Anderson's Medical Expenses
Best guess is he’s fighting something viral and respiratory. He had been working hard with his belly to breathe. So hard in fact that he not only was requiring extra o2, but he popped the balloon on his g-tube, making a bit of a mess and causing some fuss. We temporarily replaced it with a smaller one, but peds surgery had to put the right size one back in the next day when all was said and done. Hoping it heals up quickly and we don’t have the issues we used to have after so much action!
He also developed this “cool” bump on his neck that’s in the pictures that’s assumed to be lymph fluids that aren’t draining. Nothing to do for that one right now but wait anyway.
AND, as we celebrated leaving PICU yesterday, his IV infiltrated and he ended up with not only a big fluid filled foot, but had to have the PICU team come back down to poke him again, on the other foot, to get it put back in place.
I had told AJ that the rule was he couldn’t pick up anymore bugs while he was there. Next time I’m going to be more clear that he’s not allowed to pick up anymore bugs OR develop anymore complications!
He looks so big just hanging out watching the iPad. He’s not my little baby anymore!
We are still waiting for a room for a bit, so far it looks like there is a bit of pneumonia involved - beyond that we’re just waiting for the rest of his labs/cultures and starting antibiotics and fluids...
He hasn’t slept much — 10 pm - 1 am maybe? And even then it was restless. But he’s happy to be sitting in the bed practicing his signs. I’m about ready to crawl in bed with him to nap though!
Praying this is a short and sweet visit and that we don’t pick up any secondary bugs while we’re here!
Perhaps the reason he has a hard time sleeping is it is too quiet. Hospitals are not know for being quiet, even at the best of times, with all the monitors, nurses checking in, etc. Maybe turn on a radio. Even without the hospital situation it seemed to help my two go to sleep. Martin.
Hey Amber, I'm Tina, and I work for hibu as a Premise Sales Rep in Macon , Ga. I have been following AJ since you subscribed to gofundme. I just wanted you to know that prayers are constant, and I think you are an awesome mother of two adorable children. I cannot possibly imagine how hard this has been for your entire family. Praises for good days, and prayers for bad days.
Amber, I don't know you personally but I work for hibu. I'm a sales rep in North Carolina. Since the day the message went out to all of us about your situation, I sent a financial support but I have also sent prayers and cried tears with you! I think about you often and I read every single update that is posted. I will not stop praying for all of you! Love and prayers! Shondra Grant
We've posted this on our Facebook page (Irish Philadelphia) and we may have some help for them in terms of lodging. In the meantime, they can check this website someone posted. They do lodging for patients in Philadelphia. http://www.hostsforhospitals.org/website/