Lyme disease treatment

$2,500 of $14,000 goal

Raised by 26 people in 32 months
Jeannette Jeannette  ORLANDO, FL
It has been a difficult choice to come forward and explain to everyone why I decided to sign up for "Go Fund Me". At this time I am forced to reach out and raise money for the treatment of my chronic Lyme disease.

I have Cronic Lyme disease and I suffer  from many Lyme symptoms, such as extreme chronic fatigue, cognitive impairment, joint pain, mood swings, muscle pain, and neurological problems. Many days I feel like my head is in a cloud and I am disoriented. I wake up with severe joint stiffness and numb hands. There have been many weeks when I am in bed one to two days at a time from the pain and fatigue I experience through out my body.

The first basic treatment was rounds of antibiotics that only seemed to help for a short time. I have located a Lyme specialist in Clearwater, FL. He is extremely knowledgable when it comes to treating Lyme disease  & terminally ill cancer patients. His consultation fee is $350.00 which I have managed to save and will be seeing him June 15, 2016. At that point there will be extensive testing to tailor a treatment for me. The testing, I am told will be in a range of $4,000. plus. The monthly treatment will be over $4,000. and could take several months. Unfortunately this type of treatment is not covered by the insurance I carry.
if you would like to checkout the Dr. you can search life works wellness center in Clearwater, FL. 

I am sure you can imagine having any type of disease can make a person feel helpless and dramatically changes one's life and out look. My family is not close by but I have a few great friends and a roommate that helps me with my four year old daughter. I am a single mom, I receive sporadic child support and at this time can no longer work. I desperately want to be a mom and get the life back I once had.

Any donation is greatly appreciated! May you and your family be well.

Please reach out to me with any questions.

Thank you
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Update 9
Posted by JEANNETTE ARMSTRONG
11 months ago
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just a quick update but things have been so hectic. We have finally moved, We lost 3 cats during the move. It was so strange and sad. Each one disappeared a different way. But we are so happy to be out of that moldy house and scary neighborhood. I have also noticed a little increase in my energy levels. I don't think I realized how much the mold in that house was actually effecting me. Where we live now is much much smaller but its very quiet and peaceful. We went from prob over a hundred cars an people a day passing in front of our home to maybe 10 cars a day now. I think i've heard sirens once since last Halloween. Each day is a struggle but we are getting through it. I continue to battle the brain fog and forgetfulness. last October I had 2 new moles appear on my back and 1 on my neck. One on my back was itching like crazy, but with moving I had to ignore it. The day before thanksgiving I was finally able to have them removed. Turned out the one on my neck was a severe Dysplastc Nevus. They removed a larger margin, stitches come out next week. Since then i now had a 4th pop up. I also had a patch of pigment turn dark on my ankle. The Dr said its from my auto immune disease. My body attacked healthy cells. Dr said it may never go back to normal. One day at a time I guess. I did the 23 & me genetic test. It was so informative. I learned I have the MTHFR gene mutation, and this could be part of the reason I have not been getting better. On a plus note I learned through the DNA testing that i had a nephew our family had never met or known about. My brother had an 18yr old son! We are all excited and welcomed him to our family. Anyway we are just trying to settle in and focus on keeping stress down. Thanks for everyone's continued support. THis have been hard lately and I have been feeling so alone, Moving to a new area and not having any friends here is somewhat depressing but I have my amazing daughter who always cheers me up. My aunt Joy passing away this last year has been on my mind a lot lately. She was my biggest supported and I can not express how much i miss her. Her pep talks made a huge impact on me.
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Update 8
Posted by JEANNETTE ARMSTRONG
16 months ago
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I just wanted you all to know we made it through hurricane Irma. We have a 5 trees down, 3 parts of the fence down and we lost 1/2 my daughters play house. But other than that we are okay. Still have no power. Preparing for the hurricane was extremely difficult. Luckily I had help. But I still pushed myself so hard. I accomplished more than I thought I could. Now Day 2 after the hurricane and I can hardly move. I am physically exhausted. The pain in unbearable. I have been crying and doing my best to recover, But I also have a sense of accomplishment for what I did. I am so tired of being sick. I miss my old life. It's time to kick Lymes but and find a treatment that helps. I can't live like this any longer.
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Update 7
Posted by JEANNETTE ARMSTRONG
16 months ago
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It's been a while so here goes. The ozone treatments that I started at home we're not making huge improvements. I had even started IV home treatments. in my Lyme group discussing my treatment has been an open conversation. One thing that was that I had 14 amalgam fillings in my mouth leaking mercury. I found a bio Dentist and replaced with porcelain. I need to follow up with Andy Cutler chelation protocol. The packing to get rid of excess stuff to sell for money has been extremely difficult and slow. I have continually pushed myself through the pain day after day. The stress of this all and the Lyme disease progressing is overwhelming. I have a lot of days that I can barely move but I still get up and I force myself to get something done, even if its only 5 minutes. I have attempted to hire people, I have not been able to find anybody on a permanent basis. Some of these people have even stolen from me as I have been forced to basically trust strangers. Also the added stress and the neurological Lyme has triggered narcolepsy. This was extremely scary as it had never happened to me in my life. My doctor wants to send me to a sleep study. I'm hopeful we find some answers. I need to wait for the insurance referral. This will help diagnose the narcolepsy and find out more of how to treat it. I quit driving due to four minor accidents in one month. Luckily they were all very close to home and no major damage, 3 bumper taps at red lights where i had sleep attacks and rolled into the car in front of me and one hitting a pole in a shopping ctr. Hopefully my next step will be trying the Andy Cutler Chelation to remove the mercury from my body and brain, & the sleep study. we will be attempting to kill the Lyme bacteria and co-infections naturally. I have been trying to save every penny I can and sell as much as I can and to downsize. We also learned two months ago when the bathroom floor was replaced that it was completely infested under the floor with black mold. Over 10 x 7 area. Living in black mold is extremely bad for you. I am determined to get my health back. Amberlee is what gives me my strength to continue to fight this. There are many days that I want to just lay down and give up. The constant pain that I feel and lack of energy sometimes is so overwhelming that I literally want to just curl in a ball and cry and do sometimes. I have recently thought that if somebody told me I will cut off your arm but in exchange for your arm you can have your health back I would trade it in a heartbeat. I do not wish this disease on anybody. I knew nothing about Lyme disease until I got sick. I'm waiting for my 23 and me genetic results. This is exciting. I'm also waiting for the results of a hair test that was done to determine toxins that I have been exposed to and mold. I recently tested positive for high levels of arsenic and lead. I have no idea how I was exposed to arsenic. I do not drink the tap water. So this is where we are at currently. I have been doing research on which herbs to take, and how to find a way back to the old me. Unfortunately as always the hardest problem has been raising money for treatment. My insurance will only cover antibiotics and you can only take that for so long before they are no longer effective. I've taken numerous rounds of antibiotics. I recently started on Lyrica and I have noticed an improvement with the chronic pain and my back/neck pain. I have been eating the Paleo diet. My cousin has battled Lyme disease for many years and I have learned a lot from her and her mother. My Aunt Joy was my only relative in Florida and was extremely knowledgeable with Lyme. She just passed away unexpectedly and I miss her dearly. She was a very strong supporter of me. She was always pushing me to never stop trying to get better and never give up for myself and for my daughter. So once again I have reached a point where I must keep fighting to get better. I hate living on so many pharmaceutical's. Recently I have not been getting better. I am getting worse, the new knowledge of the mold, the narcolepsy and car accidents have scared me tremendously and have motivated me to get back into fighting mode. But to do this I need financial assistance to help pay for treatments and natural supplements that insurance will not cover at all. I will continue to update and let you know how the sleep study goes, and the chelation. I appreciate that most of my family has continued to be somewhat verbally supportive even when I have been so angry for being sick And have tried to just bury my head in a pillow. I know that since getting sick i have become more argumentative and hard to get along with, i'm sorry for my outbursts. I know that I am over sensitive. Being sick is embarrassing. having no family close and being so far away my support system has been extremely difficult. All visits are appreciated. i try to pretend that everything is just OK but its not. I am reaching out and letting you know that I do need help and that I am fighting. Even though there are times when I want to give up I wont. please help me in spreading this go fund me and help me fight with all your support. Lets get my health back so that I can find myself again. Thank you.
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Update 6
Posted by JEANNETTE ARMSTRONG
20 months ago
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I wanted to reach out and give everyone a update. I am still on my search for a cure.
Because the dr in clearwater was so expensive and was offering ozone treatments I went ahead and spend the money raised here for a ozone machine and have been doing home treatments. They are helping a little bit but I'm still sick. I'm always looking for a cure. I was also lucky to have found a wonderful dr. That removed 14 silver fillings that were releasing mercury in my body. It was thought that this was another piece of the puzzle. Now I still have to do chelation to get the mercury that is logged in my body out. I am still eating much healthier on the Paleo diet. I am still very sick and I'm constantly looking for new things to try. I am getting ready to do a parasite cleanse. I would like to try stem cells therapy but it's bout $15,000 in Mexico. I will never stop trying to heal my body. My dr has ordered a whole new set of blood work and I just had 24 vials of blood drawn for a bunch of different tests.
All you donations are appreciate and every penny has gone towards treatments, supplements and a ozone machine. Thank you for your continued support. I pray every day that I find a way back to a healthy life. I still have many days where in totally bed ridden. I am so blessed to have a live in that helps care for my daughter. I don't know what I would without her.
24 vials for recent lab work.
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Read a Previous Update
Angela Carr Smith
32 months ago

I know it's not much but it's the thought right,? I'm sure you've been researching your condition and what tests etc..just remember you know your body more than the Dr so don't be afraid to demand certain tests. I'll keep you in my prayers and your daughter is a total cutie pie. Have a great day, Angela

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Pamela Cordova
32 months ago

you really should try dr arthur cushman in Bunnel before spending all the money... people come from all over to see him... give it a shot.... i have not had a sun allergy since i was there 3 months ago.. he has cured me twice... holisticdoc.com i have friends with lyme disease who swear by holistic methods...and there were people that were there that have been cured of many things... . sorry you are going thru this and that i can't help financially... have my own health issues and since i don't stay in USA long have to pay for all drs myself.

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Francine Komisar Vanover
32 months ago

I'm so sorry I can't help you financially right now. I know you been struggling with your help for a long time and I pray you receive the funds you need to get better I love you with all my heart Jeanette

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$2,500 of $14,000 goal

Raised by 26 people in 32 months
Created May 19, 2016
Jeannette Jeannette
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$120
Kerry Dye
28 months ago
CC
$10
Clinton Conley
28 months ago

I hope this small donation goes a long way to your healing. I know you will heal!!!!

$100
Anonymous
29 months ago
KH
$20
KIMBERLIE Heintschel
30 months ago
SS
$250
Sarah Schultz
31 months ago
$45
Joy Arthur
31 months ago
JE
$5
Jake Emerick
31 months ago (Offline Donation)
JK
$15
J Kososki
31 months ago
$100
Anonymous
31 months ago
JS
$10
Julie Sager
31 months ago
Angela Carr Smith
32 months ago

I know it's not much but it's the thought right,? I'm sure you've been researching your condition and what tests etc..just remember you know your body more than the Dr so don't be afraid to demand certain tests. I'll keep you in my prayers and your daughter is a total cutie pie. Have a great day, Angela

+ Read More
Pamela Cordova
32 months ago

you really should try dr arthur cushman in Bunnel before spending all the money... people come from all over to see him... give it a shot.... i have not had a sun allergy since i was there 3 months ago.. he has cured me twice... holisticdoc.com i have friends with lyme disease who swear by holistic methods...and there were people that were there that have been cured of many things... . sorry you are going thru this and that i can't help financially... have my own health issues and since i don't stay in USA long have to pay for all drs myself.

+ Read More
Francine Komisar Vanover
32 months ago

I'm so sorry I can't help you financially right now. I know you been struggling with your help for a long time and I pray you receive the funds you need to get better I love you with all my heart Jeanette

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