Help Rhiannon Willow beat Lyme

£1,160 of £25,000 goal

Raised by 39 people in 41 months

My daughter Rhiannon Willow is 23.
 
Willow has been extremely ill with Lyme disease for the last 5 years but has had Chronic Lyme in her system for 19.
She struggles to walk, often using a wheelchair or a stick, the disks in her back have degenerated, she suffers with severe migraines and Ataxia, her joints dislocate,  she has neurological problems and suffers extreme pain and crushing fatigue all day, every day. Her immune system is very low. She also has many other problems which have been caused by this disease.

With no help from the NHS - Medical bills are adding   up. 
We are pushing to raise money so Willow can pay for further treatment which will give her the chance of a life...
This will most likely include Stem Cell therapy in Germany.

Please donate if you can, no matter the amount, we are very grateful. Thank you.


Newspaper interview with Rhiannon Willow in the Evening Standard.
                             

                            -Rhiannon Willows story-


-When just four years old, Rhiannon was bitten by a tick, and tested for Lyme. We were told her tests were negative and sent away.

-Rhiannon "seemed" a healthy child growing up, always outside, taking part in cycling, hiking archery and other passions.  But we later realised that she was dealing with bad back pain and other symptoms on a daily baisis from the age of 4, as she had grown up with them, she thought that it was perfectly normal and never mentioned it.

-At 18 she became very ill with multiple symptoms and was misdiagnosed with ME/Chronic Fatigue Syndrome and again given no help from the NHS, leading to futher and further deterioration of health.

-She was left to get sicker and sicker for a further 2 years. Every time we tried to get help from the GP she was sent away. She has been in severe pain constantly during that time  every day since.

-October 2014 we were forced to look into other possiblities to my daughters deteriorating health,  we conducted private blood tests which confirmed she has had Lyme disease all along.
When we got her records from the GP, we found that her initial test at 4 years was actually positive.

Despite this, Rhiannon continued studying her university degree, mainly from her bed, and has now graduated with a 2:1


As her mother, I am so proud of how she has dealt with her illness.
But what Rhiannon needs is treatment to help her to get well again. Please give her the chance to have a life, as she should have been able to do in the first place.
With sufficient funding, we can give Rhiannon the opportunity to be well again. Please help this to happen.





The testing, diagnosis, treatment and care for Lyme disease patients in the UK is appalling and the only real opportunity of regaining full health is to access private doctors and treatment, which can be very expensive.
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Just an update about Rhiannon, who was placed on a different protocol after the discovery that the Lyme has affected her heart. The treatment has not gone well and we were told yesterday that the Lyme disease is spreading further. She needs a course of intravenous antibiotics, which, of course is expensive. She needs this now and although she is being very brave, this further setback, after her recent unpleasant treatment, has been a shock to her and her family. If you can help in any way, we would be forever grateful and we would like to thank you all so much - both to those that have already contributed and also to anyone who can help us now xx
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Just an update on Rhiannon. The doctors have now discovered that her Lyme disease had affected her heart. They are trying to treat her for this, but the trip to the US is now all the more urgent. We need to get this under control. She remains in good spirits and as usual, is being brave. Any help will be greatly appreciated. Thank you.
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We wanted to say a big thank you again to Rhiannon's contributors and to update you with what is happening. Rhiannon has managed to submit all her final university work, which was no easy task for her. She will also have some of her images hanging alongside her fellow students at the end of degree exhibition, which is a great achievement. She will now be able to rest for a while, and we will continue fundraising for her, so that she can travel to the US for treatment as soon as possible. Thank you again
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Rhi is currently working hard to finish her final university year. She cannot work for long at a time due to pain and fatigue - and because of neurological symptoms, she finds it difficult to process information.
Nevertheless, she has refused to give up and is nearly there. Keep going Rhi, we are behind you.
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Read a Previous Update
Maude Muto
11 months ago

Hello Willow. I’m so sorry you’re struggling. Wish I could help you financially but I too am having a hard time paying bills for several tick borne diseases . Feel free to message me if you want to chat

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£1,160 of £25,000 goal

Raised by 39 people in 41 months
Created April 21, 2015
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8 months ago
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11 months ago
£100
Anonymous
11 months ago
£10
Jason Pearson
34 months ago

xx

Maude Muto
11 months ago

Hello Willow. I’m so sorry you’re struggling. Wish I could help you financially but I too am having a hard time paying bills for several tick borne diseases . Feel free to message me if you want to chat

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