Cancer Fund for Matt -AKA Karamoon
Matthew (AKA Karamoon) has terminal Stage 4 Cancer. The prognosis is the worst it could be - he may only have a few more months to live.
As you can imagine, our world is falling apart. We're scared of losing Matthew and devastated at the thought of his young children; Edward (8) and Jessica (3) growing up without him.
We've been given hope that "immunotherapy" can make him live longer. The initial cost is £15,000 but £95,000 in total.
We're desperately trying to raise funds so he may immediately start the treatment. We'll be immeasurably grateful if you can make a donation to help Matthew live longer.
Thank you from all those who know and love Matthew.
Sadly lab analysis after the surgery showed I still have cancer in my abdomen, and as I have no good treatment options left I'm in real trouble.
Not giving up yet.
I've just had a meeting with my surgeon, Dr. Suzuki. The news is good and bad.
Yesterday's scans show a new tumour has appeared in my liver. The surgeon must take out my gallbladder to get to the tumour. Also, there is cancer near my portal vein. To prevent that part of my liver dying lots of healthy liver will be removed. So instead of losing 10-15% of my liver I will lose about 50%.
The good news is the cancer may not have spread to my kidney yet. Dr. Suzuki will still have to check during the surgery, but that part of the scan looked ok.
The hospital is great. The staff are very caring, and more relaxed than people in Tokyo. Everyone I've met here has a good sense of humour. The people in this area of northern Japan (Tohoku) have a reputation for being very tough and hardworking. I tend to ignore those kind of generalizations but this one does seem to be true.
It's hard to describe, but there is something very special at this hospital. It aims to bring the latest medical technology to the people of Japan but there's something more. It's not exactly confidence or optimism, but some kind of relentlessness in the pursuit of medical excellence. I'll try make a video about it when I get home in 3 to 8 weeks.
I'm writing this is my family's hotel room because I don't have Internet access in my hospital room. After my surgery on Monday I won't be able to give any updates or reply to messages for a couple of weeks. My wife will write some updates on Facebook.
Thank you for your support.
Hope is life.
always thinking about you and your family, thanks for the updates
How is Proton Beam Therapy going?
thanks for the update, it is encouraging to hear you are making progress.
Dear Matthew, you continue to be in our thoughts and these are very much with you for Thursday.
Vijaya and Ravi(Devika’s parents) would like to wish you all the very best with your treatment. Our hopes and prayers are with you and your family.
75GBP donated by our Japanese Raspberry Pi Users Group.
£50 Kenny Ishizaka
Dear Matthew, I'm so sorry to hear about your illness, as your mum sent me a letter, I was so shocked to hear, been thinking of you everyday. Do you rerember me taking you to school and Carla and I never forget ( as I always talk about the past) when you said I'm going to tell my mum and dad what you said I do not remember what was said I laugh about it now as that always stick in my mind it was so funny, that was when you were at the Avenues school. Our thoughts are with you and your family love Christine x
Dear Matthew, Jacky and I send our love and thoughts and wish you all the strength possible to get through this illness. I am so pleased to have seen you in Norwich in the summer. Your fellow campaigners from Norwich Stop the War send their wishes too.
Very sorry to hear of the pain you've been going through. If only I could lend some strength to help you! (Old TLUG connection here -- we rode the train to a meeting a couple of times.)
Sorry to hear you are in so much pain and discomfort and that the skin rash has come back with vengeance. Hope you have been able to spend some time with your mum and dad. What supplements can the doctors give you to provide nutrition? Thanks for keeping us posted.
Hello Matthew, Touched by your latest message and all that you are going through. Sending love and prayers. Alicia
I share my short animation for Matthew. https://www.youtube.com/watch?v=LvWm-enmBq4
Podcast is up for those who'd like to listen to Matthew describing what has been happening over the past month(s), what is to come, and where his mind and heart are these days. http://realitiespodcast.com/2016/rlts006
Hi Matt, Cell-Medicine, Inc http://www.cell-medicine.com/eng/ This is a special method for the treatment of cancer in Japan. This treatment in combination with the medicine of immune checkpoint inhibitor and autoimmune vaccine. You will receive consultation of treatment in Tokyo. 自家がんワクチン療法 http://cell-medicine.com/ これは日本の特殊な癌治療法です。 これは免疫チェックポイント阻害薬と自己免疫ワクチンを組み合わせて治療します。東京都内で治療の相談が受けられます。