Miracle 4 Maddi
Maddison has an genetic condition called Sanfilippo Syndrome MPSIIIC. Sanfilippo Syndrome is a extremely rare condition which is only present in 1 in 70,000 births and the MPSIIIC strain is only found in 4% of the cases worldwide.
Unfortunately this disease is terminal and will eventually cause Maddison to loose her ability to walk, talk, see and hear. Many children with this condition don't see the end of their teenage years. As it stands medically there is no cure for this disease and we can only manage her symptoms as and when they occur. The time will come when her vision will deteriorate, she will become hard of hearing, she will stop understanding age appropriate games and she will become immobile. Her life will change completely and so will ours. We cannot change this but we can make life as good as possible for her. With these kind donations we will be able to manage her symptoms in a way that maintains a good quality of life for her whilst keeping her smile shining.
We want to make memories, we want Maddison to feel like a normal little girl but most of all we want to keep her happy. Any donation helps and we thank you eternally for any money you can spare towards Maddi's miracle.
All profits will go towards making Maddison's life as brilliant as possible. The time will come when we will have to make necessary adaptations to our daily lifestyle in order to cater for Maddison. Our aim is to raise money to ensure that we can meet these changes as and when they arise. Therefore our goal can not be capped, as our biggest challenges are yet to greet us.
If you want to follow our journey then you can like the page below: https://www.facebook.com/pages/Miracle-4-Maddi/701640396636310
For further information about Maddison's condition please visit the MPS society's website: