Lucy's Mission to Michigan

£116,575 of £150,000 goal

Raised by 857 people in 8 months
Created November 26, 2018
Lucy Wright was 8 years old when she was diagnosed with Stage 4 high risk neuroblastoma, a childhood cancer that usually forms in certain types of nerve tissue. Lucy was diagnosed after being referred to hospital following several weeks of complaining of pain and losing weight. The diagnosis was devastating for the family.

The tumour is housed in her rib cage and the cancer has spread to her pelvis, shoulders and the base of her skull. Lucy is currently undergoing chemotherapy supported by the fantastic team at Royal Manchester Children’s Hospital. The treatment plan is gruelling and will take 12 months for Lucy to hopefully achieve remission.  Lucy has just finished her second course of radiotherapy treatment at University College Hospital (UCLH) where she was looked after by a fantastic team of staff. In the next couple of weeks, the family will be heading to Southampton which Lucy has been accepted by Dr Julie Gray onto the MiNivAN Trial at University Hospital.  

Neuroblastoma is an aggressive form of cancer and has the second highest mortality rate in children second only to leukaemia. Despite the gruelling treatment regime, the statistics show that 50% / 60% of neuroblastoma children risk relapsing within 2 years of achieving remission. Sadly, there is currently no cure for relapse neuroblastoma and the survival rate for relapsed patients is as low as 1 in 10 children.

Across the pond in the USA, advances in paediatric oncology show that a 2-year treatment on a drug known as DFMO is showing positive results and keeping children in remission, raising the 60 % remission rate to a staggering 84%. Whilst still in its trial stages, the results speak for themselves. 

To give Lucy the best possible opportunity for the future she deserves, her parents, Carrie and Richard plan to enrol Lucy on the study at Helen DeVos Children’s Hospital in Michigan. Once Lucy finishes her treatment in the UK and has achieved remission, the family have been told that the hospital will be willing to accept Lucy onto their trial. This is fantastically positive news for the family and gives them hope for Lucy’s future but comes at a cost.

Amber Family are proud to be leading on the fundraising campaign to get Lucy over to Michigan.

“Lucy’s Mission to Michigan” has been launched! Over the next 12-months, staff at Amber Family, other colleagues and members of Carrie and Richard’s family and friends hope to hit the target of £60k that will be needed to treat Lucy in Michigan.

If you can help with fundraising, donations or would be interested in attending any of the “Lucy’s Mission to Michigan” events, then please e-mail us at; carol@amberfamily.co.uk

On behalf of Lucy, Carrie, Richard and Lucy’s brother Sam, thank you in advance for your time and support.

You can also follow Lucy’s story so far on her Facebook page – www.Facebook.com / Lucy’s Mission

This fundraising page has been set up by Carol Benbow, Director of Amber Family Ltd., and friend of Carrie, Lucy's Mum. The funds will be used to pay for Lucy's treatment in Michigan and will be withdrawn into the Amber Family Fundraising Account and these will be drawn down on by Carrie and Richard once Lucy is in remission and travel arrangements are being made for her journey to Michigan.
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Lucy’s Mission to Michigan – via London (DONE) and Southampton (NEXT) – update 02/05/2019

New Year, New Challenges.......UPDATE

Following on from Carrie's update below which was posted in February, Lucy has now completed her second course of radiotherapy at University College London Hospital (UCLH) where she was looked after by a wonderful staff team. Within the next two weeks, Lucy, Carrie and Richard will be heading off to Southampton Hospital for the next course of treatment. Thanks for your continued support x

“No one ever said this cancer journey would be easy. This week we got the news that Lucy’s cancer is stable. She’s really well and really strong in herself and most importantly she continues to be the happy, smiley little girl that we know and love. She eats well and sleeps well and is no longer weak or in pain like she was in the lead up to diagnosis. While she’s been at home in between treatment, she has benefited from a home tutor for 3 days a week and keeps up with her school work as much as she can. We also recently started gymnastics again!

This week, Lucy had her last chemotherapy (for now at least) before we embark on the next stage of treatment. Not what we expected but the next stage of treatment will take us to London for specialist intensive radiotherapy treatment. For now, we wait for a date. Despite this journey presenting us with a few twists and turns we remain positive about the next stage of treatment.

Our Mission to Michigan remains unchanged, but as we continue on this journey to get Lucy into remission we have to make a bit of a detour and as such a decision has been made to update the fundraising total to reflect the challenges that this incredibly emotional journey presents us with. We can only ask for your continued support. We are so grateful. Team Lucy
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Thank you all for your kind donations and interest in Lucy's Mission to Michigan.

We have been overwhelmed with support and kindness and we are extremely grateful. Lucy is doing well and thankfully is going to be at home for Christmas so we can enjoy some time as a family. Her next treatment starts in the New Year.

For updates on Lucy’s progress you can follow her Facebook page www.facebook.com/Lucy’s mission or twitter @missionlucy

Wishing you all a peaceful Christmas.

Team Lucy x
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£116,575 of £150,000 goal

Raised by 857 people in 8 months
Created November 26, 2018
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