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Positive Bones

£38,520 of £100,000 goal

Raised by 436 people in 5 months
11 years ago, age 17, I was diagnosed with Osteosarcoma. The prognosis wasn't very good and initially the doctors could only offer palative care, but I knew I was strong, and after a time my oncology team saw this too. I was placed on a very intense, trial treatment which included 10 months of near continuous chemotherapy and surgery to remove the 13cm tumour in my left leg. The surgery involved removing the infected bone (knee and tibia) to be replaced with an endo-prosthesis (metal bone). The tumour was big by ‘normal’ standards and the extent wouldn't be truly known until the surgeons took a closer look; it was only during the surgery that they would know whether or not the leg could be saved. I woke up asking if it was still there.

Due to the incredible NHS I was released from hospital after spending 10 months on the ward, even better than that, I walked out with my own 2 legs; metal bone and all. For 2 years I used my new life, and new leg, to join university, travel the world, meet my now husband, dance, climb and live.

Sadly, after 2 years my leg failed, the bone had become loose, infected and needed to be replaced, this was my first revision. It was a success! Life continued to be magical but after 6 months, the knee failed and I went for surgery again.

3 wonderful years passed by, I learned to handi-ski, camped around Belgium and got yet another new metal bone. Each time I started again, learning to walk, getting back to my life, continuing university/careers etc. but I still continued living and loving every moment, new bones and all!

This cycle continued for 10 years with 5 surgeries in total, leading me to today. My leg has failed again but this time my NHS heroes cannot make me bionic anymore, this isn't a sad thing and something I had been prepared for, for a long time. With an amputation my possibilities are even more endless, with mountains to climb, Paralympics to win! My current leg doesn't allow me to climb stairs, walk long distances or run for the bus, but it has provided me with 11 years of exploring, dancing and living.

So I come to my cause, however limitless my determination I have been held back by a little leg that tried and I would like to start my new path as an amputee with all the possibility available to me; I would like to run, jump, climb, leap and never see another surgery again. There are numerous legs available on the market but after extensive research I have set my sights on Ottobock's 'Genium X3'. I promise to you that any donation, large or small, will not be wasted. I have hopes to join the paracanoe team, continue travelling the world and to never stop paying your generosity forward.

Thank you from the bottom of my heart x
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Dear all of my wonderful donators!

I thought it was about time I did another update!
Its been a rollercoaster these past 3 months but one I would certainly ride again.

Last month, after many negotiations, Dorset Orthopaedics and Ottobock kindly agreed to let me loan the leg I am hoping to buy (Genius X3) for 6 months, for a small fee (which we are paying for privately).
As a result we were able to begin the process of my recovery much sooner than hoped, in the NHS I am still 2 months away from getting a leg.
Thanks to all your wonderful donations we were able to pay for 7 days physiotherapy, test socket and liner at just 6 weeks post surgery!

I cannot explain the gratitude we have for all of you, your kindness has been tremendous and your generosity; heartwarming. I am now 10 weeks post surgery and yesterday I was able to walk the dog with my parents without worry of pain, something I haven't been able to do for 11 years.

I will continue to try and provide advice to others in a similar situation on my social media pages and I have hopes of doing my own fundraiser in the new year!

July is our aim now, as this is when the 6 month loan will end so we will continue to power through. From cake sales to running, Christmas jumper days to Kayak journeys, we will do this!

Thank you, because of you I will walk without pain, because of you I will have a leg.

Big loves, always.
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Date 30.10.18:

So today is #tibiatuesdays on @positivebones!

So I thought today would be the ideal day to introduce you all to Tim and Phil!
This all started about 1 month ago when I said that I didn’t want to call my amputated leg a ‘stump’, not out of any fear for the word but mostly because it seemed so demeaning for a leg that would still do so much. So the hunt for a name was on. We were sat with my surgeon when he referred to it as a ‘residual limb’ and thus the name Tim was born!
I didn’t actually realise how beneficial this would come to be, it has meant that Tim has become so much more that just an amputated leg but actually a member of the family! When people visit I ask if they want to see Tim and it’s much easier to refer to him in conversation or when I am in pain.
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Phil (the gap) on the other hand, is not our mate. Phil is my phantom leg and he likes to pop up here and there or even stay around all day (like today) causing me all sorts of discomfort. We regularly like to tell Phil to F-Off when he tries to create problems or just materialise as my foot. Most of the time Phil feels like fizzing or like a ‘beam me up scotty’ that hasn’t quite beamed out so it’s not quite pain but it can be very distracting.
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So say hello to Tim and goodbye to Phil, I’m ready to start our new adventures.

I wonder what I will call my new robo leg?

Thank you once again for all your donations! Tim can’t wait to meet his new extension and get going in the Paralympic Games!
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Date 8.10.18:
So I've decided that I'm going to start setting records before I've even got to the Paralympics and after 4 days, I'M HOME!
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I did all my physio exercises with my fabulous physio and friend, including learning to transfer from floor to wheelchair and tackling the stairs. We've now managed to get on top of the pain after 3 difficult days and my wound is healing well so it only seemed right that we brought Tim back to Moseley!
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Thank you for all your donations, love and support, you got me going even when I was struggling. This leg really is the light at the end of a long tunnel and it really does keep me going, so huge thank you to everyone out there.
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WOW! £10k! I can’t believe we managed 10% before surgery!
Thank you so much to everyone who has donated, shared, liked and raised. We are so so grateful and there will be a smile on my face when I go into surgery because I know we can do this!
Thank you in abundance xxxx
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£38,520 of £100,000 goal

Raised by 436 people in 5 months
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