn's Disease. I wish you the best of luck with finding a cure for all these horrible diseases that affect our children!

+ Read More
Marianne Rönnlöf
27 months ago

Hello Dorian I´m from Finland ,love yoy ..........you are so strong :) Hugs from me and my family ......yoy are a fighter :)

+ Read More
Danielle Nicole Drayton-Barnes
27 months ago

Sending love to you and your family from across the state line in Norwich, CT. Stay strong little man, and I'm praying for you Melissa and Chris. We love you! #DSTRONG forever!

+ Read More
Kaitlyn Farrand
27 months ago

DSTRONG! You are famous and loved! You are a fighter

+ Read More
Melissa Wells
27 months ago

#DSTRONG YOU ARE MY HERO IF YOU EVER NEED ANYTHING PLEASE SEND ME A EMAIL OR A TEXT ON FACEBOOK ANYTIME YOU WANT TO JUST TALK I AM HERE FIGHTING WITH YOU ALL THE WAY YOUR FRIEND MELISSA WELLS

+ Read More
Brenda Young Barrera
27 months ago

Praying for you in Wyoming, MIchigan. #Dstrong

+ Read More
Debra Halcomb Cress
27 months ago

You are famous in Tennessee prayers you're way little man

+ Read More
Patrick Cummings
27 months ago

Dorian you are famous. Be strong little buddy.

+ Read More
Paige McCoy
27 months ago

Hey everyone! I'm from Chuck E. Cheese's in Warwick, RI and I'm here advertising our Kick Out Cancer with #Dstrong Day event we're holding Saturday the 30th! Everyone should come dressed in gold (color of childhood cancer) to support the cause. Donations will be collected throughout the whole day and will ALL be donated to THIS gofundme page! Check out our Facebook page for more details! https://www.facebook.com/chuckecheesewarwickri/?ref=hl

+ Read More
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