Hello my name is Madisyn Paige King. I am 19 months old. My battle all started, or so we thought, 2 1/2 months ago. Turns out I have been living with this my whole life. When I was 16 months old my mom started noticing me acting differently. I went from being such a happy little girl to always being cranky. I was drinking way to much water for my size, about 30-40 ounces during the night. No baby should be drinking that much during the night. I was also eating dirt, and other non food items. I started losing weight because I wasn't wanting to eat real food or drink my milk. I wanted water and lots of it. So mommy started getting really worried and started asking around and telling people about how I was acting. They all told her to get me checked out. So my mama did just that. She took me to my dr and they did some blood tests on me which didn't really show much except my iron was low. I guess that is why I liked dirt so much. Mom was tired of waiting to hear back from my dr on when they could get me into the nephrologist, that's just a fancy word for kidney dr. So going with her mommy feeling, she knew whatever was wrong with me COULD NOT WAIT. So after she got off work on Friday July 17th she brought me to Phoenix Children's Hospital. We went through the ER and they asked my mama what was wrong with me. Mom didn't know what to say except "my baby is sick. She has been throwing up, very lethargic and has lost weight". As she was fighting back the tears, I knew she was scared but she knew I was in good hands now and they would find out why I didn't feel good. It was a very long night. I had to go get a picture taken of my tummy to see if I was having problems pooping, as they assumed. Mom knew that wasn't why I wasn't feeling good so she asked them to test my pee. So they did. We waited awhile, finally they came back. Mom was so tired, but they told her we were getting admited because I had protein in my urine. They wanted to do more labs and they wouldn't be done till morning sometime. They needed a set of vitals before they sent us to my room so they put this thing on my arm and it hurt. It wasn't registering on the machine. They thought their machines were just acting funny. I really wish they were just "acting funny" but my blood pressure was 223/130. They tried 4 different machines and tried manually and finally noticed it was my real blood pressure. Everything went pretty fast after that. They knew I needed medicine and needed it quick. They took me for an ultrasound and while I was down there my ICU nurse met us. We got half way done with that before they knew I couldn't handle anymore of it. So off to the MRI I went. We waited two long hours there before they told us it wasn't safe to get it done with how high my blood pressures were and that it had to be put off till we could get them under control. They took me up to ICU where they started me on medicine to slowly bring my pressure down. They kept me sleeping most of the time and when I would start waking up all I wanted was my mom and I let the whole floor know it too with my powerful lungs. The next few days consisted of many more tests. I had more ultrasounds, echo cardio grams, MRI, lots and lots of blood work, a couple IV's they finally put a picc line in, I had it for 2 days and they had to take it out because I got a blood clot from it. So now I'm dealing with high blood pressure, a blood clot and I'm in pain and no one knows where or why. My first echo showed my left ventricle wall has thickened from the high blood pressure. They have been keeping an eye on that as well. Finally the day comes where my blood pressure is at a stable enough level to get a renal angiogram. It was Wednesday July 22nd I went in for the procedure at 1045. Mom and dad went back to my room to wait. 2 very long hours later I was back in my room with them everything went well. Now to wait for the dr to tell us what is wrong...... She gets to the room and asks my mom to go look at some pictures. She shows her how healthy my right kidney is and then shows her my left one and how it is short and very very thin. It wasn't producing much of anything. My right one has been over working this whole time while lefty has kicked back. Well dr said it's safer for them to remove it, so that there is no chance of me going into renal failure. My right one is healthy enough to take on both rolls. So when they can finally get my blood pressure lowered more and see how I do taking the oral blood pressure medication, they will see when I can have surgery to remove it. It can be this stay or in a few weeks. This has already been a long journey for me and I still have a ways to go. But I am ready to be back to being a kid again and being happy. Thank you for reading my story.