Help Peyton Beat Cancer
I finally have the plan for New York and this mommy is having a very hard time!! Peyton and I will leave on May 14th, Mother's Day of course, to go back up to New York. He will have a bone marrow biopsy and scans that week. Starting the week of May 22nd he will start a different type of antibody for 3 days and then get to return home that weekend. He will have 3 weeks at home and then we will return for the last cycle of that antibody. At that point he will have more scans and if everything looks okay he will start the vaccine trial. I know this is very confusing, trust me my head is spinning and my heart is aching. I do know this is Peyton's best hope in beating this stupid cancer that has totally changed and disrupted our lives. Peyton is so very tired of treatment, needles, medicine, scans, missing school, and never knowing what is next. My prayer... my hope... is that over the next year doing the antibody and vaccine trial he will be cancer free and be a survivor. When we first found out about him having this cancer we were told that the chances were so little and that he might not survive. In just over 2 years that has completely changed and now we are hearing that he is so close to being free of this. I can't begin to express my gratitude to all of you. You all have been by our side through the good and the bad and have always been willing to do anything to help. That means the world to me. I have the most amazing friends, the most amazing loved ones in my life, and because of that I know we can get through this. My heart hurts because I don't want to pack up again and make Peyton go through more but I know, as his mom, this is what we need to do. Okay sorry for the long emotional post, I just want you all to know we love you and thank you for everything. I will continue to update and let you know how he is doing. Please pray for my sweet girls too because this is just as hard on them. We got this!! Go Team Peyton!!!!
I serve a Mighty God! Praise His Holy name.
Haircut for my little stud, blood work, levels checked, and talked to his doctor... Liver levels are down!! He will have them rechecked next week but as it looks right now he will be able to start antibody in New York on June 12th!! Later on he will more than likely have a liver biopsy to see what is going on with it but right now on to the next treatment so he can continue to kick cancers BUTT!! Lots of great news the past couple of weeks and I honestly don't know how to process it all. I'm just happy and relieved but unfortunately scared all at the same time. Thank you everyone for praying and hoping for levels to go down!! He will finish 1st grade next week, go to New York, and get to enjoy the summer as much as possible at home!! Go Team Peyton!!
Ready for this... BONE MARROW IS CLEAR!! Kicking Cancer's Butt to the curb, yes!! South Carolina here we come!!
Peyton did great with all his scans and bone marrow. He is sore but still had a great evening. The MRI and PET scan both show that the leg tumor is still there but is stable... no growth. Also no other tumors are seen at this time so that's wonderful!! Bone Marrow results will not be back until late Friday. His doctor is concerned about his liver enzymes though. Normal levels should be below around 130 and Peyton's are over 200. They believe this is due to all the chemo, radiation, and other numerous treatments his body has gone through over the past 2 years. His body is unfortunately fighting back and making certain levels much higher than they should be. With his levels being so high there is no way they can start the antibody treatment. It could cause serious harm to his body and make his liver worse. We are coming home Friday and will get his levels rechecked next week at home. If they remain high he will have to stop treatments for awhile which could cause the neuroblastoma cells to grow. We are praying and hoping the levels we go down so he can come back to New York on June 11th to start the first of two antibody cycles he will need to do. I am so blessed that we got good scan results but of course worried about this. Please pray that they go down so he can do this next step in his treatment. It's so important and necessary to make this all go away. He rocked this week and I'm just so proud of him. Thank you all so very much for your many prayers, messages, phone calls, texts, and donations!! We love you all so much!! Go Team Peyton!!