Madi Moves Ahead

$181,697 of $140,000 goal

Raised by 744 people in 18 months
THANK YOU SO MUCH FOR HELPING MADISON AND PLEASE READ ON TO SEE HOW YOU CAN HELP OTHER CHILDREN LIKE MADISON.

Because of your overwhelming generosity, 3 year old Madison will have her SDR surgery in St Louis in May and she will be fully supported with the special equipment and year-long rehabilitation that will make her dream of walking independently come true . We are so very thankful to each and every one of you for your support and willingness to be part of Madison's journey and for making it possible to exceed our goal of raising $140,000. We made a promise at the start of this campaign to share any excess funds, beyond that which Madison will need, with other families who are on the same journey. With your unwavering support and the amazing media attention that culminated in receiving OHIP funding for Madison's surgery cost, we can now fulfill this promise in a significant way. We will be forming an independent committee to help direct the excess funding. We expect to be able to do that after our return from St. Louis. In the meantime, please continue to support these other families and their children by donating to Madison's campaign or by donating directly to any of the Ontario SDR GoFundMe campaigns. Thank you so much for your generosity and for supporting Madison and the other children. We are forever grateful.

Toronto Sun Article:
http://m.torontosun.com/2017/02/23/madi-leads-the-charge

CTV News
http://www.ctvnews.ca/mobile/video?playlistId=1.3299108

Global News
http://globalnews.ca/video/3269560/fight-for-out-of-country-surgery-for-kids-with-cerebral-palsy-gains-momentum

CP24 video from Queens Park
http://www.cp24.com/mobile/news/ohip-to-fund-child-s-u-s-surgery-but-many-other-kids-left-stranded-1.3299273

CBC News
http://www.cbc.ca/beta/news/canada/toronto/madison-ambos-ohip-coverage-1.3995824





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HELP 3-YEAR OLD MADISON AMBOS GET LIFE  CHANGING SURGERY!

We're trying to raise $140,000 to help pay for a life-changing surgery that will help Madison learn to walk independently!


Meet Madison!
She is a typical, 3-year-old who loves playing with her baby brother Jack, going to pre-school with her friends, swimming, visiting the zoo and riding her therapeutic horse Sassy! She brings joy to everyone she meets with her infectious smile and easy going personality. Madison was also born with Cerebral Palsy: damage to the brain sometimes caused by lack of oxygen before or at birth which impacts muscle tone and impairs muscle coordination in both her legs and arms.

Madison’s form of Cerebral Palsy is called Spastic Diplegia, and is something she’ll live with her
whole life. She’s worked diligently to improve her movement by focusing hard and building strength with her physiotherapists and other therapists, but she still relies on a walker to help her get around.
Recently we found out there is a way to help her walk independently and drastically improve her quality of life!

Why We Need Your Help
Madison is an excellent candidate for Selective Dorsal Rhizotomy (SDR) surgery and has been accepted by Dr. T.S. Park at St. Louis Children’s hospital in the spring, 2017. 
Dr. Park’s predictions for Madison are: better balance, transitions will be easier and faster, her spasticity will be permanently reduced, her level of comfort will improve, her sitting and standing postures will also improve.
Dr. Park feels that Madison will be able to walk independently in all environments.
This is such exciting and inspiring news! We’re very excited about Madison’s future but we’re facing one barrier: OHIP won’t pay for the surgery because no doctor in the province will sign a consent form to approve it. That’s where you come in.

What We Need
Total costs are over $140,000. We’re trying to raise funds to help pay for: the surgery, equipment for the home, physiotherapy both before and
after the surgery, accommodation in St. Louis, travel costs and other costs associated with Madison’s journey.

About The Ambos Family
Giving back and paying it forward are very much a part of Madison's family. Her parents, Katherine and James Ambos have been very involved with the community through James' volunteer work with Police Services and Katherine's work coaching children with special needs.
In fact, they met working at Variety Village.
Shortly after, Katherine underwent surgery as a liver
donor for her mother and married James in October, 2012. A year and a half later, Madison was born prematurely and 13 months later was diagnosed with cerebral palsy, and while her diagnosis was unrelated to Katherine’s organ donation, the news was heartbreaking.
It would be understandable that this devastating news might have hindered their volunteer activities but they have continued to contribute to their community and the causes they care about: Beadonor. ca, March of Dimes, Variety Village, and Grandview Children’s Centre.
They actively support awareness and raise funds for programs and never hesitate to involve their family, including Madison, in these inspiring activities.

Giving Back
It is our hope that many others will join us in helping Madison and her family through this journey. Katherine and James have met many other parents in Ontario who are on a similar path and it is their wish to help these families if they can. It is our pledge that any funds
contributed beyond that which they need will be donated to another family who are on the same journey.

Your support will help this amazing little girl to achieve independence throughout her life and allow her to be everything she wants to be, and more.

Thank you for your consideration and support and if you are interested in continuing to follow Madison in her adventures, please check out our daily blog:
www.madimoves.com

Madison’s Families



More About SDR Surgery
SDR (Selective Dorsal Rhizotomy) surgery was pioneered by Dr. Park at the St. Louis Children’s Hospital and he’s the world leader in performing this procedure. It involves surgically entering the spine to remove a portion of one vertebrae and stimulating the nerves to determine which are causing the muscle tightness associated with Cerebral Palsy and cutting those nerves. The tightness is what can deform the bones as the child grows and this surgery will hopefully ensure that Madison avoids other painful and invasive surgeries down the road, along with giving her more independent movement.

For more information about St. Louis Children’s Hospital and SDR surgery, please check out the following link:
http://www.stlouischildrens.org/sites/default/files/services/cerebral_spasticity/files/SDRbrochure_final.pdf

Global News has run stories trying to help families get the answers they need.
http://globalnews.ca/news/2170390/families-fighting-for-childrens-surgery-rejected-by-ohip/

For updates on Madison’s journey and to spread the word:
#madimovesahead
#sdrchangeslives

Check out the different organizations that support Madison with her family and all her therapies.

http://www.varietyvillage.ca

http://grandviewkids.ca

https://www.marchofdimes.ca/EN/Pages/default.aspx

For those people interested in receiving a tax receipt for donations up to $10,000 please visit:
http://www.handicareintl.org/SDR/Registration.php

Connect with us on facebook:
https://www.facebook.com/madimovesahead/
+ Read More
We wanted to update everyone on how Madison has been doing and plans coming up in the next few months with the guidance from Dr. Park and his team.

After submitting close to 40 videos and notes and measurements from various therapists, Dr park and his team have reviewed Madi's progress to date and have sent us recommendations now that Madison is almost 10 months post op. They are very pleased with her progress. She is on track with all of his predictions for her. She will continue to do serial casting on her left leg every few months in addition to her night time brace to help continue encouraging her short muscles in her legs to stretch out naturally. She will continue with her therapy as scheduled, with more focus now on using single point canes, independent walking and building endurance. She will continue to use solid, high AFO's to help build distance of walking with no crouched gait and build her confidence. Her new SMO's are currently being made and she will only use them in strength building activities. She will continue to use her walker only for longer distances and for outside play. Her tripod canes will be her sole method of support, then eventually switch to her single point canes when ready.

Madison will be travelling to St. Louis in May for her 1 year visit with Dr park and participate in a full physio evaluation to compare her current abilities to those of 1 year ago. While in St. Louis she will be doing some physio in their clinic and will also meet with Dr. Dobbs (orthopedic surgeon) who will evaluate her for a (to be determined)muscle lengthening surgery called PERCS.

We are absolutely thrilled with the progress Madison has made since having her surgery. She is almost 10 months post op and is taking many many independent steps, is stronger, more coordinated, has better balance and most importantly is pain free and is happy. The little things we have noticed change with is her speech and fine motor skills. Her volume of voice has become louder and more clear and she is able to be more articulate and speak in longer phrases. She has excellent fine motor control with things like her printing, tracing, threading and doing self help skills like brushing her hair, brushing her teeth and learning to dress herself. She can now sit independently in multiple positions and on different types of surfaces like benches or stools that offer little support. She is also able to walk up and down stairs or ramps holding onto a railing. While standing, she can also bend down to pick something up from the floor and then stand back up. There have been so many changes! We can't wait to see what comes next!

We want to send out a big thank you to all of our supporters! Without you, these last 10 months would not have been possible. Since Madison's return from surgery she has done close to 400+ hours of therapy and is moving mountains! A big team of family and friends have helped us take her to appointments, manage home life and have helped with a successful transition to JK and for Mommy being back at work - Thank you!!!

Here's what's coming up next for Madison in the next 4 months:

-Serial casting in March
-March Break Camp at March of Dimes
-3 week intensive therapy course with Mike Poole in April
-St. Louis 1 year post op visit in May
-3 week intensive therapy course at the NAPA center in Boston in July

Thanks to all of our family and friends who were so generous with their fundraising efforts, we are able to provide Madison with all of these amazing opportunities to help her continue to progress. In addition to all of Madison's support, Madi Moves was able to help other kids on the same journey. Some of the money raised in Madison's campaign went towards bringing Mike Poole to Toronto to work with Madison and 7 other children. Madison continues to be involved with other kids campaigns and advocate for SDR to help get the right information out there for other families based on our personal experiences. Other private donations were made to support families with their fundraising initiatives such as silent auctions and Go Fund Me campaigns. Once we have a better idea of the need for muscle lengthening surgery, we will know how we can continue to support other kids like Madi.

Thanks for following along on one of the most incredible, memorable years for Madi! We stay committed to updating all of you and will do our best to continue posting Madison's journey as much as we can. Xoxo.
+ Read More
THANK YOU SO MUCH FOR HELPING MADISON AND PLEASE READ ON TO SEE HOW YOU CAN HELP OTHER CHILDREN LIKE MADISON.

Because of your overwhelming generosity, 3 year old Madison will have her SDR surgery in St Louis in May and she will be fully supported with the special equipment and year-long rehabilitation that will make her dream of walking independently come true . We are so very thankful to each and every one of you for your support and willingness to be part of Madison's journey and for making it possible to exceed our goal of raising $140,000. We made a promise at the start of this campaign to share any excess funds, beyond that which Madison will need, with other families who are on the same journey. With your unwavering support and the amazing media attention that culminated in receiving OHIP funding for Madison's surgery cost, we can now fulfill this promise in a significant way. We will be forming an independent committee to help direct the excess funding. We expect to be able to do that after our return from St. Louis. In the meantime, please continue to support these other families and their children by donating to Madison's campaign or by donating directly to any of the Ontario SDR GoFundMe campaigns. Thank you so much for your generosity and for supporting Madison and the other children. We are forever grateful.

Durham Region News Article:
http://m.durhamregion.com/news-story/7176436-ohip-to-cover-pickering-tot-s-costly-u-s-surgery

Toronto Sun Article:
http://m.torontosun.com/2017/02/23/madi-leads-the-charge

CTV News
http://www.ctvnews.ca/mobile/video?playlistId=1.3299108

Global News
http://globalnews.ca/video/3269560/fight-for-out-of-country-surgery-for-kids-with-cerebral-palsy-gains-momentum

CP24 video from Queens Park
http://www.cp24.com/mobile/news/ohip-to-fund-child-s-u-s-surgery-but-many-other-kids-left-stranded-1.3299273

CBC News
http://www.cbc.ca/beta/news/canada/toronto/madison-ambos-ohip-coverage-1.3995824

















http://m.durhamregion.com/news-story/7094606-high-cost-for-u-s-surgery-proving-barrier-for-pickering-tot-with-cerebral-palsy

http://www.cbc.ca/beta/news/canada/toronto/surgery-may-help-madison-walk-on-her-own-but-it-s-not-offered-in-toronto-1.3970586


http://www.cbc.ca/player/play/872988739986


http://toronto.ctvnews.ca/mobile/video?clipId=1053873&playlistId=1.3278096&binId=1.815892&playlistPageNum=1&binPageNum=1#_gus&_gucid=&_gup=Facebook&_gsc=uZ7XFBW
+ Read More
THANK YOU SO MUCH FOR HELPING MADISON AND PLEASE READ ON TO SEE HOW YOU CAN HELP OTHER CHILDREN LIKE MADISON.

Because of your overwhelming generosity, 3 year old Madison will have her SDR surgery in St Louis in May and she will be fully supported with the special equipment and year-long rehabilitation that will make her dream of walking independently come true . We are so very thankful to each and every one of you for your support and willingness to be part of Madison's journey and for making it possible to exceed our goal of raising $140,000. We made a promise at the start of this campaign to share any excess funds, beyond that which Madison will need, with other families who are on the same journey. With your unwavering support and the amazing media attention that culminated in receiving OHIP funding for Madison's surgery cost, we can now fulfill this promise in a significant way. We will be forming an independent committee to help direct the excess funding. We expect to be able to do that after our return from St. Louis. In the meantime, please continue to support these other families and their children by donating to Madison's campaign or by donating directly to any of the Ontario SDR GoFundMe campaigns. Thank you so much for your generosity and for supporting Madison and the other children. We are forever grateful.

Toronto Sun Article:
http://m.torontosun.com/2017/02/23/madi-leads-the-charge

CTV News
http://www.ctvnews.ca/mobile/video?playlistId=1.3299108

Global News
http://globalnews.ca/video/3269560/fight-for-out-of-country-surgery-for-kids-with-cerebral-palsy-gains-momentum

CP24 video from Queens Park
http://www.cp24.com/mobile/news/ohip-to-fund-child-s-u-s-surgery-but-many-other-kids-left-stranded-1.3299273

CBC News
http://www.cbc.ca/beta/news/canada/toronto/madison-ambos-ohip-coverage-1.3995824

















http://m.durhamregion.com/news-story/7094606-high-cost-for-u-s-surgery-proving-barrier-for-pickering-tot-with-cerebral-palsy

http://www.cbc.ca/beta/news/canada/toronto/surgery-may-help-madison-walk-on-her-own-but-it-s-not-offered-in-toronto-1.3970586


http://www.cbc.ca/player/play/872988739986


http://toronto.ctvnews.ca/mobile/video?clipId=1053873&playlistId=1.3278096&binId=1.815892&playlistPageNum=1&binPageNum=1#_gus&_gucid=&_gup=Facebook&_gsc=uZ7XFBW
+ Read More
Read a Previous Update
Liz Hutton
15 months ago

I have shared Madi's story among my friends on 2 different Facebook accounts , in my Save Zuma Blitz group with 1000 members and pinned Madi 's battle on Twitter. My heart is absolutely breaking because no child should have to endure the pain which Madi has. She is such a beautiful , happy little girl. Sending all of my prayers and lots of love.

+ Read More
Danny Cummings
15 months ago

My heart goes out to precious little Madison and I really hope the surgery is a success. I do want to say, though, that I am absolutely disgusted that not a single doctor here in Ontario would sign a consent form for this poor, suffering little girl to get the surgery she needs, which is clearly unavailable here. How could they refuse to simply put pen to paper for her? A couple of years ago, before "GoFundMe" existed, what would you have done? Sure, you could hold fundraisers, but that's a lot of time, effort and money. It also limits the donations to locals, for the most part. Now, you've got people all over the country, and the world, donating to help Madison. But if you didn't, these doctors refusing to sign a consent form could have been responsible for the deterioration of her health. Make sure they know that. I'd let the newspapers know too. Canadians should know this about our doctors.

+ Read More

$181,697 of $140,000 goal

Raised by 744 people in 18 months
Created November 12, 2016
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$100
Anonymous
5 months ago
SM
$600
Softball Tournament Organized By Malcolm Murchie
7 months ago (Offline Donation)
IP
$500
ILOVESPORTS SLO PITCH
12 months ago (Offline Donation)
VM
$500
Vedesh Maharaj
12 months ago (Offline Donation)
$100
Anonymous
12 months ago
GM
$300
Garry Morrison
14 months ago

Good Luck in St.Louis; all the best from Garry, Aggie, Kelly and Lena Morrison!

MP
$14,225
Madi's Paddy Day Party
14 months ago (Offline Donation)
SA
$1,000
Scarborough Mixed Slo Pitch Association
14 months ago (Offline Donation)
Liz Hutton
15 months ago

I have shared Madi's story among my friends on 2 different Facebook accounts , in my Save Zuma Blitz group with 1000 members and pinned Madi 's battle on Twitter. My heart is absolutely breaking because no child should have to endure the pain which Madi has. She is such a beautiful , happy little girl. Sending all of my prayers and lots of love.

+ Read More
Danny Cummings
15 months ago

My heart goes out to precious little Madison and I really hope the surgery is a success. I do want to say, though, that I am absolutely disgusted that not a single doctor here in Ontario would sign a consent form for this poor, suffering little girl to get the surgery she needs, which is clearly unavailable here. How could they refuse to simply put pen to paper for her? A couple of years ago, before "GoFundMe" existed, what would you have done? Sure, you could hold fundraisers, but that's a lot of time, effort and money. It also limits the donations to locals, for the most part. Now, you've got people all over the country, and the world, donating to help Madison. But if you didn't, these doctors refusing to sign a consent form could have been responsible for the deterioration of her health. Make sure they know that. I'd let the newspapers know too. Canadians should know this about our doctors.

+ Read More
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