Charlies LIFESAVING CancerTreatment!
!!!TREATMENT FOR CHARLIE IS NOT CURING HIM! NHS HAS NO MORE CHEMOTHERAPY OPTIONS LEFT FOR CHARLIE! WE NEED TO GO PRIVATE! PLEASE HELP HIM LIVE!!!
Charlie's memorise is now raising for private treatment abroad to give him a chance of life.
For Charlie to travel to be given a second opinion will cost around £4000 there will also be treatment cost, traveling cost, accommodation cost, if Charlie gets and infection he will need money there for the cost of treatment, blood transfusion.. the list is endless..
We're trying to raise as much as possible to save his life. There are so many events in place to raise thousands.. so I'm setting a target for £50,000. Until we seek advice abroad I can't say how much more we may need but for now £50,00 will allow us to travel, have accommodation and approximately 8 weeks of chemotherapy.. He may need more but I will not give up!
Please help our baby boy live.
X x X x X x X x X x X x X
On the 1st of February we got told our baby boy had a tumor in his liver. We knew nothing more till he had his biopsy on the 5th. When his results came back it was heartbreaking to listen to.. All 4 sections of his liver had been taken over and they also found it had spread to both lungs. The scan images was the hardest. Seeing this cancer taking up so much of his tiny body!! He got diagnosed with Hepatoblastoma stage IV. -Hepatoblastoma is a rare tumor that usually occurs in children under 5 and only about 8 children are diagnosed in the UK each year. There are stages I, II, III & IV. Unfortunately Charlie is stage IV which means it's took over his liver and spread to both his lungs, because of this he will need a liver transplant, but they can't do this until the cancer in both lungs goes, otherwise it will just spread again to his new liver. The chemotherapy treatment he's on is to hopefully clear the cancer in his lungs and shrink the tumor in his liver. He has a scan in Leeds on 5.4.16 which will tell us how he's responding to the chemo and how ready he might be for his liver transplant. Until then and also after his transplant he carries on with all his treatment as normal (chemotherapy, blood transfusions, platelet transfusions etc) even though he seems happy in himself his survival rate is still only 20%-60%. We as parents left work to spend as much time as we can with him, but this has meant we have a really low income with hardly no financial support. I'm due to have our 2nd child on the 25.05.16 and Charlie's 3rd birthday is on the 24.04.16 and we want to make it a very special one so money at the moment is a stress we don't need. We are coping with what we get but as for weekends away and trips to the zoo etc in between his treatments is a struggle. The money donated isn't for any treatment as his treatment is on the NHS it's is literally just for him, and us as a family to make memories.
1.2.16 was the day we got told they had found a tumor. He was diagnosed with Hepatoblastoma liver cancer stage four. After liver cancer is diagnosed, the doctors will stage the disease. Staging is a process of testing and analysis to determine how far the cancer has spread. Once doctors know the stage of the disease, they can choose the most effective way to treat it. The cancer had not only spread to all four sections of his liver making him stage four but it had spread to both his right and left lung. However, his survival rate was still high at 60-90% becuase even though this cancer is rare (effecting less than 1 per million) it's very curable.
In the 6 month plan Charlie would receive six rounds of chemo, a liver transplant then two more rounds.. then he'd be cancer free. They will test his blood for his AFP levels throughout treatment which will tell us if the cancer is increasing or decreasing. A normal child of Charlie's age (2 at the time) is 0-5. Charlie's AFP was over 1million. A very late diagnosis.
Chemo 1 (cisplatin & doxorubicin)
We was told only 8 rounds of this was to be given because it effects the heart and kidneys but after his 8th round he still was far from clear and still no transplant. He wasn't able to have a transplant until his lungs cleared because the cancer from his lungs would spread to the new liver. They're refusing him for lung surgery because of the amount and size of the tumors. After checking his heart they pushed two more rounds on him. 21.7.16 at 8.01pm Charlie finished his last ever round of chemo 1. AFP 3000
At this point his survival rate dropped to below 20%. His consultant said in over 30 years of this job she had never seen this. She got second opinions from two different doctors in London and Glasgow. They all agreed on the next plan.
Chemo 2 (irinotecan & vincristine)
This chemo is his last chemotherapy option. This is relapse chemo. It's not an aggressive chemo so it's not likely to attack the cancer as much as the first chemo. However, because it is weaker he can have more of it. He can have as much as his body can take. It's been known to stop working around the 7th round. Charlie is on his 12th round of this chemo.
During his 4th round of chemo-2 his consultant suggested radiotherapy. There is no record of it being used on the lungs for hepatoblastoma dating back over 40 years. Not only is it a risk for a very unlikely outcome but there are huge risks involve, one of them being skin cancer. We took him to the meetings and he even got as far as being tattooed in 3 different areas. We refused this for Charlie at last minute as there is zero proof of it working.
So at this point (6 weeks ago) his lungs look like a snow storm on scans, he can't have a liver transplant until they're clear, they have refused him for lung surgery 4-5 times due to the amount and size of the tumors and he's running out of time. Our decision to find the best Dr we could took off. With a name already in our head we decided to research more.. and we found Dr Geller.
Dr Geller is well known with hepatoblastoma patients around the world. Saving their lives when their own countries couldn't. We see his name mentioned weekly on the hepatoblastoma page.
We got in touch with him and told him Charlie's condition from start to present. He needed his files to confirm the treatment but there was hope of trails over there that could clear his lungs!! Then we could fly home for a transplant. So we sent the files over and started fund raising as soon as possible!
The day Dr Geller received the files he rang us.. "why on earth is Charlie having a liver transplant?" We was so confused, as was he... "looking at these scans I can see he has more than enough liver to save, I'll have to send them to my surgeon for him to confirm this but I know he will ring back saying "WHAT!! Why hasn't this child had surgery months ago"... and he said exactly that.
Dr Geller and his surgeon Dr Tiao are confident in the surgery. He said he will get his hands in there if needed. Charlie has a high chance of survival with surgery.
Charlie never needed a transplant, he also didn't need the last 6 months of chemo. He could of been cancer free months ago. NHS didn't want to do the lung surgery because they wasn't confident enough, telling us it's a risky surgery for an unsuccessful outcome.
Since being in touch with America, Leeds have offered to scan his liver again.. 4th April. I wonder if it comes back he no longer needs a transplant hmmm.
It's hard to put our confidence in to the NHS now. Even if they say they can operate it's a question of why? Why now? Because America have said they can do it?
There is a Dr Morland at Birmingham hospital who specialises in hepatoblastoma. His self and Dr Geller are in regular contact. Dr Geller has put us in touch with Dr Morland. If he and his surgeons are happy to do the liver surgery we would be happy to trust him. As for Charlie's lungs, he's been refused 4-5 times over here I 100% don't trust anybody other than Dr Tiao in Cincinnati.
We are no longer flying over for trails, we are going to get Charlie the surgery that will clear him of cancer.
The price of surgery hasn't gone up! We had a list of what Charlie would be paying for and we googled them. Liver and both lungs. We came up with an estimated cost but unfortunately we didn't consider other things we would need to pay for. The surgery room its self is thousands of pounds!
Please know, if by any miracle a famous or rich person donates the full amount, if the doctor freely decides to help or any other possibility where we don't need the money then all of it will be given to the children we've met on the ward that need help to travel for treatment. We've witnessed children dying. Nothing can destroy you more than nurses (which have become family) with tears in their eyes telling everyone to go back to their rooms and then watching through the curtain at a child's covered body being wheeled out of the ward on a hospital bed. The child you smiled at that day! We don't need the money once Charlie is cured. We want our life's back to being as normal as possible.
If anybody has any questions this is the post to ask on? It's heartbreaking coming on here and being told the page is fake, that we're conning people out of money, that this is not our child and everything else that's been said. It's amazing how many cancer experts there are too! Telling me I'm wrong about my own child's cancer? "He should be dead if he's had stage 4 for over a year!" Should he? Well he's not.
Please ask any question that are not understood. This page needs to be clear on everything so people know who and what they are donating to.
Thankyou to everyone for all your continuous support!
£23,000 is 6weeks worth of chemo and we've got it!!!
Can't thankyou you all enough!!
Now I've raised the target to the 250k Charlie will need for the rest of the treatment though out the year as well as accommodation, living expenses, treatment in case of infection, flights!! ❤️❤️
Thankyou all from the bottom of our hearts! ❤️
Every time I look at this page i fill up with tears, Charlie is my gorgeous grandson ,and what everyone is doing for him has totally restored my faith in humanity, I just want to say thankyou to you all, those who have donated and those who have shared his page and said such lovely words. Can't thank you all enough. Lots of love to each and every one of you, thank you from one very proud grandma .❤x
Contact Cancer Treatment Centers of America. It's a faith based cancer specialty hospital here in America that may be able to save your little man. They leave no stone unturned and will do whatever is within their expertise and ability to save their patients. Also, St. Judes here in America as well..I will pray for you and your family. God bless you.
I am a nana of a neuroblastoma warrior and we had to raise money to send him abroad for lifesaving treatment. We were fortunate that the local paper got behind us and helped us spread the word. The local community helped raise the money we needed to send him to America. I pray you get the funds you need to help Charlie get the treatment to save him. My grandson was 3 when he was diagnosed with neuroblastoma stage 4. He was 4 when he went to America for 5 months. Next month he will be 8. I believe in miracles and count my blessings every day.
I just contacted them and your doctor needs to send them an email with a brief clinical summary of his condition. Go to St. Jude's.org and there is a page with information on families seeking treatment. I pray that they are able to help. Please contact me if you need any research help or phone calls made here in the states. God Bless you all
God bless him and you poor parents. Hopefully he will get well soon. I think you should claim disability living allowance for your little man and careers allowance, as he has a serious illness he is entitled. Also, do a self referral to the children's disability team in social services, there are things you are entitled too. Furthermore, check out www.cerebra.co.uk and www.familyfundUK Both give grants for days out or equipment etc to make life a little easier. X
Amber you and Ben are being so brave and little Charlie is an amazing little boy. I have contacted numerous companies about days out etc and am awaiting replies. We are not only going to reach your target we are going to smash it.......your little family deserve some fun times and to make memories you can cherish forever that Charlie can look back on when he is a big boy...........much love to you all...here if you need me xx
There is a lady called Mandy at the Women's Centre in Accrington (next to Argos) and she is brilliant with money advice and finding out what you could be entitled to. They really go all out to help. It's a really great place. It's a call in centre. Hope this can be of help and that Charlie gets all the extra special things he needs. Xxx
To grandma Melissa, so happy that people are donating.As a grandma myself to 8 grandchildren (6 boys & 2 girls aged between 10 years and 11months) I know that I too would do all I could to help get them get the treatment they needed and like you would be so grateful.Thinking of Charlie & all your family and wishing you all things good. xox
I bought brand new RED Ferreri by working ONline work. Six month ago i hear from my friend that she is working some online job and making more then 98$/hr i can't beleive. But when i start this job i have to beleived herNow i am also making 98$/hr if you want to try just check this out..... Please click the link below ====== http://www.jobmax6.com
Other people have commented for you to contact st Jude's and cancer treatment centers of America they take patients from all over the world it isn't based on the ability to pay. If you think that the money you are raising will be enough it won't just get visas to visit go to the hospitals and ask don't sit waiting you don't have time for that I know I've been there
keep fighting Charlie #strongertogether xx
Dear Charlie, you are in my prayers. I pray your lovely mum and dad get all the help they need to get you better. X x x
Shared and donating. Please read http://www.prevention.com/health/health-concerns/alternative-cancer-treatments. I'm sending your story to different places. Send it everywhere. We are praying, hoping and wishing.
wish i could take all your pain away from you charlie, keep fighting lil man cause we wont ever stop fighting for you. u've stolen my heart ♥ our lil superhero, xxxxxxxx