Hope for Holly
Holly is my vibrant 8 yr old daughter that suffered an aneurysm and then it caused a seizure. She had to have CPR preformed twice and there was minimal pulse for a few minutes. She was care flighted out to Children's hospital here in Dallas. When she got here, it was touch and go and her chances were unknown. She managed to pull through like the fighter she is. They did an emergency stent to drain fluid and reduce swelling in her brain. She was medically paralyzed and had a number of medications to help control her blood pressure. Her lungs and heart are weak and she has a breathing tube and will for a few days. After weaning her off certain medications were were able to see if she could respond. We didn't know if she was still in there but she is!! She has kept herself stable enough for 3D scans of her brain and a look into what to do next. The CAT scans showed she has a cluster of abnormal vessels at the base of her brain that need to be dealt with. Right now we are taking it one small step at a time and are greatful that our sweet Holly is still here with us.
Sorry for not updating in so long. She is still taking her steps forward and backwards. We are just hoping her little heart keeps beating and keeps fighting. She had a great night and we are taking it one day at a time. I want to say thank you to everyone for everything
Just a mini update. She is still in the hospital but we are hoping we can bring her home next week. Nursing care and machines are in order and all we can do now is help her get better in a more calm and familiar place. She is doing good and does well sitting in her chair so baby steps all the way. I apologize for not updating but life got a bit hectic for a while in trying to sort out everything. Insurance is still making us jump through every loophole and denying every appeal but we will keep fighting.
We are out of the ICU!! We are still battling with insurance to have them cover her nursing care in order to bring her home. We are stuck in this limbo with insurance. She will qualify for a program that's called Money Follows the Person but can only apply for it after she is discharged from the hospital and it will take 3 months to get it. But she can't be discharged from the hospital because insurance won't cover for her nursing care. We are doing appeal after a ppeal and getting denied and if insurance keeps saying no to 24/7 nursing care at home that she desperately needs, she will have to go to a nursing care facility 1 1/2 hrs away. That would be our only choice and thankfully this fund can cover some but we are crossing our fingers that insurance can make a special consideration. She hasn't had a storming episode today and if she does, it only lasts about 10 seconds and she is looking around and focusing on tv and certain objects around the room. She is a different Holly today :)
A bit of a hiccup brought us back to ICU. Her heart rate was dropping and they wanted to monitor her more for a few days. She is doing great and making more sounds and crying. She is focusing more and now even watches tv for minutes at a time so that's good. I can honestly say that for the first time I am hopeful again. Thank you everyone for your continued prayers and support.