Cancer Fund for Matt -AKA Karamoon
Matthew (AKA Karamoon) has terminal Stage 4 Cancer. The prognosis is the worst it could be - he may only have a few more months to live.
As you can imagine, our world is falling apart. We're scared of losing Matthew and devastated at the thought of his young children; Edward (10) and Jessica (5) growing up without him.
We've been given hope that "immunotherapy" can make him live longer. The initial cost is £15,000 but £95,000 in total.
We're desperately trying to raise funds so he may immediately start the treatment. We'll be immeasurably grateful if you can make a donation to help Matthew live longer.
Thank you from all those who know and love Matthew.
"Chemotherapy is killing me."
I've made a video about my new chemo. I answer 5 questions from friends.
(1) "How do they choose which chemo treatments to give you. Do you get a say in the matter?" - Tyler H.
(2) "How does this chemo differ from that you had before?" - David C.
(3) "Which tumours are being targeted, by which agent?" - Arka R.
(4) How many cycles is it until the results are known and you can review it's effectiveness? Also, another question I have for your video is around the children's understanding of the treatment and how they adapt to it's effects on you." - Edward P.
(5) "You mentioned in an earlier post that you’re giving talks to medical students to help them understand cancer from a patient’s point of view. What kind of information do you give them, and what are they most surprised to hear?" - Susannah H.
I’m still alive. But my chemo stopped working 7 months ago in July last year.
Without chemo the cancer seems to be growing and spreading; all recent blood tests have been bad but I’ll know more when I have my next scan later this month.
Neighbours tell me how healthy I’m looking now. It’s hard to explain to them it’s because I’m not having chemo, and the cancer is actually getting worse. People just don’t get it. They say "But you look fine, it's great!" This happens every time I manage to go for a walk…
My aim this year is to stay alive and give talks to medical students so they see cancer from a patient’s point of view.
Thank you for all the support you’ve given me in 2018.
I desperately need more immunotherapy.
Please share my fundraising page if you feel comfortable doing so:
You ok now, hope so, God Bless
Dear Matthew - I have just been listening to your New Year's message and I must say how much I admire how articulate and stout-hearted to are. I wish you and Chokako - and Edward and Jessica - all the luck in the world for 2019. Much love, Barbara Kirkaldy.
Had lunch towards the end of 2018 with your lovely mum and some more friends. You're both so strong, although I'm sure you don't always feel that. Keep hanging on in. Positive thoughts are with you.
Hope is life.
always thinking about you and your family, thanks for the updates
How is Proton Beam Therapy going?
thanks for the update, it is encouraging to hear you are making progress.
Dear Matthew, you continue to be in our thoughts and these are very much with you for Thursday.
Vijaya and Ravi(Devika’s parents) would like to wish you all the very best with your treatment. Our hopes and prayers are with you and your family.
75GBP donated by our Japanese Raspberry Pi Users Group.
£50 Kenny Ishizaka
Dear Matthew, I'm so sorry to hear about your illness, as your mum sent me a letter, I was so shocked to hear, been thinking of you everyday. Do you rerember me taking you to school and Carla and I never forget ( as I always talk about the past) when you said I'm going to tell my mum and dad what you said I do not remember what was said I laugh about it now as that always stick in my mind it was so funny, that was when you were at the Avenues school. Our thoughts are with you and your family love Christine x
Dear Matthew, Jacky and I send our love and thoughts and wish you all the strength possible to get through this illness. I am so pleased to have seen you in Norwich in the summer. Your fellow campaigners from Norwich Stop the War send their wishes too.
Very sorry to hear of the pain you've been going through. If only I could lend some strength to help you! (Old TLUG connection here -- we rode the train to a meeting a couple of times.)
Sorry to hear you are in so much pain and discomfort and that the skin rash has come back with vengeance. Hope you have been able to spend some time with your mum and dad. What supplements can the doctors give you to provide nutrition? Thanks for keeping us posted.
Hello Matthew, Touched by your latest message and all that you are going through. Sending love and prayers. Alicia
I share my short animation for Matthew. https://www.youtube.com/watch?v=LvWm-enmBq4
Podcast is up for those who'd like to listen to Matthew describing what has been happening over the past month(s), what is to come, and where his mind and heart are these days. http://realitiespodcast.com/2016/rlts006
Hi Matt, Cell-Medicine, Inc http://www.cell-medicine.com/eng/ This is a special method for the treatment of cancer in Japan. This treatment in combination with the medicine of immune checkpoint inhibitor and autoimmune vaccine. You will receive consultation of treatment in Tokyo. 自家がんワクチン療法 http://cell-medicine.com/ これは日本の特殊な癌治療法です。 これは免疫チェックポイント阻害薬と自己免疫ワクチンを組み合わせて治療します。東京都内で治療の相談が受けられます。