Miracle 4 Maddi

£6,362 of £8,000 goal

Raised by 154 people in 40 months
Purpose: to raise money for Maddison to enable her to enjoy life to the full and to allow us, her family, to provide for Maddison as her needs change throughout the progression of her disease.

Maddison has an genetic condition called Sanfilippo Syndrome MPSIIIC. Sanfilippo Syndrome is a extremely rare condition which is only present in 1 in 70,000 births and the MPSIIIC strain is only found in 4% of the cases worldwide.

Unfortunately this disease is terminal and will eventually cause Maddison to loose her ability to walk, talk, see and hear.  Many children with this condition don't see the end of their teenage years. As it stands medically there is no cure for this disease and we can only manage her symptoms as and when they occur. The time will come when her vision will deteriorate, she will become hard of hearing, she will stop understanding age appropriate games and she will become immobile. Her life will change completely and so will ours. We cannot change this but we can make life as good as possible for her. With these kind donations we will be able to manage her symptoms in a way that maintains a good quality of life for her whilst keeping her smile shining.

We want to make memories, we want Maddison to feel like a normal little girl but most of all we want to keep her happy. Any donation helps and we thank you eternally for any money you can spare towards Maddi's miracle.

All profits will go towards making Maddison's life as brilliant as possible. The time will come when we will have to make necessary adaptations to our daily lifestyle in order to cater for Maddison. Our aim is to raise money to ensure that we can meet these changes as and when they arise. Therefore our goal can not be capped, as our biggest challenges are yet to greet us. 

If you want to follow our journey then you can like the page below: https://www.facebook.com/pages/Miracle-4-Maddi/701640396636310

For further information about Maddison's condition please visit the MPS society's website:
http://www.mpssociety.org.uk/conditions/mps-diseases/mps-iii/
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Thank you for all of your support so far. As a family we are totally overwhelmed by your generosity. Please follow our journey @ https://www.facebook.com/Miracle-4-Maddi-701640396636310/ for regular updates about Maddison and our journey with Sanfilippo.
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Yesterday was not only Maddison's 8th birthday, but it was also Maddi's last day at Beacon View Primary Academy. As a family we are overwhelmed by the money raised during the non-school uniform day on Thursday and the generosity of all the children, parents and teaching staff. In a celebratory assembly yesterday we were handed a staggering £520! We would like to say a HUGE thank you to everyone who donated money for Maddi and a further thank you to everyone at Beacon View who has supported Maddi over the past 3.5 years. We will miss you all! ❤️
#miracle4maddi
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In less than one week Lucy Chapman (Maddi's Sister's housemate) will be completing a treck of over 20 miles in aid of #miracle4maddi. The treck will commence in Scotland between Callander and Oban and all profits will file in on our gofundme page. Please donate/ sponsor her if you can! Go Lucy !!
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Today Jorden (Maddison's sister) and her friends Charlie, Beth and Zohra completed The Color Run Brighton in aid of #miracle4maddi. We want to offer a big thank you to the girls for all of their hard work and to everyone that donated/sponsored them throughout their journey! THANK YOU
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Read a Previous Update
Shelly Reid
40 months ago
2
2

Thank you

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Shelly Reid
37 months ago

My family and I are overwhelmed by your generosity and kindness towards our beautiful Maddi, words really can not express how truly thankful we are ❤️

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£6,362 of £8,000 goal

Raised by 154 people in 40 months
Created August 26, 2015
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£20
Gindi Cassie
1 month ago
1
1

Well done selina and Johanna xx

FK
£100
Fiona Kealy
31 months ago
1
1

With loads of love xxxxxx

TE
£220
The Busk Stop Charity Event
31 months ago
1
1

Raised by The Busk Stop musical Charity event, a pleasure to have helped contribute to this wonderful cause! Lots of love from the team:)

Shelly Reid
40 months ago
2
2

Thank you

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Shelly Reid
37 months ago

My family and I are overwhelmed by your generosity and kindness towards our beautiful Maddi, words really can not express how truly thankful we are ❤️

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