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Pia's Path to Walk

$127,770 of $125,000 goal

Raised by 450 people in 16 months

Pia is our 2 -year old daughter diagnosed with Cerebral Palsy.

Pia is in need of a life changing surgery, SDR, which will allow her to walk and live a life free of pain.

                                    Pia needs your help.
                        Thank you for reading her story.

www.piaspath.com


We know Pia's future is full of hope.
But we need your help to make that happen.


What We Need
We need your help to keep the way bright and hopeful for Pia’s Path to Walk.

We need your help to give her the chance to run around with her twin brother, Felix, hike with us as a family, climb stairs, ride a bike, splash in the rain puddles and bath tub, play with friends, pick up leaves in the fall.

We need your help to give her the independence and dignity she needs and deserves now and for her future, from moving, eating, dressing and going to the bathroom on her own.

All of those things you wish and dream for your own children, we wish for Pia.

We are willing to do whatever it takes to support Pia.
But we can't do it alone and we need your help.


Pia's Future
For Pia, the main battle is against her constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!

As time goes by, it will cause permanent deformities in Pia's bones and muscles that cannot be fixed.

This is why it is so important to reduce or eliminate the spasticity at an early age.


This brings us to today.
We are currently in the application process for SDR to be completed by Dr. T.S. Park at St. Louis Children’s Hospital in St, Louis, Missouri in the United States. We are hoping Pia will have SDR sometime during 2019.

What is SDR?
In 'simple' terms, SDR involves removing some bone from Pia’s spine to access her spinal cord.

Dr. Park then tests and cuts the dorsal nerves (50%-70%) that cause her spasticity, significantly reducing or permanently removing the constant tightening of her muscles.


What will your donation support right now?
The SDR surgery and the years of required physical therapy following. As we are not residents of the US, we are responsible for the costs and it is not covered by our insurance here in Germany.

After surgery, Pia will require physical therapy 5x/week for the first six months, 4x/week a week for the following six months and 2-4x/week for at least the following two years, based on her progress.


Based on information provided by St. Louis Children’s Hospital, the surgical costs, mandatory post-op therapy and rehab, flights, accommodations and required physical therapy and strength training for 2-years following the surgery, we need to raise $125,000 USD.


Our commitment to SDR and the required physical therapy following surgery means great changes
to our ability to work and earn income for the future.

                               Give Pia the Gift of Movement
                                     Support Pia's Path to Walk

If you would like to send an offline donation,please contact us at www.piaspath.com or info(at)piaspath.com and we can provide additional information.

Visit our website for additional information:
  www.piaspath.com
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More updates with pics and videos!
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We‘ve been busy the last few weeks.

Therapy. At home and in Überlingen. (watch Pia crawl!)
New wheelchair.
Felix glasses and ENT surgery in the hospital.
Finishing the move of our office to the lower level.
Turning the old office into a therapy room.
Turning baby beds into big kids beds.

The arrival of summer and EIS/ Ice Cream!

More pictures and videos to come!
+ Read More
We are excited to let you know we have met our original fundraising goal of $125,000. Thank you!

450+ donors in 14 months.

We had no idea what was going to happen as we started this process on February 14, 2018. We are still in awe of the generosity and support we have received.

A generous donor, who wishes to remain anyomous, has been following Pia's story. He wanted to see us reach our goal and as such, donated the remaining funds necessary to meet our original goal.

This means we can fully focus on preparing Pia for November as well as getting our family organized and working through our long list's of to do's.

Reaching our original goal gives us a big sigh of relief, knowing we will be able to focus on Pia and our family.

What's next for Pia's Path?

We will keep the GoFundMe page active and will continue to accept donations, should friends and family, strangers wish to continue to support Pia.

We will continue to use the GoFundMe page as a way to keep in touch with all of you and update you on Pia's surgery and progress.

We have a few local events planned for Pia here in Gärtringen between this spring and early fall.

What will future donations support?

Additional donations received above and beyond our original fundraising goal will be used for the following:
- 3-weeks of additional physical therapy in St. Louis post-OP
- Purchase of a Galileo vibration plate to provide for at-home use
- Participation in a second week of SwimLab therapy in 2020
- Future intensive therapy sessions in St.Louis and/or the Napa Center in Boston, MA
- ABM therapy in Überlingen, Germany (currently only partially covered by our insurance)
- Pia‘s on-going therapy needs, equipment and OP‘s for the unknown future not covered by insurance
+ Read More
Our definition of hard work seems to change everyday.

Especially when we see Pia doing this.

Every step LITERALLY counts. She is working her butt off.

Pia asks when we will go back to see Andrea and Petö. This is such hard work and she keeps showing up, keeps pushing through.

And what does Pia want? She wants to be sure we bring Banana Joe with (the monkey that hangs on her walker) and she would like to have apples, bologna and little cheezy bunny crackers. Deal, Pia!
+ Read More
Read a Previous Update

$127,770 of $125,000 goal

Raised by 450 people in 16 months
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JS
$100
Julie & Stan
7 days ago (Offline Donation)
LK
$100
Leroy & Kay
7 days ago (Offline Donation)
TF
$2,000
The Schuette Family
7 days ago (Offline Donation)
$22,475
Anonymous
1 month ago (Offline Donation)
TS
$100
Tracy Shaw
1 month ago
FC
$200
Frank and Sharon Chapman
1 month ago (Offline Donation)
VC
$25
Vanessa Cisz
1 month ago
LW
$30
Linus W
1 month ago
$50
Anonymous
1 month ago
PG
$100
Patti & Tom Goesch
1 month ago
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