Ianessa's Proton Therapy Fund
Donation protected
Ianessa's journey all started in May of 2016 when she was sent home from school as she was sick. After a few days of being off school and still no improvement my mum decided to take her to the local doctors. It was their that she was diagnosed with a Viral Infection or so the doctor thought. Again after no improvement we phoned Dalriada Urgent Care who made the decision to take her to Antrim Area Hospital. Again the doctor said he thought she has a Viral Infection and discharged her at 4am in the morning. The next morning at around 11.30am I received a phone call from my other sister screaming that Ianessa won't wake up and is shaking. I run round from my house to find Ianessa taking multiple seizures in my Mums room. The Ambulance Service was already on their way. I had to carry Ianessa in my arms from my mums room, to the ambulance outside. She was rushed back to Antrim Area Hospital.
After being rushed to the hospital we where there a short while before 3 doctors took my Mum, Ben and myself into a wee side room and told us that they found a large mass in Ianessa's brain and that they had to induce her into a coma to take the pressure off her brain! I remember looking at my mum and I remember the look on her face. I'd never seen that look before. The doctors told us as a family to prepare ourselves for the worst. They urged us all to go in and see her before she was transported to the RVHSC.
I remember seeing her lying their in a hospital bed with breathing tubes down her throat and her eyes taped shut.
Ianessa was then rushed to RVHSC by Ambulance. By the time we got their she was already in theatre getting drains and a shunt put in. All this needed done urgently. The doctors worked hard to save her life. She spent the next few weeks in hospital. She got diagnosed with Craniopharyngioma, a benign brain tumour. We where relieved to hear that it was benign.
It was then Ianessa's journey begin and at only 7 years old she had a lot too take in. She was no longer able to do the normal things a child her age could do. So about 1 month after her official diagnosis she was back home. Things where looking good. The surgery was a success. Then our granny got sick and went into hospital for a short while and then passed away from Cancer on the 15th September 2016. Our family was devasted. Nanny lived next door to Ianessa and Mum so Ianessa was always in with her. Life just got more difficult. Just 8 months after Ianessa's Nanny died, her Mummy passed away. On the 21st of May 2017 God took our Mum home and it's been one thing after another. Ianessa is now in my care. I'm her brother. Just 4 months after Mum died we found out Ianessa's Brain Tumour was growing and again she needed emergency surgery. They needed to remove the growth and do a biopsy on it. The risks of this surgery alone was massive. The surgery took place Monday the 9th October at just after 9am. And lasted over 6 hours.
The surgery was successful with none of the side effects we where worried about. We where lucky, although on the 1st of December 2017 we where told by the Oncologist that our little princess has Cancer, we are now working with a Charity Called CLICSargent which is Children Vs Cancer. And a referral for Hope House was made too.
The reason for the GoFundMe page is because Ianessa has been accepted to attend. Jacksonville, Florida Proton Institute at the start of January 2018. I just received the phonecall on Friday 8th December. The doctors have made me aware that Ianessa will be away for a minimum of 8 weeks. This is Ianessa's chance, she deserves this opportunity. This Proton Therapy has to potential to remove Ianessa's Tumour completely. That is our hopes.
Ianessa has had extensive surgeries to save her life and has spent numerous occasions in hospital. She is a bright child with a lot too live for. She's lost so much this past year and she deserves the chance of a better life.
Thank you for taking the time too read this. If you could share it for me too I would really appreciate it. All of Ianessa's Journey will be updated regularly. Xo
After being rushed to the hospital we where there a short while before 3 doctors took my Mum, Ben and myself into a wee side room and told us that they found a large mass in Ianessa's brain and that they had to induce her into a coma to take the pressure off her brain! I remember looking at my mum and I remember the look on her face. I'd never seen that look before. The doctors told us as a family to prepare ourselves for the worst. They urged us all to go in and see her before she was transported to the RVHSC.
I remember seeing her lying their in a hospital bed with breathing tubes down her throat and her eyes taped shut.
Ianessa was then rushed to RVHSC by Ambulance. By the time we got their she was already in theatre getting drains and a shunt put in. All this needed done urgently. The doctors worked hard to save her life. She spent the next few weeks in hospital. She got diagnosed with Craniopharyngioma, a benign brain tumour. We where relieved to hear that it was benign.
It was then Ianessa's journey begin and at only 7 years old she had a lot too take in. She was no longer able to do the normal things a child her age could do. So about 1 month after her official diagnosis she was back home. Things where looking good. The surgery was a success. Then our granny got sick and went into hospital for a short while and then passed away from Cancer on the 15th September 2016. Our family was devasted. Nanny lived next door to Ianessa and Mum so Ianessa was always in with her. Life just got more difficult. Just 8 months after Ianessa's Nanny died, her Mummy passed away. On the 21st of May 2017 God took our Mum home and it's been one thing after another. Ianessa is now in my care. I'm her brother. Just 4 months after Mum died we found out Ianessa's Brain Tumour was growing and again she needed emergency surgery. They needed to remove the growth and do a biopsy on it. The risks of this surgery alone was massive. The surgery took place Monday the 9th October at just after 9am. And lasted over 6 hours.
The surgery was successful with none of the side effects we where worried about. We where lucky, although on the 1st of December 2017 we where told by the Oncologist that our little princess has Cancer, we are now working with a Charity Called CLICSargent which is Children Vs Cancer. And a referral for Hope House was made too.
The reason for the GoFundMe page is because Ianessa has been accepted to attend. Jacksonville, Florida Proton Institute at the start of January 2018. I just received the phonecall on Friday 8th December. The doctors have made me aware that Ianessa will be away for a minimum of 8 weeks. This is Ianessa's chance, she deserves this opportunity. This Proton Therapy has to potential to remove Ianessa's Tumour completely. That is our hopes.
Ianessa has had extensive surgeries to save her life and has spent numerous occasions in hospital. She is a bright child with a lot too live for. She's lost so much this past year and she deserves the chance of a better life.
Thank you for taking the time too read this. If you could share it for me too I would really appreciate it. All of Ianessa's Journey will be updated regularly. Xo
Organizer
Steven Connor
Organizer
