Nicky's Chance to Beat Cancer
My name is Nicky. I am planning a wedding with the man I love, while trying to beat an aggressive cancer that has returned. My local surgeons have only proposed more chemotherapy. I do not believe this is my only hope? I have done masses of research, to find out if I can have any another treatments, standard or complimentary, either in the UK or abroad. I am one of the UK's only female jousters and stunt riders so my aim is to get back into the saddle and back to health..
Each way I turn, the costs for treatment are terrifying. No one talks about the cost of cancer. And I am determined to try and find a way to stay alive.
So I am asking for help....
If you want to you can donate below, hold a coffee morning, sell some cakes, organise a marathon...anything will help. And I’m so grateful for any help at all.
You can also help by sharing my story. I want to help other women and raise awareness about the difficulties facing ladies with Ovarian Cancer in the UK. There are hundreds of brave women who simply cannot access these drugs due to the fact that they are unaffordable.
In the middle of planning to join my Jousting Team in the USA in 2015, I was diagnosed with cancer. Life came to a halt. I had a total of 9-10" of cancer removed from my ovaries/pelvis, along with some internal organs, stomach wall and stomach apron. I had two big abdominal surgeries followed by a combination of two aggressive chemotherapies. At the same time, I had a double-whammy diagnosis of being BRCA + . That was also devastating. Anyway, treatment knocked things on the head for 10 months. My cancer has returned at a fast rate. I do not want to be another statistic. But to beat it or try, I need help.
The last year has been a rollercoaster. Every month, I was petrified that I would be told it had come back.
The dreams that my fiancé and I held, are getting harder- We lost our baby and chance of starting a family, so now, the priority is to concentrate on staying alive.
At the speed this cancer grows, I need to start treatment very soon. The immediate chance I have found, is a large surgery, proposed by a radical surgeon in London. This would be bigger than the last two operations, and would be followed by 6 more months of chemotherapy, plus ideally a new maintenance drug, a PARP Inhibitor called Olaparib. This sounds like a plan right?
Here is the problem....
Because this will be my 2nd time on chemo, and not my 3rd time, Olaparib isn’t available to me on the NHS. Despite the fact that this treatment might work, the drugs are not licensed for a 1st recurrence for ovarian cancer in the UK.
I’ve no choice but to pay for the drug.
This drug costs approximately £60,000 for just over a year. AstraZeneca have just signed as deal with the NHS to provide it for free if you self-fund the first year. If it wasn’t the only thing that might help me, I would not even consider it. This is the first ovarian cancer treatment to get approval from the NHS in over a decade and will still be subsidised by AstraZeneca.
I have put myself on an extensive Supplement Protocol combined with complementary therapies, which appears to be slowing the progression of the cancer and helps to keep pain down, but to have treatment in London, and to carry on with this Protocol, I am looking at total costs around £6486 with travel, consultations, accomodation near the hospital etc. Included within this, I would also like to take part in a cancer drug trial, which is showing promising results.
My fiance and family have helped me hugely, and I have had savings that I have poured into treatments up to this point. However, it is becomingly increasingly difficult to fund or even contemplate, the upcoming costs.
So this is where I am asking for help. If we can find enough people who are willing to donate the cost of what they’d spend on a beer or a coffee, I’d have enough to start a course of treatment.
The minimum I need to raise is £6486, but if I ever got to £60,000 for the drug that might save me, then I can only try?
Phase 1 of my goal is £6,486
Phase 2 of my goal is £60,000 for Olaparib or over and above that to be able to consider cancer treatment in Europe.
Any donation will make a huge difference, helping me get the treatment I need so I can beat this horrible illness. Even if you can’t afford to spare anything, you can make a big difference just by sharing this page – if enough people read my story perhaps the NHS will consider a new license for this drug for Ovarian Cancer.
Thank you so much for taking the time to read this.
Nicky & Family
Please help my special reason to have this treatment: being onew of the few female jousters and stunt riders in the country, I want to get back to full health and get back to doing what I am passionate about and also marry my soulmate.
In the case of anything happening to me during this time, all proceeds remaining will be split between ChemoHero and Penny Brohn Cancer Care.
In the event of any new drugs coming on the market, or research trials, I will use remaining funds to carry on my research protocol and towards continuing treatments either in UK or abroad.
I keep meaning to add a photo of our wonderful wedding, which you all helped us reach. It was truly the most amazing day!
But firstly, a last minute update on my task in hand, of supporting the charity Penny Brohn UK in Bristol, that helps support cancer patients and their families.
I also want to help push support for the fund-raising to build a cancer and well-being centre in North Devon. There is currently nothing here to support patients, or their families, through their illness. It is crucial that this centre is built in years to come.
So...as you have all helped me get back on my feet, I now feel that I can set myself a bigger challenge to fund-raise- that being to jump out of a plane.
I am currently filled with fear at the thought of doing this- but hey, I like to push myself out of my comfort zone- and if it helps people, well, then I will give it my best shot!
My jump is planned for Sunday 5th August.
You can read another update to my story here, along with the link, if you would like to either sponsor me or simply share this on your FB/Twitter pages.
Thank you all so much. I would not be able to be doing this if it was not for all your help and generosity and kindness. I am truly grateful.
Right..after another friend died yesterday of cancer, I am bumping up my efforts to fundraise for cancer charities that are dear to me.
I have booked (maybe stupidly) to do a 15,000ft Charity Skydive on Sunday 5th August at a Dropzone near Exeter to fundraise for Penny Brohn Cancer Care in Bristol.
I am terrified of heights! So here's hoping I smash my fundraising goal, and will be OK enough to do it.
I have set a target of £400, but if we raise more, then all the better.
Let's help this unbelievable charity to help many cancer patients. They do amazing work, and they make an amazing difference to people with cancer and their loved-ones in dealing with what is a terrifying disease.
I am shamelessly going to ask for your support, or PLEASE share this link on your Facebook and Twitter pages.
A heartfelt thank you.
It’s been a while since I updated you all-it’s been a busy few months...
Before I post a longer update, firstly, I need to thank the donor of this £10 note, as I have not met him, and probably never will...
He may not even see this post.
You see, I understand that the man who gave me this note is homeless. He lives in Dorchester, Dorset. He had apparently seen my story and left this donation for me at a local workshop there.
To that amazing man...thank you. So much.
I am inexplicably grateful for your kindness and generosity, especially when you need this more than me.
This £10 (and every £10 I have received thus far) is helping me continue treatment.
To this kind, selfless man...how can I possibly thank you?
Please do get in touch if you read this.
With thanks, Nicky
Hello Nicky, I lost my Mum to ovarian cancer 10 years ago and then 5 years ago at just 50 years of age, my partner... we were late getting a diagnosis and even later with starting treament, finding out about an immunotherapy drug very late in what turned out to be a short illness. This said, I vowed to make our friends and family aware of the importance of doing your own research and NOT becoming a statistic... of leaving no stone unturned and NOT giving up. I felt inspired by your story tonight and am sending love and a big hug from my small part of the world. And of course, hoping that the drugs do their job. It's got to be worth a try! Go Nicky and don't let anyone tell you otherwise.
I saw you on the BBC2 show and sought out your campaign, thank heavens for the internet. Your story and courage are so inspirational and my grandma dies of ovarian cancer so it touched me deeply. Wishing you strength and better health and all the crowdfunding you need!
Hi Nicky. I am a London taxi driver (Black cab). I help drivers challenge parking tickets that have been unfairly issued. If they get cancelled, I ask that the drivers donate to your cause. So far you've had lots of donations, so I'm sure it won't be long until you reach your target. Good luck.
Hi Nicky - I can't stop thinking about you after watching you on Hospital. You remind me of my fabulous auntie Margaret who I lost a few years ago to ovarian cancer at the age of 69 - she loved horses too and she would have wanted you to get every chance possible. Lots of love xxx
Be strong, be fearless, be beautiful. And believe that anything is possible when you have the right people there to support you.
Nicky can we have an update on you please. How are you doing. Sending all the luck in the world your way xxx
Its the Paris inline marathon yes on skates with 10000 others sun Oct 15th ...please donate here thanks
Hiya all I'm about to race the first. Ever inline marathon for Nikki so rather than sponcer me on my own page please do one here for me...many thanks ...
Hiya all I'm soon due to skate the Paris inline marathon for Nikki on 15th Oct ...so either get ya skates on n join me there open to all abilities... Or donate to help me get round...many thanks