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Please Help my Mum get Life Saving Treatment

$43,385 of $100,000 goal

Raised by 383 people in 27 days
Created March 21, 2019
37829806_1553226682446450_r.jpegHi my name is Kara. I am 12yrs old.
I just received devastating news that my Mum's cancer is back. 4 years ago she had duodenal cancer and had a big surgery (Whipples) and was only months off being considered cured.
Her cancer has spread (metastasised) into the lymph nodes and it is a really, really rare & aggressive cancer. She also has a MTHFR genetic mutation which means she doesn't metabolise medications normally. She was told chemo is the only option for her in Australia but they don't have one that is specifically for her type of  cancer. They suggested giving her the chemo for stomach cancer but they don't know whether it will have any effect or not. They said her cancer is incurable but Mum has another option to go to Japan and have cell based immune therapy which has had amazing results and has cured many people who have been told they are incurable! They take out some of her NK (natural killer) cells and put them through a process that makes them reproduce super fast, then they put it back into Mum's body to help her own body fight the cancer.  They also have some other treatments they do at the same time to help it all work really well. But it is super expensive. My Mum is worth more than any amount of money in the world so I'm asking for your help to get her to Japan. I'm only 12 and need my Mum around for a long time!! I love drama and singing and I want my Mum to be able to see what I become when I grow up. My Mum is my piano and singing teacher so I need her for that too!! And so does my brother. He is a really talented soccer player and is working hard to become a professional. My Mum wants to be able to watch his career take off. 
We need her to get this treatment REALLY SOON (in the next few weeks) so her cancer doesn't spread any further.
So PLEASE, PLEASE give whatever you can to help my Mum get the treatment she needs to save her life and be able to kick this cancer in the butt again. I need my Mum xx
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Hi everyone, Paula here. I received an overview of my specialised genomic testing today and had a meeting with Grace Gawler to discuss the plan of action. I will also be seeing an oncologist on Monday who specialises in genomics for rare cancers like mine. In a nutshell, my genetics and genomics are very complex. I have many gene amplifications multiplying growth when it shouldn't, causing hyper progression. The results show that chemo, CAR T-Cell immunology or any drug based trials or treatments will not only be useless but could possibly feed the hyper progression causing the cancer to grow quicker and more aggressively than it is now. Another test result we are waiting on will tell us exactly what drugs I can have and which ones I can't - I metabolise drugs and food very differently.
So, the plan is to cut out & harvest the fastest growing node in my neck, freeze it at -80 degrees & send it to Japan where they will create a personalised vaccine using the DNA & antigens from the node. Then I need to go to Perth for Cyberknife radiotherapy where they will do targeted radiotherapy (with only 1mm zone around the targeted area) in the rest of my neck nodes and possibly the duodenal node which is the source. This is to reduce the size and amount of tumours in my body in preparation for me to go to Japan for cell based immunotherapy and the vacccine.
So the genomic testing has been invaluable. Life saving! As it has proven I can't have a standard treatment regime without disastrous effects.
But as brilliant as it all is, it comes at a big price. I initially estimated about $50,000 but I was told today that I'll need double that - $100,000!
Thank you, thank you, thank you to those who have helped in any way. Donations, emotional support, helping us move house a couple of days ago, delivering meals and every other bit of support we have received. We are forever grateful. And I need to keep going. I need to keep finding ways to fundraise! So please keep sharing and please let me know if you think there may be a big business who could be interested in helping out with a donation, fundraiser or promotion.
Thank you everyone for being absolutely incredible supporters. Lots of love, Paula
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Wow $31,000!! Amazing! Thank you so much. It is getting closer to the time for my Mum to go away for treatment so please donate and keep sharing so she can go and get better
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Thank you so much to everyone who has donated and sent beautiful messages. I have been replying but forgot to say that it was me responding! I really appreciate every bit of support. You are all amazing and making a massive difference. Big hugs to you all. Love Paula ❤️❤️❤️
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$43,385 of $100,000 goal

Raised by 383 people in 27 days
Created March 21, 2019
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