Support Kirsten's Lung cure
Doação protegida
Hi my name is Anthea and I've known Kirsten for well over 20 years and have been close friends ever since . Kirsten and her family are in really financial difficulties due to her suffering an incurable chronic illness and massive mounting medical bills. Her, her three children and her husband could really use some much needed help.
Kirsten was diagnosed with a rare bacteria disease in her lungs called NTM non tuberculosis mycobacterium or NTM MAC for short this is on top of the previous years diagnosis of late onset CF related bronchieactisis which has damaged almost all her lungs. Since she contracted this noncurable bacteria called NTM from drinking the water or showering the with the water to her home it's been devastating for her and her family. As she battles on with no help and weekly hospital visits and daily treatment along with the terrible effects of the NTM itself.
There are daily medications which are high toxicity and not PBS and these are upto 20 tablets a day and this treatment must go on for over 18 months, they also make her very sick the cost of this treatment is thousands per month which some she pays and majority the hospital wear the costs for at this stage, as she is the only patient at GCUH with this rare infectious disease. These drugs require weekly blood tests, eye tests, ECGs, Kidney and Liver tests. She is also required to have daily physio to clear her lungs. Her eyes already deteriorated early from one medication and this was deemed too dangerous to continue so a new one was added which effects the heart also. She must remain on three different treatment medications at least to try and contain the NTM this is the minimum as the bacteria will not be controlled on just one, it's extremely strong and difficult to treat. The worst part is during the first stage her rightmiddle lobe in her lungs collapsed and remains collapsed, this happened when an abscess formed near her heart, and with an arterial hemhorrge. This collapsed lobe was found to also contain two large clear solid glass nodules of 9mm each. Unfortunately now she will lose most of her right lung and possibly lymph nodes as the bacteria grows and becomes resistant, this surgery is very difficult and is happening in under two weeks time. Kirsten will be in ICU for a day at least and then hospital respiratory ward for two weeks minimum and this is no complications arise during surgery and her lungs don't collapse completely or her lungs have problems after . She will rely on an NTM foundation member to help her recover and during hospital, but she still needs to get kids to school and the many other life daily chores. We are raising funds to help with her recovery which will be long once she returns home from hospital and painful and also to help with the care of her three children during this time. I know every little bit will help and will be very appreciated and will go towards medical bills and physio after as whilst surgery is paid by hospital there are many many more costs her family has , there is no income coming in during these weeks she is in hospital and after. As the specialist is also uncertain what else may be found during operation and if results from biopsies are malignant.
Kirsten was diagnosed with a rare bacteria disease in her lungs called NTM non tuberculosis mycobacterium or NTM MAC for short this is on top of the previous years diagnosis of late onset CF related bronchieactisis which has damaged almost all her lungs. Since she contracted this noncurable bacteria called NTM from drinking the water or showering the with the water to her home it's been devastating for her and her family. As she battles on with no help and weekly hospital visits and daily treatment along with the terrible effects of the NTM itself.
There are daily medications which are high toxicity and not PBS and these are upto 20 tablets a day and this treatment must go on for over 18 months, they also make her very sick the cost of this treatment is thousands per month which some she pays and majority the hospital wear the costs for at this stage, as she is the only patient at GCUH with this rare infectious disease. These drugs require weekly blood tests, eye tests, ECGs, Kidney and Liver tests. She is also required to have daily physio to clear her lungs. Her eyes already deteriorated early from one medication and this was deemed too dangerous to continue so a new one was added which effects the heart also. She must remain on three different treatment medications at least to try and contain the NTM this is the minimum as the bacteria will not be controlled on just one, it's extremely strong and difficult to treat. The worst part is during the first stage her rightmiddle lobe in her lungs collapsed and remains collapsed, this happened when an abscess formed near her heart, and with an arterial hemhorrge. This collapsed lobe was found to also contain two large clear solid glass nodules of 9mm each. Unfortunately now she will lose most of her right lung and possibly lymph nodes as the bacteria grows and becomes resistant, this surgery is very difficult and is happening in under two weeks time. Kirsten will be in ICU for a day at least and then hospital respiratory ward for two weeks minimum and this is no complications arise during surgery and her lungs don't collapse completely or her lungs have problems after . She will rely on an NTM foundation member to help her recover and during hospital, but she still needs to get kids to school and the many other life daily chores. We are raising funds to help with her recovery which will be long once she returns home from hospital and painful and also to help with the care of her three children during this time. I know every little bit will help and will be very appreciated and will go towards medical bills and physio after as whilst surgery is paid by hospital there are many many more costs her family has , there is no income coming in during these weeks she is in hospital and after. As the specialist is also uncertain what else may be found during operation and if results from biopsies are malignant.
Organizadora
Anthea Strachan
Organizadora
South Stradbroke QLD
