Miracle for Maisie

$79,268 of $2.2M goal

Raised by 1,980 people in 15 months
I started this campaign for my niece Maisie and her parents Martin Forrest (my brother in law) and Ciji Green (my sister). Maisie was diagnosed with SMA type 1 a fatal disease that they are now seeking treatment for, there is no cure so Maisie will be under constant care of Doctors in Denver. There is a one time treatment that the FDA recently approved for children 2 and under that we are now trying to get for her. Unfortunately it carries a price tag of 2.2 million dollars and we are up against the wire trying to get insurance companies to write policies on it.




Maisie’s Story:

Maisie has been severely low tone since 2 months old. She’s been doing physical therapy and occupational therapy to try and improve her strength since she was 4 months old.

After months of fighting doctors... we were admitted into Rocky Mountain Children’s Hospital to meet with a neurological team to deal with her strength issues and also an occupational team to deal with her feedings.  She had quit eating when she was 5 1/2 months old. We were then transferred to Children’s Hospital Colorado to work with a neuromuscular team.

Maisie was unable to move anything but her right arm. She struggles to breath on her own especially when sleeping. She can’t sit up and she can’t swallow. SMA is evil.

It was confirmed on June 14, 2018 that Maisie has spinal muscular atrophy type 1. This is possibly the worst news a parent can hear.

We spent From May until January in Denver with our baby fighting for her life.

In this period of time, Maisie's family was separated, and out of work. They have now been home and able to start getting their feet underneath them and build some sort of normalcy. But not all Maisies medical expenses are covered and we surely don’t have enough for what they are calling the closest thing to a cure.


We are asking for the community’s help for:

The family is in need of financial support to be used for ongoing medical expenses, and expenses for Maisies future. We also want her to continue to receive spinraza the drug that has kept her alive. It comes with a price tags of 125,000 every 4 months. We are unsure if insurance companies will pay for both treatments. Again neither is a cure just treatment. Wouldn’t you do anything and everything to give your child the best opportunity to survive. we believe getting both drugs will give her that.

The support the family receives will be an immense help.

Any amount helps. Thank you so much for your thoughts, prayers and donations. Help us create another miracle for Maisie.

Please like her page Miracle for Maisie on Facebook! You can continue to follow her story there.
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After a long hard battle Maisie got the denial reversed!!!

We plan to use any additional funds donated, funds remaining to start a non profit “maisies miracles” to provide a feeling of hope in the SMA community in times of need, for items in the Cure SMA welcome box in Maisies name, maisies medical funds for things not covered by insurance, research in the SMA community,

Watch the story here!! Follow her page for up to date information. Facebook Miracle For Maisie. This is where you will see her get the medicine!! This is where we will track her progress and... our continuing plan to pay it forward. Thanks Bill Pulte!!!

https://www.facebook.com/miracleformaisie/videos/469496636931519?s=1255143036&v=e&sfns=mo
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We will also be using funds to help pay for the attorney needed to fight the insurance companies!!
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What a huge response!!! I am so excited for Maisies future. We are so grateful for ALL of you and the donations, the kind words, the sharing, advice, and prayers. We are so hopeful! We are so thankful to the media outlets that are being Maisies voice for her!!! There is so much good in people!! Maisie is a very blessed and loved little girl. She has become everyone’s baby and we are happy to share her with you!! We want to ask that this continue to grow so please continue to share and challenge 5 of your friends to donate.. NO AMOUNT IS TO SMALL and if they can’t. SHARE!! Thank you all so much for helping me and loving my little girl. Please follow her story on Facebook #miracleForMaisie!!!
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Tuckered our after Physical Therapy.

With the growth of Maisie and her page. We had a lot of people that didn’t want to donate via Go fund me or thru Facebook. So we set up a post office box:

If inclined to do so you can send donations/well wishes etc to:

Miracle For Maisie
C/O Ciji Green
PO BOX 1745
Grand Junction, CO 81502
USA

Just another thank you to our supporters for donations, advice, support, positive vibes, and prayers etc!!! Lol.
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$79,268 of $2.2M goal

Raised by 1,980 people in 15 months
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9 days ago
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