Maithili dipg brainstemtumor

€29,959 of €70,000 goal

Raised by 406 people in 21 months
Wij zijn Stefanie Rotsaert en Samuël Vanhille uit Assebroek, Brugge, belgium. Wij hebben een 13-jarig dochtertje, Maithili. Onze wereld stortte in toen er op 11 augustus 2016 bij onze dochter een hersenstamtumor ontdekt werd. We hebben het hier over ponsglioom, DIPG. Dit is een zeer zeldzame tumor die jaarlijks in België bij 2 tot 3 kindjes voorkomt. Deze tumor kan niet operatief verwijderd worden omdat die door alle levensnoodzakelijke zenuwen verweven zit. De prognose die de behandelende artsen ons gegeven hebben is slecht. Men gaf ons nog 3 tot maximum 9 maanden, waarvan de laatste periode constante aftakeling... Op 1 augustus 2018 om 18u58 is Maithili overleden. Dankzij jullie steun hebben we haar een comfortabele extra periode kunnen geven. Een periode waarin we haar hebben kunnen tonen dat ze ons meisje was en dat we gaat graag zagen... Jammer genoeg heeft ze het gevecht niet kunnen winnen... We willen iedereen nogmaals danken voor al jullie steun...❤❤❤
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Vrijdag krijgt maithili hier in Mexico haar 2de behandeling. Ze nemen vooraf een nieuwe mri-scan. We hopen dan al iets te zien. ..
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Juliette Lumeau
15 months ago
2
2

The translation: "We are Stefanie Rotsaert and Samuël Vanhille from Assebroek, Bruges, Belgium. We have an 11-year-old daughter, Maithili. Our world collapsed when on August 11th our daughter was diagnosed with brain stem cancer. The cancer in question is pontine glioma, DIPG. This is a very rare tumour that occurs in 2 to 3 children in Belgium each year. This tumour can not be surgically removed as it is intertwined with all vital nerves. The prognosis given to us by the treating doctors is bad... In September, she underwent radiotherapy, 13x heavy dose, 3G. The therapy has ensured that the growth of the tumour has stopped and her last MRI scan from mid-November showed that the tumour is stable. However, this is only temporary; we know that unless something is done, it will soon begin to grow again and there will be nothing more that can be done medically here in Belgium. The growth of the tumour will begin to press on vital nerves, causing paralysis, difficulty swallowing, respiratory problems... Her condition is stable now, but nobody here in Belgium is able to help us any further and the situation looks hopeless. Over the world, research is being conducted in some places and doctors are getting close to finding a treatment. However, this takes time and before adequate treatment is found, 1 to 2 years will have passed. Unfortunately, we do not have that much time left. We did, however, find Prof. Dr. Van Gool Stefaan and have consulted him. Mr. Van Gool has been researching brain tumour immunotherapy for many years, including brain stem tumours. 15 months ago, he began the treatment of children with a brain stem tumour in Cologne. He started with 14 children similar to our daughter and 13 of them are still alive. We have contacted parents in the United States whose children received the same diagnosis and are already being treated by Dr. Van Gool in IOZK in Cologne. All their tumours are stable and no longer grow. We realize that the tumour is inoperable, but this immunotherapy can stop its growth. After consulting our health insurance, we were notified that if we go abroad in search of treatment, there will be no coverage. All medical costs are to be paid by ourselves. The costs in question are as high as 50,000 to 70,000 euros. Although we both have stable incomes, this sum is too heavy to carry and impossible for us to afford. For that reason, we started a fundraiser. In this way, we can give our 11 year old daughter a chance to save her life. If you know as a parent that there is a chance to save what is most precious in your life, you have to take it... We hope you agree and are able to support us. our eternal gratitude... Sam and Stefanie" Help spread the word!

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Simon Pedersen
19 months ago
2
2

Could you translate to English?

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€29,959 of €70,000 goal

Raised by 406 people in 21 months
Created January 1, 2017
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€30
Anonymous
3 months ago
SV
€12
Sofie Vermeiren
3 months ago

Maithili, dapper meisje, geef de moed niet op! You're not alone. Vele groetjes.

€25
Rachel Smit
3 months ago
1
1

We denken aan jullie. Dikke knuffels van ons xxx

DZ
€50
Danny Zak
4 months ago

Sterkte voor jullie allemaal!

AK
€100
An De Keyser
4 months ago

Dag Stefanie, Sam en Maithili, we denken aan jullie en wensen jullie heel veel sterkte toe! Aron Steyaert en familie

Juliette Lumeau
15 months ago
2
2

The translation: "We are Stefanie Rotsaert and Samuël Vanhille from Assebroek, Bruges, Belgium. We have an 11-year-old daughter, Maithili. Our world collapsed when on August 11th our daughter was diagnosed with brain stem cancer. The cancer in question is pontine glioma, DIPG. This is a very rare tumour that occurs in 2 to 3 children in Belgium each year. This tumour can not be surgically removed as it is intertwined with all vital nerves. The prognosis given to us by the treating doctors is bad... In September, she underwent radiotherapy, 13x heavy dose, 3G. The therapy has ensured that the growth of the tumour has stopped and her last MRI scan from mid-November showed that the tumour is stable. However, this is only temporary; we know that unless something is done, it will soon begin to grow again and there will be nothing more that can be done medically here in Belgium. The growth of the tumour will begin to press on vital nerves, causing paralysis, difficulty swallowing, respiratory problems... Her condition is stable now, but nobody here in Belgium is able to help us any further and the situation looks hopeless. Over the world, research is being conducted in some places and doctors are getting close to finding a treatment. However, this takes time and before adequate treatment is found, 1 to 2 years will have passed. Unfortunately, we do not have that much time left. We did, however, find Prof. Dr. Van Gool Stefaan and have consulted him. Mr. Van Gool has been researching brain tumour immunotherapy for many years, including brain stem tumours. 15 months ago, he began the treatment of children with a brain stem tumour in Cologne. He started with 14 children similar to our daughter and 13 of them are still alive. We have contacted parents in the United States whose children received the same diagnosis and are already being treated by Dr. Van Gool in IOZK in Cologne. All their tumours are stable and no longer grow. We realize that the tumour is inoperable, but this immunotherapy can stop its growth. After consulting our health insurance, we were notified that if we go abroad in search of treatment, there will be no coverage. All medical costs are to be paid by ourselves. The costs in question are as high as 50,000 to 70,000 euros. Although we both have stable incomes, this sum is too heavy to carry and impossible for us to afford. For that reason, we started a fundraiser. In this way, we can give our 11 year old daughter a chance to save her life. If you know as a parent that there is a chance to save what is most precious in your life, you have to take it... We hope you agree and are able to support us. our eternal gratitude... Sam and Stefanie" Help spread the word!

+ Read More
Simon Pedersen
19 months ago
2
2

Could you translate to English?

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