Mika's Cystinosis Convention Travel Fund
Donation protected
My name is Mika Jayne Covington.
I am 27 years old and I live with cystinosis. I was diagnosed with cystinosis at around 10 months old.
Cystinosis is a very rare metabolic disease that causes cells to crystallize and die. Cystinosis slowly destroys the organs in the body including the kidneys, eyes, liver, lungs, muscles, and brain.
Recently, I decided to do more for the cystinosis community and therefore, I am volunteering with the Cystinosis Research Network (CRN) and joining the group Future by Design (FBD). FBD was created by cystinosis patients to help make the cystinosis journey easier.
FBD is a group of adults living with cystinosis who've come together to pave a brighter future for the children, teens, and adults touched by our rare disease.
One major project of FBD is our Outreach program that works to connect individuals and build relationships within the cystinosis community.
Along with my participation in FBD, I plan to continue to volunteer and work for progressive political change.
I plan to continue working to end anti-LGBTQIA+ bias and helping fill the education gap in Iowa on LGBTQIA+ issues and history. I plan to fight for Free College for All, Medicare for All, and transgender equality.
Volunteering on these issues takes time, effort, and money. One example is an upcoming conference with FBD in Philadelphia and I will need to pay for travel, lodging, and food. This is just one example of my need for support.
Therefore, I humbly ask you to make a small donation to help further my work on these causes.
My first fundraising goal is to raise $2,000. You can donate here or become a sustaining member of my work at my patreon page.
I am 27 years old and I live with cystinosis. I was diagnosed with cystinosis at around 10 months old.
Cystinosis is a very rare metabolic disease that causes cells to crystallize and die. Cystinosis slowly destroys the organs in the body including the kidneys, eyes, liver, lungs, muscles, and brain.
Recently, I decided to do more for the cystinosis community and therefore, I am volunteering with the Cystinosis Research Network (CRN) and joining the group Future by Design (FBD). FBD was created by cystinosis patients to help make the cystinosis journey easier.
FBD is a group of adults living with cystinosis who've come together to pave a brighter future for the children, teens, and adults touched by our rare disease.
One major project of FBD is our Outreach program that works to connect individuals and build relationships within the cystinosis community.
Along with my participation in FBD, I plan to continue to volunteer and work for progressive political change.
I plan to continue working to end anti-LGBTQIA+ bias and helping fill the education gap in Iowa on LGBTQIA+ issues and history. I plan to fight for Free College for All, Medicare for All, and transgender equality.
Volunteering on these issues takes time, effort, and money. One example is an upcoming conference with FBD in Philadelphia and I will need to pay for travel, lodging, and food. This is just one example of my need for support.
Therefore, I humbly ask you to make a small donation to help further my work on these causes.
My first fundraising goal is to raise $2,000. You can donate here or become a sustaining member of my work at my patreon page.
Organizer
Mika Covington
Organizer
Ankeny, IA
