Cancer Fund for Matt -AKA Karamoon
Matthew (AKA Karamoon) has terminal Stage 4 Cancer. The prognosis is the worst it could be - he may only have a few more months to live.
As you can imagine, our world is falling apart. We're scared of losing Matthew and devastated at the thought of his young children; Edward (8) and Jessica (3) growing up without him.
We've been given hope that "immunotherapy" can make him live longer. The initial cost is £15,000 but £95,000 in total.
We're desperately trying to raise funds so he may immediately start the treatment. We'll be immeasurably grateful if you can make a donation to help Matthew live longer.
Thank you from all those who know and love Matthew.
I've just had a meeting with my surgeon, Dr. Suzuki. The news is good and bad.
Yesterday's scans show a new tumour has appeared in my liver. The surgeon must take out my gallbladder to get to the tumour. Also, there is cancer near my portal vein. To prevent that part of my liver dying lots of healthy liver will be removed. So instead of losing 10-15% of my liver I will lose about 50%.
The good news is the cancer may not have spread to my kidney yet. Dr. Suzuki will still have to check during the surgery, but that part of the scan looked ok.
The hospital is great. The staff are very caring, and more relaxed than people in Tokyo. Everyone I've met here has a good sense of humour. The people in this area of northern Japan (Tohoku) have a reputation for being very tough and hardworking. I tend to ignore those kind of generalizations but this one does seem to be true.
It's hard to describe, but there is something very special at this hospital. It aims to bring the latest medical technology to the people of Japan but there's something more. It's not exactly confidence or optimism, but some kind of relentlessness in the pursuit of medical excellence. I'll try make a video about it when I get home in 3 to 8 weeks.
I'm writing this is my family's hotel room because I don't have Internet access in my hospital room. After my surgery on Monday I won't be able to give any updates or reply to messages for a couple of weeks. My wife will write some updates on Facebook.
Thank you for your support.
I’m going into hospital tomorrow. On Friday I’ll have some tests and a CT-scan. I’ll spend the weekend resting and the surgery will be on Monday.
I’ll probably be in hospital for 3-8 weeks. The aim of the surgery is to remove the cancerous part of my liver which could be 30-50% of the total liver. It looks like my right kidney and part of my diaphragm will be removed too.
I’m hoping there’s not much cancer in my kidney. It may be possible to just remove part of the kidney. Lots of people live well with one kidney. In my case it would hard because it means having a lower dose of chemotherapy. This will allow the cancer to take over my body quite quickly.
Although my situation is very bad the doctors still think I have a chance of living a bit longer. I’ll continue fighting until the end, which may be quite soon.
Thank you so much for your interest and support.
I suddenly had 3 pieces of devastating news at the end of June:
1. Proton beam therapy couldn’t destroy my tumours.
2. My chemotherapy is not working.
3. My cancer is growing very quickly.
This is the complete opposite of what all the doctors expected because my monthly cancer blood tests (CA19-19, CEA, CA125) have been so good all year.
I’ve seen this happen to lots of people over the past two years. Things are going well, then you don’t hear anything for a while, then you get the message from a member of their family saying they’ve died…
But I always thought I’ld be ok. I’ve been having multiple treatments to stop the cancer becoming chemo-resistant. But my cancer is just too tough.
I have one chemotherapy left to try but even if it works it would probably only work for a short time.
Instead of chemo I will have liver surgery. This will be very dangerous because 2 years of chemotherapy have damaged my body a lot.
The surgery will remove about 30% of my liver and maybe my right kidney and the right part of my diaphragm. The surgery could leave me quite disabled.
My immunotherapist has come up with a plan that could make the surgery safer, and make it work better:
1. NK-cell immunotherapy before surgery to prevent infections.
2. NK-cell immunotherapy after surgery to help me prevent the cancer spreading.
3. A personalised Dendritic cell immunotherapy trained with the cancer removed from my surgery.
This plan is expensive…
My surgery is on Monday, the 13th of August. The surgery is paid for by my Japanese National Health Insurance, but all the immunotherapy are not covered.
If you can share my fundraising link or make a donation it will help me a lot:
Thank you so much for your help.
always thinking about you and your family, thanks for the updates
How is Proton Beam Therapy going?
thanks for the update, it is encouraging to hear you are making progress.
Dear Matthew, you continue to be in our thoughts and these are very much with you for Thursday.
Vijaya and Ravi(Devika’s parents) would like to wish you all the very best with your treatment. Our hopes and prayers are with you and your family.
75GBP donated by our Japanese Raspberry Pi Users Group.
£50 Kenny Ishizaka
Dear Matthew, I'm so sorry to hear about your illness, as your mum sent me a letter, I was so shocked to hear, been thinking of you everyday. Do you rerember me taking you to school and Carla and I never forget ( as I always talk about the past) when you said I'm going to tell my mum and dad what you said I do not remember what was said I laugh about it now as that always stick in my mind it was so funny, that was when you were at the Avenues school. Our thoughts are with you and your family love Christine x
Dear Matthew, Jacky and I send our love and thoughts and wish you all the strength possible to get through this illness. I am so pleased to have seen you in Norwich in the summer. Your fellow campaigners from Norwich Stop the War send their wishes too.
Very sorry to hear of the pain you've been going through. If only I could lend some strength to help you! (Old TLUG connection here -- we rode the train to a meeting a couple of times.)
Sorry to hear you are in so much pain and discomfort and that the skin rash has come back with vengeance. Hope you have been able to spend some time with your mum and dad. What supplements can the doctors give you to provide nutrition? Thanks for keeping us posted.
Hello Matthew, Touched by your latest message and all that you are going through. Sending love and prayers. Alicia
I share my short animation for Matthew. https://www.youtube.com/watch?v=LvWm-enmBq4
Podcast is up for those who'd like to listen to Matthew describing what has been happening over the past month(s), what is to come, and where his mind and heart are these days. http://realitiespodcast.com/2016/rlts006
Hi Matt, Cell-Medicine, Inc http://www.cell-medicine.com/eng/ This is a special method for the treatment of cancer in Japan. This treatment in combination with the medicine of immune checkpoint inhibitor and autoimmune vaccine. You will receive consultation of treatment in Tokyo. 自家がんワクチン療法 http://cell-medicine.com/ これは日本の特殊な癌治療法です。 これは免疫チェックポイント阻害薬と自己免疫ワクチンを組み合わせて治療します。東京都内で治療の相談が受けられます。