Hope for Holly
Holly is my vibrant 8 yr old daughter that suffered an aneurysm and then it caused a seizure. She had to have CPR preformed twice and there was minimal pulse for a few minutes. She was care flighted out to Children's hospital here in Dallas. When she got here, it was touch and go and her chances were unknown. She managed to pull through like the fighter she is. They did an emergency stent to drain fluid and reduce swelling in her brain. She was medically paralyzed and had a number of medications to help control her blood pressure. Her lungs and heart are weak and she has a breathing tube and will for a few days. After weaning her off certain medications were were able to see if she could respond. We didn't know if she was still in there but she is!! She has kept herself stable enough for 3D scans of her brain and a look into what to do next. The CAT scans showed she has a cluster of abnormal vessels at the base of her brain that need to be dealt with. Right now we are taking it one small step at a time and are greatful that our sweet Holly is still here with us.
I know this video looks a bit unnerving but we finally have eye movement. Before her eyes were just fixed on a spot but now I think those little brain signals are starting to wake up again. We are seeing signs of improvement and her oxygen levels aren't dropping as severe anymore in the past few weeks. I don't know if those stem cells had anything to do with it but I'm hopeful. After discussing with the Dr and our own observations, we are going to this final stem cell treament that all of you have given the chance to do. Thank you from the bottom of our hearts and here goes nothing. This is our last shot that we can afford and we want to say thank you to everybody. Much love.
Got this a few weeks ago :) we are getting movement
Just got a call while at work from my mom that Hollybell lift her head up during trach care! She has never done that and I'm hoping it's those stem cells working their magic! I'm so excited and I just had to let all you wonderful people know. One baby step at a time and of things keep going forward little by little we will be doing that second stem cell treatment. Thank you all from the bottom of our hearts
Holly update: seeing Holly everyday it can get hard to notice something changing. Got home yesterday after work and her nurse wanted to show me how much more flexible her arm is. We can extend it almost to normal ! I don't know if my eyes are tricking me but I thought she followed her tablet when we moved it! I had to turn it off to mess with her and the second it was off she started crying so it put it back on and she calmed down. Holly has learned a new trick too. I think she knows that if she makes the machine make noise, mom comes in to calm her down. Well now the machine will make noise and mom goes in and no joke within 5 mins of my mom just holding her hand Holly goes to sleep. Grandma has the magic touch. If she is starting to track, I'm gonna start making some mobiles or something to encourage her more. Baby steps little one baby steps... I got nothing but time for you