Baby Jade's Road to Recovery
Donation protected
Hello to all my name is John Nesselhauf and I am probably the proudest UNCLE in the world to have such an inspiration like my beautifal angel Niece Jade Riley Nesselhauf in my life. A small tid bit of Jades story is below, in bold, in the words of her mommy and daddy. I am writing this to you in hopes that you can take a moment to read the story of Jades journey thus far and drop a donatinon of any size into this account. My brother is working hard to ensure the everyday bills are paid, however these medical bills will continue to rise. So I - We, ask again for your support at this time and if you cannot afford a donation a prayer for baby jade is completely acceptable and appreciated.
A letter from Mommy & Daddy (Joe & Julia Nesselhauf),
Jade was born on February 25th. Doctors diagnosed our baby girl with Pulmonary Atresia with Ventricular Septum Defect, listed under Tetrology of Fallot. Only one in every 10,000 babies are born with this rare heart condition. Babies born with this condition oftentimes have a bluish skin color, because their blood doesn’t carry enough oxygen, they have trouble breathing and eating, and are extremely sleepy. Because of her lack of ductal development, Jade was immediately put on special medication to keep the blood flowing.
It’s been eight days since her first procedure and our sweet girl continues to exude more bravery than imaginable for a three pound person. Although she’s still on medications and on a ventilator with more surgeries on the horizon—we feel the support and love of friends, family and complete strangers. The well wishes, prayers and positive thoughts mean more than you’ll ever know. Please continue to Pray that Jade overcomes all the obstacles before her and that she gets to come home soon. It’s heartbreaking to think our baby girl still hasn’t been outside to breathe fresh air. She still hasn’t been home with her Mommy and Daddy. She’s spent every moment of her existence under close observation in a NICU.
When Jade gains more weight and gets stronger she will undergo open heart surgery and a shunt will be placed in her heart to replace the duct doctors are trying to keep open. After her recovery, she will finally (God willing) get to come home and be on a few medications until she is big enough for a full heart repair. She needs to be at least 12 pounds for that surgery to happen.
Each day is a waiting game—each hour is filled with worry, wonder and prayers. We sit beside her incubator oftentimes feeling helpless—watching in awe as she moves while her fragile body is covered in cords. She inspires us to be strong. She shows us what it means not to give up. She’s our life. This is something no parent should ever have to experience, but something that is our reality.
Thank you from the bottom of our hearts (and Jade’s, too!) for your support and prayers during this difficult time. We will continue to update this page as often as we can so you can follow Jade’s journey.
#PrayersForBabyJade
A letter from Mommy & Daddy (Joe & Julia Nesselhauf),
Jade was born on February 25th. Doctors diagnosed our baby girl with Pulmonary Atresia with Ventricular Septum Defect, listed under Tetrology of Fallot. Only one in every 10,000 babies are born with this rare heart condition. Babies born with this condition oftentimes have a bluish skin color, because their blood doesn’t carry enough oxygen, they have trouble breathing and eating, and are extremely sleepy. Because of her lack of ductal development, Jade was immediately put on special medication to keep the blood flowing.
It’s been eight days since her first procedure and our sweet girl continues to exude more bravery than imaginable for a three pound person. Although she’s still on medications and on a ventilator with more surgeries on the horizon—we feel the support and love of friends, family and complete strangers. The well wishes, prayers and positive thoughts mean more than you’ll ever know. Please continue to Pray that Jade overcomes all the obstacles before her and that she gets to come home soon. It’s heartbreaking to think our baby girl still hasn’t been outside to breathe fresh air. She still hasn’t been home with her Mommy and Daddy. She’s spent every moment of her existence under close observation in a NICU.
When Jade gains more weight and gets stronger she will undergo open heart surgery and a shunt will be placed in her heart to replace the duct doctors are trying to keep open. After her recovery, she will finally (God willing) get to come home and be on a few medications until she is big enough for a full heart repair. She needs to be at least 12 pounds for that surgery to happen.
Each day is a waiting game—each hour is filled with worry, wonder and prayers. We sit beside her incubator oftentimes feeling helpless—watching in awe as she moves while her fragile body is covered in cords. She inspires us to be strong. She shows us what it means not to give up. She’s our life. This is something no parent should ever have to experience, but something that is our reality.
Thank you from the bottom of our hearts (and Jade’s, too!) for your support and prayers during this difficult time. We will continue to update this page as often as we can so you can follow Jade’s journey.
#PrayersForBabyJade
Organizer and beneficiary
John Nesselhauf
Organizer
Oakville, MO
julia Nesselhauf
Beneficiary
