Helping Crue Get Wheels!
Today we got some very frustrating news...You see that cutie up there, That is little Crue Allred. Joe and Aubrey Allred along with big brother Easton have been in the process of trying to get him a wheelchair for months now. They received a phone call from the insurance company today and they have denied his claim AGAIN. Aubrey was told that it is not justifiable nor a necessity right now…WHAT??? For those of you who don't Crüe, Crüe was born with Spina Bifida and is paralyzed from the waist down. We were told he's to young for a chair, and to stick him in a stroller. I ask those of you with small children under the age of 5 to imagine being told that your child must be confined to a stroller and may not "walk" or have any kind of independence until the age of 5. How would you feel about that? Yes Crüeis only 2 but his mobility shouldn't be determined by a doctor, that works for the insurance company, who has never met him. Crüe is such an amazing and determined little boy and is capable of a lot more then they think. I don't know where he would be without his little zipzac chair. That chair has given him his own independence and the ability to explore and learn on his own. He's been using that chair for almost 2 years now (no thanks to the insurance). I just wish that insurance companies would understand that if they gave young disabled children the chance to have mobility at a young age, the difference they'd be making in their lives. An able child learns to walk at the age of one so why is it not okay for a young disabled child to learn to use a chair at the age of two? I know there are families dealing with things far worse than not being able to get a wheelchair but I just needed to vent. If there is anyone out there dealing with these issues please know you're not alone! Thanks for hearing my frustrations. Also the mobile stander he is in, in the photo above is a loaner from his PT (because insurance won't cover that either).
Posted by Chanda Steggell
Hey, there! My son, who also has a GOFUNDME page was diagnosed with Epilepsy when he was 8 days old. In OCtober of 2014 right before his 3rd birthday, he had to have emergency brain surgeries to stop his seizures that were killing him. Miraculously, he is doing well and slowly recovering. Why im commenting is because we were denied Medicaid renewal because we made too much even though one of his meds was 1200 a month and that s not even including dr visits and tests. We also have gone through all the programs and have been denied assistance even though his disabilities meet the requirements. I truly feel the despair that this family has gone through and is going through. I wanted to say I am so happy that this little boy is getting his wheelchair and that his family is able to use the extra funds towards medical bills which is very stressful to deal with. I pray that you keep getting help! God bless you and God bless everyone that helped it gives me hope that we too may get help! Best of luck on your journey little man!
Wow I hope fundraiser starts to become more known this website is something amazing for those in need thank god for people with big hearts.
I am a Shriner. The N. California hospital is one of a 22 hospital system which has some of the world's finest spinal surgeons. Spina Bifida is something we treat every day. There is no cost to the patient or the child's parent. Once a patient, Crue can receive treatment - including on-going rehabilitation and therapy - to include helping him adapt to wheelchairs or other mobility devices. Family involved in this effort, please contact our Shriners Hospital for Children N. California - (916) 453-2000. Please let us know the results of your contact. Thank you, Bob
This is absolutely horrible that insurance companies are still doing this, in this day and age. Good for you for fighting Anthem. They need education. Hopefully your flight will help pave the way for someone else. You should get the best possible about chair for your son. Early access to age appropriate activities is crucial for him.
St.Jude's children research hospital doesn't charge children Danny Thomas's hospital and Shriners hospital, please call them.
you need to submit a complaint to the California Department of Managed Care in Sacramento. Link below, they want to know about stuff like this, they will help you, trust me. Been there, done that~
Maybe the medical/insurance community does not have the funds to hand over a wheelchair
Medicaid denied a new wheelchair for my daughter several years ago. They said she can only get a new wheelchair after 5 years. Apparently kids with disabilities don't grow? Very discouraging. We live in an awesome community that pulled together and put on an amazing fundraiser, so she was still able to get a new chair. I'm so happy to hear you will have the funds to get a wheelchair for Crue!!
I am 15 year old and my insurance denied my new valve for my heart 3 times and then the doctors finally met with insurance company. I heard they deny at least 3 times. Don't give up. I got my surgery in December!
hi Aubrey. i have a 15 year old son who no longer needs his wheelchair and i have been hoping to donate it to someone. it is small sized for a child between 3-7 years old and in great condition. if you want it please email me @firstname.lastname@example.org
Please tell me the name of the evil insurance co so I can make sure none of my $$ goes to them...
I have a sister that has the same condition she is now in her 30's...... I know how hard it is to get them the help they need just to live semi normal everyday lives like we can. I will keep you in my prayers. No matter what keep him as active as possible never let him give up . Keep things positive for him. When they go through the teenage years it can be a rough road if they start to feel sorry for them selves. Best of wishes.
Hello Dear Family, After reading this article these issues really fire me up. I am a Healthcare Consultant that specializes in helping people like yourselves fight the insurance companies for patients. I have been in the industry for over 14 years providing help of this kind. I am an expert in managed care and I know I can help you. If you have any questions on how to further this issue and want to fight the decision by your insurance company let me know.
My son is 3 yrs old and we just purchased a little JayZip wheelchair by Tilite. If you are able to raise the money you can purchase it without any insurance. Our wheelchair was $4800, and we are in Montana. As a side note we built my son an adapted power wheels car. His is a Tow Mater from Cars. He has been driving it since he was 9 months old. He too cannot use his legs. The total cost of that car was about $200. If you check out GoBabyGo, here is a link to their site http://www.udel.edu/gobabygo/ . They also have a video on youtube about how to make one of these cars. Best of luck to you and your family.
I really feel for you folks and it hurts me how they treat a young kid. I wished I could help but I face the same thing and I'm 65 years old. I get my social security is all even no medicare because i live out side the us in the Philippines, I had spinal damage for years and about the last 5 have been confined to a wheelchair, Luckily i saw it coming and got prepared to live in a cheaper country, If I was in the US I would be living out of a shopping cart with the little SS i get, I am also a Vietnam Veteran the government can give billions away and not take care of their own, the insurance companies are the same
I am 38 years old now I too was born with spinal bifida a rare form on my brain not spinal cord i have a brain injury due to it!! your son can and will find things he excells at above everyone else and my mom always instilled that in me! I myself bicycle 80 miles every single day to try to show others like me you can do anything in this life reguarless of your disablity I have been on this mission since age11 years old through exercise! Your never to young to help and motivate others! God bless your son he's lucky to have such great parents he will be successful in this life for sure and will help others through his strength and zest for life
Thank you, Sean Feijo, I have passed on the information to the Allred Family. So many generous offers have came in, and I know they are overwhelmed with gratitude and appreciation. I am not sure if they have made arrangements to receive a chair that has been offered to them already but I am so happy to see so many people want to support and help Crue!
For other families who are going through the same thing, or those looking for a charity to back. Check out the Darrell Gwynn Foundation. They provide chairs to families in the same situation facing the Allred family. I work on an annual event with them and NASCAR driver Joey Coulter which raised over $20,000 towards chairs last year and we hope to do $50,000 this year. It's just another resource for people to check out! I'm so glad this great family and little boy will have his mobility back!
Please look up Team Franky or Tiffany Fusco on Facebook. Unforntunately her son passed away with brain cancer, and she would like to donate you her son's wheel chair!