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Pia's Path to Walk

$102,690 of $125,000 goal

Raised by 441 people in 14 months

Pia is our 2 -year old daughter diagnosed with Cerebral Palsy.

Pia is in need of a life changing surgery, SDR, which will allow her to walk and live a life free of pain.

                                    Pia needs your help.
                        Thank you for reading her story.

www.piaspath.com


We know Pia's future is full of hope.
But we need your help to make that happen.


What We Need
We need your help to keep the way bright and hopeful for Pia’s Path to Walk.

We need your help to give her the chance to run around with her twin brother, Felix, hike with us as a family, climb stairs, ride a bike, splash in the rain puddles and bath tub, play with friends, pick up leaves in the fall.

We need your help to give her the independence and dignity she needs and deserves now and for her future, from moving, eating, dressing and going to the bathroom on her own.

All of those things you wish and dream for your own children, we wish for Pia.

We are willing to do whatever it takes to support Pia.
But we can't do it alone and we need your help.


Pia's Future
For Pia, the main battle is against her constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!

As time goes by, it will cause permanent deformities in Pia's bones and muscles that cannot be fixed.

This is why it is so important to reduce or eliminate the spasticity at an early age.


This brings us to today.
We are currently in the application process for SDR to be completed by Dr. T.S. Park at St. Louis Children’s Hospital in St, Louis, Missouri in the United States. We are hoping Pia will have SDR sometime during 2019.

What is SDR?
In 'simple' terms, SDR involves removing some bone from Pia’s spine to access her spinal cord.

Dr. Park then tests and cuts the dorsal nerves (50%-70%) that cause her spasticity, significantly reducing or permanently removing the constant tightening of her muscles.


What will your donation support right now?
The SDR surgery and the years of required physical therapy following. As we are not residents of the US, we are responsible for the costs and it is not covered by our insurance here in Germany.

After surgery, Pia will require physical therapy 5x/week for the first six months, 4x/week a week for the following six months and 2-4x/week for at least the following two years, based on her progress.


Based on information provided by St. Louis Children’s Hospital, the surgical costs, mandatory post-op therapy and rehab, flights, accommodations and required physical therapy and strength training for 2-years following the surgery, we need to raise $125,000 USD.


Our commitment to SDR and the required physical therapy following surgery means great changes
to our ability to work and earn income for the future.

                               Give Pia the Gift of Movement
                                     Support Pia's Path to Walk

If you would like to send an offline donation,please contact us at www.piaspath.com or info(at)piaspath.com and we can provide additional information.

Visit our website for additional information:
  www.piaspath.com
+ Read More
'My belief is stronger than your doubt.'

Friday's meeting with Dr. Park gave us renewed energy and belief in Pia's potential.

It gave us renewed energy to meet other families, here in Germany, who have also trusted Dr. Park, trusted their gut after so many meetings with neurosurgeons who had other opinions here and still kept moving forward to provide the best future for their children.

To be reminded we are not alone allowed us for a sigh of relief, a quiet night's sleep and new energy for the week ahead.

Dr. Park sees so much potential in Pia, due to her young age, her ability to pull herself up, the slight voluntary movements in her feet, her cognitive ability and determination.

His prognosis included her walking with a walker, walking with canes and maybe, maybe walking independently. Pia's ability to voluntary move her feet up and down is a key indicator whether independent walking or canes.

She will continue to improve for this he is certain.

Pia will likely have PVR, during her SDR, to remove the scissoring she does when she walks. For right now, we will not do PERCS in combination with SDR; perhaps later if necessary.

We had the chance during her brief exam as well as the informal dinner to talk with Dr. Park, his wife as well as two PT's from SLCH, Deanna and Molly. Our questions were taken seriously, recommendations and suggestions made and our concerns comforted.

In August we will receive her November surgery day. Until then, we continue to get Pia ready, to get our life ready and continue to fundraise to meet our goal.

Thank you for the support and love, always.
+ Read More
Pia's worked really hard this week - a full week of conductive education.

She just got her first pair of AFO's and she's adjusting. They are not comfortable just yet and she lets us know it.

We ordered her own pink wheelchair on Friday (the green one is only on loan) - should be ready in about 1 month.

Of course a walk to the ice cream store in the afternoon and a visit to IKEA to find Banana Joe. We even visited our dear friend, David, also 3, who took a little bit longer too to learn to walk but signed to Pia that she will get there too, as he took her hand and wanted to walk with her, side by side. My heart melted.

And to stay in touch with Dad and Felix, we facetimed and made silly faces.

Ready to head home for a few days before we have next week of ABM. Pia keeps up with all of this travel and therapy and reminds me it is to help her walk with Dr. Park. Very proud of our Pia.
+ Read More
Wir haben tolle Nachrichten!

Wir haben für Pia eine Spendekonto bei Solidaria e.V. einrichten können!

Das heisst Pia's Path to Walk und Pia jetzt auch bei der Verein Solidaria offizell ist.

Durch Solidaria e.V. kann man für Spenden über 200 Euro eine steuerrelevante Bescheinigung bekommen. Notwendig muss die vollständige Adresse des Spenders bekannt sein.

Mehr Information gibt es hier:
https://www.solidaria-ev.de/diese-kinder-brauchen-hilfe/

Vielen Dank an Fr. Ida Hübner, Vorsitzende Solidaria e.V. und Solidaria!

Vielen Dank an Euch für Eure Unterstützung!

Jamie, Roland, Pia und Felix
+ Read More
March is CP Awareness Month!

Show your support, wear green and join us on March 25th for National CP Awareness Day!
+ Read More
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$102,690 of $125,000 goal

Raised by 441 people in 14 months
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PG
$100
Patti & Tom Goesch
5 days ago
AB
$200
Amber Boothby
5 days ago
$60
Anonymous
9 days ago
SW
$50
Sebastian Wogenstein
28 days ago
$25
Laurie Larsen
1 month ago
$60
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1 month ago
$75
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$100
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