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Pia's Path to Walk

$100,811 of $125,000 goal

Raised by 427 people in 12 months

Pia is our 2 -year old daughter diagnosed with Cerebral Palsy.

Pia is in need of a life changing surgery, SDR, which will allow her to walk and live a life free of pain.

                                    Pia needs your help.
                        Thank you for reading her story.

www.piaspath.com


We know Pia's future is full of hope.
But we need your help to make that happen.


What We Need
We need your help to keep the way bright and hopeful for Pia’s Path to Walk.

We need your help to give her the chance to run around with her twin brother, Felix, hike with us as a family, climb stairs, ride a bike, splash in the rain puddles and bath tub, play with friends, pick up leaves in the fall.

We need your help to give her the independence and dignity she needs and deserves now and for her future, from moving, eating, dressing and going to the bathroom on her own.

All of those things you wish and dream for your own children, we wish for Pia.

We are willing to do whatever it takes to support Pia.
But we can't do it alone and we need your help.


Pia's Future
For Pia, the main battle is against her constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!

As time goes by, it will cause permanent deformities in Pia's bones and muscles that cannot be fixed.

This is why it is so important to reduce or eliminate the spasticity at an early age.


This brings us to today.
We are currently in the application process for SDR to be completed by Dr. T.S. Park at St. Louis Children’s Hospital in St, Louis, Missouri in the United States. We are hoping Pia will have SDR sometime during 2019.

What is SDR?
In 'simple' terms, SDR involves removing some bone from Pia’s spine to access her spinal cord.

Dr. Park then tests and cuts the dorsal nerves (50%-70%) that cause her spasticity, significantly reducing or permanently removing the constant tightening of her muscles.


What will your donation support right now?
The SDR surgery and the years of required physical therapy following. As we are not residents of the US, we are responsible for the costs and it is not covered by our insurance here in Germany.

After surgery, Pia will require physical therapy 5x/week for the first six months, 4x/week a week for the following six months and 2-4x/week for at least the following two years, based on her progress.


Based on information provided by St. Louis Children’s Hospital, the surgical costs, mandatory post-op therapy and rehab, flights, accommodations and required physical therapy and strength training for 2-years following the surgery, we need to raise $125,000 USD.


Our commitment to SDR and the required physical therapy following surgery means great changes
to our ability to work and earn income for the future.

                               Give Pia the Gift of Movement
                                     Support Pia's Path to Walk

If you would like to send an offline donation,please contact us at www.piaspath.com or info(at)piaspath.com and we can provide additional information.

Visit our website for additional information:
  www.piaspath.com
+ Read More
More new 'toys' for Pia.

We've tried what feels like 10 different types of walkers for Pia... really it has only been 5.....

Yesterday, we **think** we may have found one which will work for her.

It will take a lot of practice and help from adults until she gets used to using it and using it correctly, but it felt right so far. We now have a mini-Pacer walker on loan here at home...

And we got fitted for new magic shoes..

Her first pair of AFO's are being made. (AFO's stands for ankle-foot orthosis).

And reminder.... bring that folding chair with you if you visit us and be ready for an obstacle course in our living room.

And.. for those of you Cronin's reading this post....WOW! Do you think Pia's is really my daughter?!?!?!
+ Read More
In case you missed it, SWR Landesschau produced and aired Pia's story on Monday.

Reporter Carmen Lustig and her team did an amazing job in capturing our hope, our trust in Pia and the range of emotions we have as a family.

We have been overwhelmed with the outpouring of support and donations since Monday.. and are trying to keep up.

Have a look here and share with others.

Even if you don't understand German, we're certain the video will move you.

Our thanks, always!
+ Read More
Here is Pia's trial Mio wheelchair. She's doing great so far, rolling backwards and forth, as it always is when learning something new! We often need to remind her to use her right hand, otherwise she will just go around in circles.

We have had some great help too. Felix loves pushing 'his Pia' in her Mio.
+ Read More
We are close to meeting our goal. But we're not there quite yet. We still need your help.

This is the year.

The year she will feel what it is like to not have spasticity.

The year she will get to know her new legs.

This year.

This November.

Share Pia's Path with others and give what you can.

Thank you.
+ Read More
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$100,811 of $125,000 goal

Raised by 427 people in 12 months
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