Morghan's Medical Mission
Doação protegida
Morghan, now 14, is our first born. She has always exceled in everything she's ever done: she began piano at age 3, (mastered it), started reading at 3 ½, (rocked it), took-up basketball, (nailed it) and school...Goodnight!!! Straight A's without any effort! Morghan was the lead in many school plays, which was her love, along with her ever growing relationship with Jesus. When Morghan would sing, people were blown away; this soft-spoken sweet little girl could belt out a tune like a diva!
However, in May of 2017, all of that began to change. She started becoming sick all the time, and then odd physical conditions began to surface. At first, we were treating each medical issue as isolated concerns, like her gastric paresis, her tachycardia and her loss of focus and ability to reason. Then in October of 2017, Morghan began having delusional thoughts, and she began exhibiting a lot of OCD tendencies, which only worsened day by day. After seeking psychological treatment from pastors and therapists, we were told to start looking into a physical component which may be causing her behaviors.
We began seeking out the advice and treatments of medical doctors. After months of trying what was prescribed, Morghan continued to decline. We finally ended up in the emergency room because of self injurious thoughts. At which point, we knew, as her parents, we needed to be her TOP medical advocates, and we needed to begin seeking out what was truly wrong with her, and pursue whatever was necessary to get our little girl back. After much research, we realized that a lot of her symptoms fit with Autoimmune Encephalitis/PANDAS diagnosis. We began seeking out PANDAS experts.
Now, here we are, over a year and a half into this disease, without any improvement for Morghan. We've worked with two of the top Pediatric Neurologists on the East Coast (who don't take insurance), and have tried many treatment plans, only to see Morghan continue to decline. Currently, it is believed that the only course of treatment left for Morghan is called Retuxin IV therapy, which has a price tag of $16,000 a session. Morghan would need 2 sessions, 14 days apart, and then possibly another two sessions within the year.
Our insurance, AETNA in Pennsylvania, has not covered most of Morghan's treatments. Our doctors have assured us that they will probably NOT cover any of Retuxin IV, because it is a fairly new diagnosis. (Other states do recognize PANDAS and insurances must cover it, however, not good old PA!) Which means, in order to give our daughter a fighting chance to improve, we need to come up with at least $32,000, if not $64,000-$75,000.
Our hearts are broken. We just don’t have that kind of money. Our daughter has spent days in the fetal position, sobbing, “I just want to be normal.”
If there is any way you can help us, help Morghan receive this treatment and begin the healing process, we would be forever grateful and indebted to you.
However, in May of 2017, all of that began to change. She started becoming sick all the time, and then odd physical conditions began to surface. At first, we were treating each medical issue as isolated concerns, like her gastric paresis, her tachycardia and her loss of focus and ability to reason. Then in October of 2017, Morghan began having delusional thoughts, and she began exhibiting a lot of OCD tendencies, which only worsened day by day. After seeking psychological treatment from pastors and therapists, we were told to start looking into a physical component which may be causing her behaviors.
We began seeking out the advice and treatments of medical doctors. After months of trying what was prescribed, Morghan continued to decline. We finally ended up in the emergency room because of self injurious thoughts. At which point, we knew, as her parents, we needed to be her TOP medical advocates, and we needed to begin seeking out what was truly wrong with her, and pursue whatever was necessary to get our little girl back. After much research, we realized that a lot of her symptoms fit with Autoimmune Encephalitis/PANDAS diagnosis. We began seeking out PANDAS experts.
Now, here we are, over a year and a half into this disease, without any improvement for Morghan. We've worked with two of the top Pediatric Neurologists on the East Coast (who don't take insurance), and have tried many treatment plans, only to see Morghan continue to decline. Currently, it is believed that the only course of treatment left for Morghan is called Retuxin IV therapy, which has a price tag of $16,000 a session. Morghan would need 2 sessions, 14 days apart, and then possibly another two sessions within the year.
Our insurance, AETNA in Pennsylvania, has not covered most of Morghan's treatments. Our doctors have assured us that they will probably NOT cover any of Retuxin IV, because it is a fairly new diagnosis. (Other states do recognize PANDAS and insurances must cover it, however, not good old PA!) Which means, in order to give our daughter a fighting chance to improve, we need to come up with at least $32,000, if not $64,000-$75,000.
Our hearts are broken. We just don’t have that kind of money. Our daughter has spent days in the fetal position, sobbing, “I just want to be normal.”
If there is any way you can help us, help Morghan receive this treatment and begin the healing process, we would be forever grateful and indebted to you.
Organizadora
Kim Norcott
Organizadora
Marietta, PA
