Hope for Holly
Holly is my vibrant 8 yr old daughter that suffered an aneurysm and then it caused a seizure. She had to have CPR preformed twice and there was minimal pulse for a few minutes. She was care flighted out to Children's hospital here in Dallas. When she got here, it was touch and go and her chances were unknown. She managed to pull through like the fighter she is. They did an emergency stent to drain fluid and reduce swelling in her brain. She was medically paralyzed and had a number of medications to help control her blood pressure. Her lungs and heart are weak and she has a breathing tube and will for a few days. After weaning her off certain medications were were able to see if she could respond. We didn't know if she was still in there but she is!! She has kept herself stable enough for 3D scans of her brain and a look into what to do next. The CAT scans showed she has a cluster of abnormal vessels at the base of her brain that need to be dealt with. Right now we are taking it one small step at a time and are greatful that our sweet Holly is still here with us.
On her bad days, we are reminded how far she has come and how strong she is fighting.
Holly just did a face!! I'm not sure if it was a yawn or just an expression but it is the first time I have seen a glimpse of real hope in a very long time. She did it twice and I even saw some teeth :) . Couldn't help but cry from joy. I don't know what this means but it has to mean something good. Thank you to everyone who has followed her journey and I will keep updating
Hollybell had her baclofen pump surgery done on yesterday. The hope is that when she is having any storming episodes, the constant baclofen will relax her muscles more and cause less pain. Surgery went well and she is recovering. We vmcan tell she is in some pain but it is to be expected after surgery. This is her last procedure done at the hospital and she is expected to come home in March. She still has a lot of recovery to do at home but we will get her back. I am so excited to be able to bring her home and restart our lives one baby step at a time. Thank you everyone for your constant prayers and support. I will continue to update as the days and weeks go by.