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Pia's Path to Walk

$89,684 of $125,000 goal

Raised by 373 people in 10 months

Pia is our 2 -year old daughter diagnosed with Cerebral Palsy.

Pia is in need of a life changing surgery, SDR, which will allow her to walk and live a life free of pain.

                                    Pia needs your help.
                        Thank you for reading her story.

www.piaspath.com


We know Pia's future is full of hope.
But we need your help to make that happen.


What We Need
We need your help to keep the way bright and hopeful for Pia’s Path to Walk.

We need your help to give her the chance to run around with her twin brother, Felix, hike with us as a family, climb stairs, ride a bike, splash in the rain puddles and bath tub, play with friends, pick up leaves in the fall.

We need your help to give her the independence and dignity she needs and deserves now and for her future, from moving, eating, dressing and going to the bathroom on her own.

All of those things you wish and dream for your own children, we wish for Pia.

We are willing to do whatever it takes to support Pia.
But we can't do it alone and we need your help.


Pia's Future
For Pia, the main battle is against her constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!

As time goes by, it will cause permanent deformities in Pia's bones and muscles that cannot be fixed.

This is why it is so important to reduce or eliminate the spasticity at an early age.


This brings us to today.
We are currently in the application process for SDR to be completed by Dr. T.S. Park at St. Louis Children’s Hospital in St, Louis, Missouri in the United States. We are hoping Pia will have SDR sometime during 2019.

What is SDR?
In 'simple' terms, SDR involves removing some bone from Pia’s spine to access her spinal cord.

Dr. Park then tests and cuts the dorsal nerves (50%-70%) that cause her spasticity, significantly reducing or permanently removing the constant tightening of her muscles.


What will your donation support right now?
The SDR surgery and the years of required physical therapy following. As we are not residents of the US, we are responsible for the costs and it is not covered by our insurance here in Germany.

After surgery, Pia will require physical therapy 5x/week for the first six months, 4x/week a week for the following six months and 2-4x/week for at least the following two years, based on her progress.


Based on information provided by St. Louis Children’s Hospital, the surgical costs, mandatory post-op therapy and rehab, flights, accommodations and required physical therapy and strength training for 2-years following the surgery, we need to raise $125,000 USD.


Our commitment to SDR and the required physical therapy following surgery means great changes
to our ability to work and earn income for the future.

                               Give Pia the Gift of Movement
                                     Support Pia's Path to Walk

If you would like to send an offline donation,please contact us at www.piaspath.com or info(at)piaspath.com and we can provide additional information.

Visit our website for additional information:
  www.piaspath.com
+ Read More
CARDS WITH A CAUSE FUNDRAISER PIA'S PATH
from Usborne Books & More!

(We're big fans of their great books in our house!)

Order now - just respond to this message with which box and how many - and pick up at the November 3rd fundraiser in St. Paul!

4 boxed sets, each with 30 full-sized greetings card with matching (every cool!) envelopes - only $1 per card in a very cool reusable box!

Box 1+ 2 : All Occasion Card Boxes - weddings, congratulations, thinking of you, blanks.....

Box 3: Thanks & Blanks Box

Box 4: Cards for Kids

Each box is $30, $1 per card and $13 (!) of each box sold goes right to Pia's Path!

SEE THE CARDS HERE:

Our thanks to Jaclyn Stevens for letting us know about this fundraiser and supporting Pia!
+ Read More
Both Pia and Felix are cutting molars since Saturday. Fevers, tired, irritable.

Today, Pia was so uncomfortable, we couldn't even get her in the shopping cart to sit. When she is sick, has a fever, uncomfortable, her spasticity is even worse, making the 'simple' stuff nearly impossible or impossible.

Her legs are so tight you can't get her to bend her legs to sit.

So, Papa and Felix did the grocery shopping and I sat with her in the car and rocked her to sleep, trying to loosen up her legs.

I pray for the day she this is all less for her. And for us.

Thanks for the support, always.

++I thought the pic was quite appropriate considering recent news..++
+ Read More
A lot of the 'normal' things we want Pia to learn need some adaptations.

We talk about this a lot lately - teaching responsibility, cleaning up toys, etc..... We are doing this with Felix and are then reminded, how will Pia learn this?

I could write pages on how we go about our 'normal' day with her, the adaptations we make and the questions we have (+ confusion)...

Here is just one example from yesterday. She helped me unload the dishwasher.

We know we can figure this out, but it takes much more thought, physical adaptations most often, which are not always easy or really possible.

Next on our list is to figure out how she can stand up and brush her teeth in front of our sink or 'a' sink.
+ Read More
We're busy collecting donations for our November 3rd Fundraiser in St. Paul, Minnesota

And we need your help!

Can you donate something yourself or reach out to family and friends who maybe able to donate?

Ideas:

Donate a gift basket! Kid-friendly, arts & crafts, gardening, baking, family night, beer lover's, wine lover's, spa, sports fan, date night, sleepover at Grandma's, Foodie, Housewarming, back to school, Thanksgiving, winter break basket, etc.

Donate gift cards! $25 suggested value. We can package them together with other items and increase the value of other donated items!

Do you have a skill or talent you can donate - cooking, music lessons, organizing, photography? What can you do and offer it to others?

Do you have access to a unique experience - back stage access, season tickets to the Wild, Twins, Vikings, box seats, tickets to theather, etc.?

Do you have frequent flyer miles (Delta) to donate? We would like to offer the Grand Prize again of Delta Travel Vouchers. We used our own mile balance in June and am looking for mile donations for the November event.

Other ideas? Let us know! We are open to all ideas to make the November 3rd Fundraiser for Pia's Path a success!

Easy to complete donation and sponsorship forms here:
https://www.piaspath.com/updates.html
+ Read More
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$89,684 of $125,000 goal

Raised by 373 people in 10 months
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TH
$50
Tobias Hechler
4 days ago
SS
$100
Stefan Steidele
7 days ago
$20
Anonymous
12 days ago
CT
$175
Claudine & Werner Teufel
12 days ago (Offline Donation)
RH
$20
Ron Halverson
16 days ago (Offline Donation)
RS
$200
Ravinder Salooja
22 days ago
SN
$50
Susanne Neuerer
24 days ago
$20
Anonymous
26 days ago
CL
$500
CP Support LLC
1 month ago
DL
$50
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1 month ago
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