NATHAN'S BATTEN BATTLE
Prior to showing symptoms of this disease, Nathan was a normal, healthy little boy that met all of his milestones early in life. He enjoyed riding bikes, playing sports and having hopes and dreams like that of any other child. We hoped he would one day go on to pursue whatever his heart desired. Nathan was just five years old when his vision began to deteriorate. Within one year, he lost all of his vision and was completely blind by the age of eight. Nathan is deteriorating every day and is not able to enjoy the luxuries that other children get to experience. Unfortunately, he cannot and will not ever play sports, have sleep overs with friends or drive. His biggest dream right now is to drive a car, get married and have kids.
Batten disease is a rare, inherited disorder that begins in childhood and is fatal. There are less than 600 kids in the U.S with Batten Disease. It affects 2-4 of every 100,000 live births in the USA. Batten disease is one of approximately 50 diseases called lysosomal storage disorders. This means that the genetic mutation disrupts the cells ability to dispose of the waste in his brain. With Batten disease, cells are thrown out of balance with the build-up of proteins and lipids (fats). Because of these damaged cells, patients with Batten disease suffer progressive neurological impairment, which includes:
· Visual Impairments/blindness
· Personality and behavior changes
· Loss of motor skills and the ability to walk, talk & communicate
Seizures will begin and get worse as Nathan gets older. Speech and motor skills will begin to deteriorate and eventually he will be wheelchair bound, bedridden and die prematurely. The life expectancy of someone diagnosed with Juvenile Batten disease is only late teens to early twenties.
As longtime friends of Nathan's parents Stacey and Jay Hiltman, we are setting up this GoFundMe account to help with the financial expenses that will quickly start accumulating. Stacey and Jay will need to modify their current vehicle to accommodate a wheelchair. They will also need to make their home wheelchair accessible. Additionally, Stacey and Jay know there will be many unexpected developments and expenses along the way. We want to help them raise money to make this journey a little easier on their family.
We greatly appreciate any dollar amount you can give along with your love, support and prayers.
To follow Nathan’s Battle journey you can go to
For more information about Batten disease you can visit
Im so very sorry for what your family is going through and what you have to watch your poor baby go through, you are amazing people and I truly hope a miracle happens here. This brought tears to my eyes. I have two children at the ages of 1 and 3... Your story touched me in a way that words could not even possibly describe or explain and I hope you get all the money needed to help with this long journey... I hope you have some positives along the way... Stay strong! You guys are doing great. Some times we just don't have the answers in life and we are left dumbfounded with so many questions... So many whys? And we then learn we won't know those answers until we get there and have already lived through the answer to our questions... So i guess im trying to say is may peace be with you on this challenging journey to finding all the answers to your heart wrenching questions... I pray for you guys to have a smooth journey and that you will receive all the love and support you are seeking! May God be with you.... God bless ♥