Cancer Fund for Matt -AKA Karamoon
Matthew (AKA Karamoon) has terminal Stage 4 Cancer. The prognosis is the worst it could be - he may only have a few more months to live.
As you can imagine, our world is falling apart. We're scared of losing Matthew and devastated at the thought of his young children; Edward (8) and Jessica (3) growing up without him.
We've been given hope that "immunotherapy" can make him live longer. The initial cost is £15,000 but £95,000 in total.
We're desperately trying to raise funds so he may immediately start the treatment. We'll be immeasurably grateful if you can make a donation to help Matthew live longer.
Thank you from all those who know and love Matthew.
"When I was diagnosed with cancer in July 2016, every piece of news was the worst it could be. Each scan, each test, each meeting brought more bad news.
At that time, the average survival for my type of cancer was 7-9 months with treatment, 3 months without treatment. (eg. if it turned out I had a weak heart and couldn't risk surgery)
Thanks to your donations, every treatment I've had so far have given the BEST POSSIBLE results. My surgery went smoothly. I had a great response to chemotherapy and molecular-targeted therapy. (FOLFOX with Vectibix). I hated that treatment because of the side effects. When I changed to a gentler treatment, I still got great results. (5FU with Avastin)
The immunotherapy has reduced a lot of the damage that chemotherapy usually causes. And it's been attacking the cancer "stem cells" (they are not really stem cells!) , which are believed to cause new tumours to form. (chemo can't kill them, except in the case of testicular cancer)
I have a whole-body CT scan next week. It's possible it will bring some bad news. But it's likely to be good news because all my recent cancer blood tests (CEA, CA19-9, CA125) have been great.
Thank you for giving me a second chance at life. It's amazing beyond words."
It's the 25th today.
I can live longer with a donation of 25 dollars or pounds towards the cost of my immunotherapy.
Over the next 2 months millions of my cancer cells will be dying because they were damaged by the 8 weeks of Proton Beam Therapy. Any immunotherapy I have now will make a big difference, adding many months or even a couple of years to my life. The immune cells see the dying cancer cells, so they know what to look for.
One treatment is about 3000 dollars. A huge amount. But immunotherapy teaches your immune system to fight cancer, so the effect can last many months.
Thank you so much for your support and interest!
The story so far:
All the prep for Proton Beam Therapy went well!
My treatment started on Monday. I've had 5 sessions so far. I'll have another 33 sessions over the next 7 weeks.
Everything seems to be ok. Two PET (nuclear) scans have confirmed the targeting is perfect.
A minor complication has been a build-up of gas in my stomach. This is probably caused by the chemotherapy. If the gas builds up too much my stomach will push against my liver, moving the tumours. But the radiologist has given me 3 drugs to deal with the gas, and is confident they will work.
Few things make us happier than feeling gratitude to other people. I'm so grateful to you for your support and donations. Because of your support I'm getting the best possible treatment and, unbelievable as it sounds, I actually have a chance at curing my incurable, stage 4 terminal cancer...
Please share my donation link if you feel comfortable doing so. I need to pay for more treatment, accommodation and transport to the hospital:
always thinking about you and your family, thanks for the updates
How is Proton Beam Therapy going?
thanks for the update, it is encouraging to hear you are making progress.
Dear Matthew, you continue to be in our thoughts and these are very much with you for Thursday.
Vijaya and Ravi(Devika’s parents) would like to wish you all the very best with your treatment. Our hopes and prayers are with you and your family.
75GBP donated by our Japanese Raspberry Pi Users Group.
£50 Kenny Ishizaka
Dear Matthew, I'm so sorry to hear about your illness, as your mum sent me a letter, I was so shocked to hear, been thinking of you everyday. Do you rerember me taking you to school and Carla and I never forget ( as I always talk about the past) when you said I'm going to tell my mum and dad what you said I do not remember what was said I laugh about it now as that always stick in my mind it was so funny, that was when you were at the Avenues school. Our thoughts are with you and your family love Christine x
Dear Matthew, Jacky and I send our love and thoughts and wish you all the strength possible to get through this illness. I am so pleased to have seen you in Norwich in the summer. Your fellow campaigners from Norwich Stop the War send their wishes too.
Very sorry to hear of the pain you've been going through. If only I could lend some strength to help you! (Old TLUG connection here -- we rode the train to a meeting a couple of times.)
Sorry to hear you are in so much pain and discomfort and that the skin rash has come back with vengeance. Hope you have been able to spend some time with your mum and dad. What supplements can the doctors give you to provide nutrition? Thanks for keeping us posted.
Hello Matthew, Touched by your latest message and all that you are going through. Sending love and prayers. Alicia
I share my short animation for Matthew. https://www.youtube.com/watch?v=LvWm-enmBq4
Podcast is up for those who'd like to listen to Matthew describing what has been happening over the past month(s), what is to come, and where his mind and heart are these days. http://realitiespodcast.com/2016/rlts006
Hi Matt, Cell-Medicine, Inc http://www.cell-medicine.com/eng/ This is a special method for the treatment of cancer in Japan. This treatment in combination with the medicine of immune checkpoint inhibitor and autoimmune vaccine. You will receive consultation of treatment in Tokyo. 自家がんワクチン療法 http://cell-medicine.com/ これは日本の特殊な癌治療法です。 これは免疫チェックポイント阻害薬と自己免疫ワクチンを組み合わせて治療します。東京都内で治療の相談が受けられます。