Positive Bones

£79,320 of £100,000 goal

Raised by 576 people in 11 months
11 years ago, age 17, I was diagnosed with Osteosarcoma. The prognosis wasn't very good and initially the doctors could only offer palative care, but I knew I was strong, and after a time my oncology team saw this too. I was placed on a very intense, trial treatment which included 10 months of near continuous chemotherapy and surgery to remove the 13cm tumour in my left leg. The surgery involved removing the infected bone (knee and tibia) to be replaced with an endo-prosthesis (metal bone). The tumour was big by ‘normal’ standards and the extent wouldn't be truly known until the surgeons took a closer look; it was only during the surgery that they would know whether or not the leg could be saved. I woke up asking if it was still there.

Due to the incredible NHS I was released from hospital after spending 10 months on the ward, even better than that, I walked out with my own 2 legs; metal bone and all. For 2 years I used my new life, and new leg, to join university, travel the world, meet my now husband, dance, climb and live.

Sadly, after 2 years my leg failed, the bone had become loose, infected and needed to be replaced, this was my first revision. It was a success! Life continued to be magical but after 6 months, the knee failed and I went for surgery again.

3 wonderful years passed by, I learned to handi-ski, camped around Belgium and got yet another new metal bone. Each time I started again, learning to walk, getting back to my life, continuing university/careers etc. but I still continued living and loving every moment, new bones and all!

This cycle continued for 10 years with 5 surgeries in total, leading me to today. My leg has failed again but this time my NHS heroes cannot make me bionic anymore, this isn't a sad thing and something I had been prepared for, for a long time. With an amputation my possibilities are even more endless, with mountains to climb, Paralympics to win! My current leg doesn't allow me to climb stairs, walk long distances or run for the bus, but it has provided me with 11 years of exploring, dancing and living.

So I come to my cause, however limitless my determination I have been held back by a little leg that tried and I would like to start my new path as an amputee with all the possibility available to me; I would like to run, jump, climb, leap and never see another surgery again. There are numerous legs available on the market but after extensive research I have set my sights on Ottobock's 'Genium X3'. I promise to you that any donation, large or small, will not be wasted. I have hopes to join the paracanoe team, continue travelling the world and to never stop paying your generosity forward.

Thank you from the bottom of my heart x
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Wow!!! We're at 75% of our target!! Everytime I talk about how far the fundraising has got I feel pure shock, it still hasn't quite sunk in just how much we've managed to raise. what has sunk in though is just how incredible, generous, kind, open hearted and wonderful everyone has been. Its simply amazing.
Thank you, thank you, thank you xxxx
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Hello everyone!!
I thought I would just give a little update on where we are. We are currently around £60k when you include all the additional fundraisers organised by other people.

I am blown away by the incredible work, donations, love, kindness, positive words and more.

So far this has been one of the most difficult yet most humbling and heartwarming periods of my life.

I am more than grateful, it's a gratitude that can't be explained.

So thank you, as always!

Those of you using social media will know that I am planning to canoe 40miles to provide a boost of funds. The one-time rent of my prosthetic runs out in July and so the race is on to raise the other £40k. Alongside a donation made by me and my husband, I will be canoeing, solo, from the Royal Orthopaedic Hospital (where I had my amputation) to Dorset Orthopaedics in Burton on Trent (where I will be able to eventually buy my leg).

It's 40 miles in total which I will do over 2-3 days with almost 50 locks, all of which I plan on doing solo, carrying my canoe each time, over the lock.
Weather permitting I will be doing this in early July. I will post my route in more detail so that if anyone wants to see me pass by, they can come and wave or even join me in the evening wherever I stay (likely a camper van).

The whole time I'll be spreading the Positive Bones message and doing a live feed as a final push for people to donate.
Now just to find a canoe.....
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Dear all of my wonderful donators!

I thought it was about time I did another update!
Its been a rollercoaster these past 3 months but one I would certainly ride again.

Last month, after many negotiations, Dorset Orthopaedics and Ottobock kindly agreed to let me loan the leg I am hoping to buy (Genius X3) for 6 months, for a small fee (which we are paying for privately).
As a result we were able to begin the process of my recovery much sooner than hoped, in the NHS I am still 2 months away from getting a leg.
Thanks to all your wonderful donations we were able to pay for 7 days physiotherapy, test socket and liner at just 6 weeks post surgery!

I cannot explain the gratitude we have for all of you, your kindness has been tremendous and your generosity; heartwarming. I am now 10 weeks post surgery and yesterday I was able to walk the dog with my parents without worry of pain, something I haven't been able to do for 11 years.

I will continue to try and provide advice to others in a similar situation on my social media pages and I have hopes of doing my own fundraiser in the new year!

July is our aim now, as this is when the 6 month loan will end so we will continue to power through. From cake sales to running, Christmas jumper days to Kayak journeys, we will do this!

Thank you, because of you I will walk without pain, because of you I will have a leg.

Big loves, always.
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Date 30.10.18:

So today is #tibiatuesdays on @positivebones!

So I thought today would be the ideal day to introduce you all to Tim and Phil!
This all started about 1 month ago when I said that I didn’t want to call my amputated leg a ‘stump’, not out of any fear for the word but mostly because it seemed so demeaning for a leg that would still do so much. So the hunt for a name was on. We were sat with my surgeon when he referred to it as a ‘residual limb’ and thus the name Tim was born!
I didn’t actually realise how beneficial this would come to be, it has meant that Tim has become so much more that just an amputated leg but actually a member of the family! When people visit I ask if they want to see Tim and it’s much easier to refer to him in conversation or when I am in pain.
Phil (the gap) on the other hand, is not our mate. Phil is my phantom leg and he likes to pop up here and there or even stay around all day (like today) causing me all sorts of discomfort. We regularly like to tell Phil to F-Off when he tries to create problems or just materialise as my foot. Most of the time Phil feels like fizzing or like a ‘beam me up scotty’ that hasn’t quite beamed out so it’s not quite pain but it can be very distracting.
So say hello to Tim and goodbye to Phil, I’m ready to start our new adventures.

I wonder what I will call my new robo leg?

Thank you once again for all your donations! Tim can’t wait to meet his new extension and get going in the Paralympic Games!
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£79,320 of £100,000 goal

Raised by 576 people in 11 months
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