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Our Little Jedi Connor

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Here's our sweet little Jedi with R2-D2!
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On June 3rd, our precious 10 year old grandson, Connor Nemes, suddenly suffered a stroke. It was later discovered to be caused by a previously unknown congenital vein malformation in his brain. A vein ruptured requiring immediate surgery.

Almost three weeks later, it appeared Connor was winning his battle. He was able to communicate via hand gestures, and we were filled with hope.

But,  as his doctors tried to remove him from his respirator and wean him off his meds, he began having a dangerously rapid heartbeat, and quickly developed pneumonia.

He was Medi-vac'd to Children's Hospital of Philadelphia, where a team of doctors and nurses worked round-the-clock to stabilize him. They learned that the cause of the pneumonia was a staph infection. In the process, his little body was deprived of oxygen and he suffered multiple organ failure.

On Tuesday, June 26th, our sweet little Jedi lost his battle. His father and mother selflessly had his organs donated so that others may live. He passed away surrounded by his father, mother, step-mother, four sisters, grandparents, aunts, and uncles.

Although insurance will cover a percentage of the medical bills, his family is left with the remainder. The extraordinary measures two hospitals undertook, as well as a Medi-vac helicopter transfer has put enormous financial pressure on my son and his wife, both of whom have missed weeks of work to be by Connor's side as much as possible.

Extended family is doing what we can, but it isn't enough. With a humble and grateful heart, I ask you to please consider donating any amount you can to help this wonderful young family.

Connor leaves behind his beautiful sisters that you see in the photo in update 2 - (left to right) Dahlia (age 9), Violet (age 3), Brianna (age 15) and Daisy (age 7).

The girls, Connor's parents, and I thank you from the bottom of our hearts.
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Donations 

  • James Surina
    • $50 
    • 6 yrs
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Organizer and beneficiary

Audrey Nemes
Organizer
Hamburg, PA
Laura Nemes
Beneficiary

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