Clara Ray's Heart Journey

$26,554 of $50k goal

Raised by 423 people in 13 months
Johanna Morton  CORNWALLVILLE, NY
As many of you know our daughter Clara Ray Morton has been diagnosed with CHD's and Heterotaxy Syndrome . With her Full heart block and her AV Canal defect, being two of the CHD's.  she will need a pace maker once born. As well as  needing open heart surgery later in the months to come.  Now she has a possible Valve not growing that will mostly likely lead her to a 3-4 stage open heart surgeries.  She is a miracle from God. We were told she would not make it past 18 weeks. Then once she did we were told she she most likely would be born still not long after 20 weeks. We never gave it a second thought. We knew our daughter had a fighting chance. Doctors are shocked to see her come this far. She has deafeated so many odds against her! We are now out here in Boston. Away from our NY home.  Awaiting the arrival of our princess. 

      We will be going to many doctor appointments along the way to monitor Clara's heart. Our insurance, covering most of the expenses, does not cover it all. As you can imagine, it starts to add up after a while. Also with the mutiple heart surgerys on the way, I feel I should try and prepare the best I can. With saving as much as we can along the way, as much as we wish we didnt have to ask... any help to pay Clara's expenses will be greatly appreciated. With everything going on this is the last thing we want to think about. We know we will make it through this no matter what with God as our guidence, therefore we do not wish to beg, but if you'd like to help us during this time, in anyway, we thank you.


Claras Bible verse, 

"I can do all things, through Christ who strengthens me" -Philippians 4:13

-------------------------------------------

"And though she be but little, she is FIERCE"
-Shakespeare
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Update 13
Posted by Craig Morton
2 months ago
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It has been a frustrating few days. As her parents we are her advocates. It is up to us to make sure she is getting every chance at life, as possible. Of course, We only want is best for Clara Ray and even though sometimes we feel as though our voices aren't being heard, until a different side of us comes out... Her team is doing their best. It's been a challenging case, like I said before Clara Ray's heart/anatomy is very rare in itself and now she's going in and out of severe heart failure. Something they have really never seen before. Her lower left ventricle goes from mild-severe in just weeks/days. (the ventricle that pumps blood too her body) the ventricle that keep her alive! We aren't sure how many more times, her heart can do this and her survive it... as she becomes very sick due to lack of blood flow to her body.

No one is quite sure what the next step should be, but... clearly there needs too be something done to try and help her.

So....

It has been decided, Clara Ray... needs and will have another catheterization procedure sometime this week. This will be her 3rd catheterization procedure and 5th time under. There hope is to find answers. Even though this is nothing compared to an open heart surgery, there are risk especially with already medically fragile children. In Clara's Case, her heart already being so compromised.

She may have just been born with a muscle disease and in that case, there is no surgery that would help her.

We aren't sure how long this hospital stay will be. We are going on about a week now and certainly aren't leaving until we have answers or something.


****I know it says over 19,000 was raised, but... that's just how much has been raised since the Campaign. Which in in itself is so amazing . THANK YOU!!! It goes so fast, with Each new hospital stay, medicine, medical equipment. Etc.

While we are here in Boston, the bills don't stop back at home. The endless medical bills stack up on the kitchen table and we trust that God will provide. Winters are usually pretty challenging in itself, as Craig is laid off from his construction job for the winter. We rely on his unemployment paycheck and whatever job he might be able to pick up for a couple of days, if any at all.

We have been in and out of hospitals, and... because of you. We get to keep our family together while living between home and Boston children's.

We truly are forever grateful and can't express that enough.

Every single dime, goes towards helping our family support Clara Ray's needs. Wether it be for Medical bills, food, a place to rest our heads while away from home. Etc.

Even if you can't donate, Prayers! Prayers are worth so much and truly have helped us get to where we are today.

Much love to you all.❤️****
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Update 12
Posted by Craig Morton
3 months ago
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As many of you know, we are currently in Boston at Boston children's hospital. Hoping to go home soon.

Another miracle, we will be bringing Clara Ray with us.

The prayers are working!

We are so truly grateful for all the love and support we have gotten, through this incredibly hard journey.
We really don't like to ask for anything, but... sometimes you just need help.

We have been able to stay afloat with your help, as always God provides.

I know it says 16,070 was raised, but... that's just how much has been raised since the Campaign. Which in in itself is so amazing . THANK YOU!!! It goes so fast, with Each new hospital stay, medicine, medical equipment. Etc.

While we are here in Boston, the bills don't stop back at home. The endless medical bills stack up on the kitchen table and we trust that God will provide. Winters are usually pretty challenging in itself, as Craig is laid off from his construction job for the winter. We rely on his unemployment paycheck and whatever job he might be able to pick up for a couple of days, if any at all.

We have been in and out of hospitals, and... because of you. We get to keep our family together while living between home and Boston children's.

We truly are forever grateful and can't express that enough.

Every single dime, goes towards helping our family support Clara Ray's needs. Wether it be for Medical bills, food, a place to rest our heads while away from home. Etc.

Even if you can't donate, Prayers! Prayers are worth so much and truly have helped us get to where we are today.

Much love to you all.❤️

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Update 11
Posted by Craig Morton
5 months ago
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We are now in Boston, for Clara Ray's G-tube surgery on Thursday. We are so not ready to give her away again, but we are looking forward to seeing our baby girl get bigger and stronger and not have to work her little heart so hard. Right now there aren't many options for Clara Ray and we aren't she what the future holds, but the bigger the better!

With that said, I know it says we have raised 7,200 dollars. That money is all gone. It goes by so fast with all her doctors visit, hospital stays, procedures and surgeries.

We really don't like to ask and are so grateful for all your help. I mean... we could not have gotten through what we have without... YOU! Thank you, from the bottom of our hearts.

Clara Ray and her mommy would love for her daddy to be able to stay out in Boston, while she under goes another surgery and recovers. Our medical bills are piling up and unfortunately no end to them anytime soon.... and Craig needs to work whenever he can, to support this family of three.

Anything at all, would be a great help. The money goes towards Medical bills, places to stay while away from home, food, anything Clara Ray, might need.. This Go fund me, is all about helping us stay afloat... while supporting our precious, Miracle baby girl.

Thank you so much, for all your support and prayers. We truly are blessed. ❤️



CHD can't stop this family of 3.
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Update 10
Posted by Craig Morton
7 months ago
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Our hearts hurt, but we can for sure say, we have enjoyed every single second at home with our baby girl.

Clara Ray... Our little red haired, blue eyed beauty needs your prayers.

We will be getting affairs in order and leaving for Boston Saturday morning. She will be admitted to figure out a plan.

Clara Ray, could need them to intervene right away...

They are hoping they can put her on meds that will help her stay stable, and we can be an out patient in Boston. While pushing her had hard as they can, before a second complex open heart surgery. So she can get bigger and stronger.

There are many questions, as to what is the best, to help Clara Ray to beat the odds. We know God is with her and we WILL bring Clara Ray, our happy baby...back home once more, no matter how long that may take.

Thank you all for continued support and prayers.❤️
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Read a Previous Update
Diane Weygand Deyo
9 months ago
2
2

I too wrote a comment but it's not showing. My daughter goes to school with your niece Brooke. They are BFF's. That's how I learned about Clara Ray. Our thoughts and prayers are with you and your beautiful little girl. Stay strong. She truly is a gift from God ❤️

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Susan Shuster Errek
8 months ago

Is there a mailing address if people prefer to mail a check?

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Nancy Ingwersen
10 months ago

My granddaughter was saved by the doctors in BCH..God bless you.. You are in my heart and prayers.. Keep the faith

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Marianna Di Regolo
1 month ago

Hi Johanna, I sent you an email regrading the Love What Matters Facebook page. Just wanted to touch base to see if you received it. Thanks! Sincerely, Marianna Di Regolo Editor at Love What Matters

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Terri Peters
3 months ago

Hi Johanna - I sent you a FB message, but wanted to reach out here, too. Working on a story about the tree of life photos that are going viral, and I'd really love to use the photo you made of your daughter with your permission. My message may be in your "other" folder on FB. Thanks!

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Kathy Jones
3 months ago

I will pray for your sweet,beautiful girl...check with the hospital about places to stay either at low or no cost, like the Ronald McDonald house in Albany,N,Y . May God continue to wrap his loving, healing arms around Clara Ray and give you strength for her, and for you and her dad as well...Amen

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Trisha Horton
3 months ago

I was once Kathleen mortons students and I have been following Clara story and praying she gets better. Wish I could help but money is tight. But I am still praying for clara! She seems like a fighter!!!

+ Read More
Bonnie Jonson
10 months ago

As a mother of a baby with CHD my heart goes out to you and your family I will send positive vibes and hope you get the help you need, heard Boston is the best place with the best heart doctors we almost made the trip there too. Stay strong your little one needs you lots of love from a CHD mother like yourself Xoxo

+ Read More
Jessica Dawn
13 months ago

Joanna, I left a comment and for some reason it isn't showing!! I am continuing to pray for precious Clara and your family! I can't wait to see your beautiful baby girl!!❤❤

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$26,554 of $50k goal

Raised by 423 people in 13 months
Created February 25, 2016
$50
Lisa Silberstein
14 days ago
1
1
SV
$100
SusanJo Voss
16 days ago
1
1
DW
$120
Diana Werner
18 days ago
1
1

We are cheering you on as you continue to show your strength... Sending our love and prayers to you and your family!

$20
Anonymous
26 days ago
1
1
TM
$50
Tammy Menzynski
29 days ago
1
1
$50
Anonymous
29 days ago
1
1
EK
$10
erin kiteley
29 days ago
1
1
$25
Mary Scaringe
29 days ago
1
1

God's blessings

FF
$25
Fred & Marguerite Flood
1 month ago
1
1
CS
$100
Charlene Stanger
1 month ago
1
1
Diane Weygand Deyo
9 months ago
2
2

I too wrote a comment but it's not showing. My daughter goes to school with your niece Brooke. They are BFF's. That's how I learned about Clara Ray. Our thoughts and prayers are with you and your beautiful little girl. Stay strong. She truly is a gift from God ❤️

+ Read More
Susan Shuster Errek
8 months ago

Is there a mailing address if people prefer to mail a check?

+ Read More
Nancy Ingwersen
10 months ago

My granddaughter was saved by the doctors in BCH..God bless you.. You are in my heart and prayers.. Keep the faith

+ Read More
Marianna Di Regolo
1 month ago

Hi Johanna, I sent you an email regrading the Love What Matters Facebook page. Just wanted to touch base to see if you received it. Thanks! Sincerely, Marianna Di Regolo Editor at Love What Matters

+ Read More
Terri Peters
3 months ago

Hi Johanna - I sent you a FB message, but wanted to reach out here, too. Working on a story about the tree of life photos that are going viral, and I'd really love to use the photo you made of your daughter with your permission. My message may be in your "other" folder on FB. Thanks!

+ Read More
Kathy Jones
3 months ago

I will pray for your sweet,beautiful girl...check with the hospital about places to stay either at low or no cost, like the Ronald McDonald house in Albany,N,Y . May God continue to wrap his loving, healing arms around Clara Ray and give you strength for her, and for you and her dad as well...Amen

+ Read More
Trisha Horton
3 months ago

I was once Kathleen mortons students and I have been following Clara story and praying she gets better. Wish I could help but money is tight. But I am still praying for clara! She seems like a fighter!!!

+ Read More
Bonnie Jonson
10 months ago

As a mother of a baby with CHD my heart goes out to you and your family I will send positive vibes and hope you get the help you need, heard Boston is the best place with the best heart doctors we almost made the trip there too. Stay strong your little one needs you lots of love from a CHD mother like yourself Xoxo

+ Read More
Jessica Dawn
13 months ago

Joanna, I left a comment and for some reason it isn't showing!! I am continuing to pray for precious Clara and your family! I can't wait to see your beautiful baby girl!!❤❤

+ Read More
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