Maithili dipg brainstemtumor
The translation: "We are Stefanie Rotsaert and Samuël Vanhille from Assebroek, Bruges, Belgium. We have an 11-year-old daughter, Maithili. Our world collapsed when on August 11th our daughter was diagnosed with brain stem cancer. The cancer in question is pontine glioma, DIPG. This is a very rare tumour that occurs in 2 to 3 children in Belgium each year. This tumour can not be surgically removed as it is intertwined with all vital nerves. The prognosis given to us by the treating doctors is bad... In September, she underwent radiotherapy, 13x heavy dose, 3G. The therapy has ensured that the growth of the tumour has stopped and her last MRI scan from mid-November showed that the tumour is stable. However, this is only temporary; we know that unless something is done, it will soon begin to grow again and there will be nothing more that can be done medically here in Belgium. The growth of the tumour will begin to press on vital nerves, causing paralysis, difficulty swallowing, respiratory problems... Her condition is stable now, but nobody here in Belgium is able to help us any further and the situation looks hopeless. Over the world, research is being conducted in some places and doctors are getting close to finding a treatment. However, this takes time and before adequate treatment is found, 1 to 2 years will have passed. Unfortunately, we do not have that much time left. We did, however, find Prof. Dr. Van Gool Stefaan and have consulted him. Mr. Van Gool has been researching brain tumour immunotherapy for many years, including brain stem tumours. 15 months ago, he began the treatment of children with a brain stem tumour in Cologne. He started with 14 children similar to our daughter and 13 of them are still alive. We have contacted parents in the United States whose children received the same diagnosis and are already being treated by Dr. Van Gool in IOZK in Cologne. All their tumours are stable and no longer grow. We realize that the tumour is inoperable, but this immunotherapy can stop its growth. After consulting our health insurance, we were notified that if we go abroad in search of treatment, there will be no coverage. All medical costs are to be paid by ourselves. The costs in question are as high as 50,000 to 70,000 euros. Although we both have stable incomes, this sum is too heavy to carry and impossible for us to afford. For that reason, we started a fundraiser. In this way, we can give our 11 year old daughter a chance to save her life. If you know as a parent that there is a chance to save what is most precious in your life, you have to take it... We hope you agree and are able to support us. our eternal gratitude... Sam and Stefanie" Help spread the word!