Cancer Fund for Matt -AKA Karamoon
Matthew (AKA Karamoon) has terminal Stage 4 Cancer. The prognosis is the worst it could be - he may only have a few more months to live.
As you can imagine, our world is falling apart. We're scared of losing Matthew and devastated at the thought of his young children; Edward (8) and Jessica (3) growing up without him.
We've been given hope that "immunotherapy" can make him live longer. The initial cost is £15,000 but £95,000 in total.
We're desperately trying to raise funds so he may immediately start the treatment. We'll be immeasurably grateful if you can make a donation to help Matthew live longer.
Thank you from all those who know and love Matthew.
The story so far:
All the prep for Proton Beam Therapy went well!
My treatment started on Monday. I've had 5 sessions so far. I'll have another 33 sessions over the next 7 weeks.
Everything seems to be ok. Two PET (nuclear) scans have confirmed the targeting is perfect.
A minor complication has been a build-up of gas in my stomach. This is probably caused by the chemotherapy. If the gas builds up too much my stomach will push against my liver, moving the tumours. But the radiologist has given me 3 drugs to deal with the gas, and is confident they will work.
Few things make us happier than feeling gratitude to other people. I'm so grateful to you for your support and donations. Because of your support I'm getting the best possible treatment and, unbelievable as it sounds, I actually have a chance at curing my incurable, stage 4 terminal cancer...
Please share my donation link if you feel comfortable doing so. I need to pay for more treatment, accommodation and transport to the hospital:
The PET scan on Thursday showed my new (and very painful!) treatment has got the cancer under control again.
This means I can have Proton Beam Therapy(PBT) in March and April.
I have to continue chemo, hyperthermia therapy, molecular-targeted therapy and immunotherapy during the daily PBT so the treatment schedule is going to be quite punishing. But... It's a chance to live a lot longer. Years, not just months.
The PBT will cost around $27,000 so please share my fundraising link if you feel comfortable doing so.
Matthew "Not dead yet" Dons
Last week I met with the Proton Beam Therapy expert, Dr Murakami. He thinks I still have a chance...
I'm going to his treatment centre in Tohoku on Thursday to have a PET scan (a nuclear scan). If the results are good I'll start Proton Beam Therapy in March.
More news soon!
"Some good news, a thin sliver of hope?"
Yesterday my monthly cancer blood test showed the new treatment (Erbitux with 5FU) is working.
The side effects from Erbitux have been almost unbearable at times. I’ve been in horrific pain, and several times I’ve woken up covered in blood. It’s been very frightening for me and my family.
So hearing Erbitux is working gives me a much-needed boost to keep going.
“Working” in this context means it’s controlling (not curing) my stage 4 colon cancer. This is called “Palliative Intent”. Maybe it’s giving me a bit longer to live, to spend more time with my two children, Edward (8) and Jessica (4).
But… This drug may give me a chance to have Proton Beam Therapy, combined with intensive immunotherapy. The scientists I’ve talked to in Japan believe the combined treatment could cure my cancer. As far as I can tell, I’d be the first British person to have these combined treatments with “Curative Intent”.
I’m meeting the Proton Beam Therapy expert, Dr Muramami, tomorrow.
The therapy will cost around 32,000 US dollars so please share my fundraising link if you feel comfortable doing so.
More news to follow soon.
Thank you so much for you support and interest!
How is Proton Beam Therapy going?
thanks for the update, it is encouraging to hear you are making progress.
Dear Matthew, you continue to be in our thoughts and these are very much with you for Thursday.
Vijaya and Ravi(Devika’s parents) would like to wish you all the very best with your treatment. Our hopes and prayers are with you and your family.
75GBP donated by our Japanese Raspberry Pi Users Group.
£50 Kenny Ishizaka
Dear Matthew, I'm so sorry to hear about your illness, as your mum sent me a letter, I was so shocked to hear, been thinking of you everyday. Do you rerember me taking you to school and Carla and I never forget ( as I always talk about the past) when you said I'm going to tell my mum and dad what you said I do not remember what was said I laugh about it now as that always stick in my mind it was so funny, that was when you were at the Avenues school. Our thoughts are with you and your family love Christine x
Dear Matthew, Jacky and I send our love and thoughts and wish you all the strength possible to get through this illness. I am so pleased to have seen you in Norwich in the summer. Your fellow campaigners from Norwich Stop the War send their wishes too.
Very sorry to hear of the pain you've been going through. If only I could lend some strength to help you! (Old TLUG connection here -- we rode the train to a meeting a couple of times.)
Sorry to hear you are in so much pain and discomfort and that the skin rash has come back with vengeance. Hope you have been able to spend some time with your mum and dad. What supplements can the doctors give you to provide nutrition? Thanks for keeping us posted.
Hello Matthew, Touched by your latest message and all that you are going through. Sending love and prayers. Alicia
I share my short animation for Matthew. https://www.youtube.com/watch?v=LvWm-enmBq4
Podcast is up for those who'd like to listen to Matthew describing what has been happening over the past month(s), what is to come, and where his mind and heart are these days. http://realitiespodcast.com/2016/rlts006
Hi Matt, Cell-Medicine, Inc http://www.cell-medicine.com/eng/ This is a special method for the treatment of cancer in Japan. This treatment in combination with the medicine of immune checkpoint inhibitor and autoimmune vaccine. You will receive consultation of treatment in Tokyo. 自家がんワクチン療法 http://cell-medicine.com/ これは日本の特殊な癌治療法です。 これは免疫チェックポイント阻害薬と自己免疫ワクチンを組み合わせて治療します。東京都内で治療の相談が受けられます。