Logan's Medical Fund
Logan spent his first day as a typical newborn with Mommy and Daddy but during his 24 hour check up they noticed his lips were a little blue. They proceeded to investigate, when they discovered a heart murmur and a lesion in his heart.
Logan was transferred to the NICU at St. Davids Medical Center (Downtown Austin) at 3:30AM on March 31st. Upon arrival they did an Echocardiogram, where they discovered that he had a cardiac anomaly called Tetralogy of Fallot.
This congenital heart defect statistically only happens in 1 out of every 2518 babies born in the US and happens when a baby’s heart does not form correctly as the baby grows and develops during pregnancy.
TOF affects normal blood flow through the heart and is made up of the following four defects of the heart and its blood vessels:
1) A hole in the wall between the two lower chambers―or ventricles―of the heart.
2) A narrowing of the pulmonary valve and main pulmonary artery.
3) The aortic valves, which opens to the aorta, is enlarged and seems to open from both ventricles, rather than from the left ventricle only, as in a normal heart. In this defect, the aortic valve sits directly on top of the ventricular septal defect.
4)The muscular wall of the lower right chamber of the heart (right ventricle) is thicker than normal.
After the Cardiologist confirmed Logan had TOF, they transferred him to the PICU at Dell Children's Medical Center (Austin) on April 1st, where Brandon and Hillary have not left his side since. As you can imagine this is a very heartbreaking and emotional time for them. Logan underwent surgery at just 7 days old and will most likely be undergoing open heart surgery within the next 2-6 weeks depending on his progress.
Logan will have to see a Cardiologist the rest of his life and have multiple open heart surgeries throughout his life to replace the Pulmonary valve and artery as they may or may not grow as he grows.
Brandon and Hillary are so thankful for the love, support and prayers from all, but now his family and friends ask to consider making a donation to help cover the growing medical costs associated with Logan’s hospital stay and upcoming surgery. No amount is too small. Let’s show them an outpouring of love and financial support as they work through this difficult time.
You can also follow along with Logan's progress here.
Logan has been making progress day by day... This morning they removed the drainage tubes from his abdomen, which is awesome, because we were one step close to holding him again.
He does still have an IV, a feeding tube, oxygen, and a tube to pull the excess air out of his stomach.
Logan has also been fighting for better (higher) oxygen levels due to "gunk" in his lungs, which has lead to lack of sleep and discomfort for him. The lower oxygen levels mixed with the "gunk" in his lungs called for an X-Ray, confirming that his lungs were worse (not as clear) than the days prior. His lungs are functioning properly, his oxygen levels are just not as good as they should be, because he's not able to take good deep breathes.
The Doctors are now concerned Logan may have Pneumonia and have already started him on antibiotics, as well as put him on a CPAP.
However, if the CPAP does not improve his condition, the doctors said he will have to be intubated again....They want to avoid intubation as much as we do, which is why he's on the CPAP now.
Since they put him on the CPAP, he has been sleeping soundly and his oxygen levels have increase some, but throughout the day we will need them to keep rising more as they clear out his lungs.
We are keeping our fingers cross and praying like crazy!
Any and all prayers, good vibes, etc... Are welcome and very much appreciated!
We love and thank you all so much for all the love and support for Logan, we would not have made it this far without each and every one of you
May 24th Update-
Logan has made good progress since his surgery on Tuesday, May 19. His biggest accomplishment since the surgery is that his breathing tube came out on Friday, May 22. He is currently eating from the bottle and whatever he does not take they have been placing it in his feeding tube. The doctors take daily X-Rays to ensure his lungs and heart look good. They have found some air around his lungs, so he continues to use oxygen through a nose piece. He currently still has a catheter and multiple stomach tubes to help with draining the fluids from the surgery. As of now he is receiving all medications orally rather than through an iv. He is recovering well but still not out of the woods yet. Brandon and I appreciate the continued prayers and words of encouragement through this roller coaster we are on. We are taking it one day at a time and know we will be able to take Logan home soon.
May 19th Update -
THE SURGERY WENT GREAT!!!
The surgeon just sat down with us and told us that Logan's heart is pumping on its own without the pacemaker....they are setting him back up in his room as we speak. They were able to patch the hole up nicely, with very little leakage (about as much as the average person has which is good) They did not put a homograph valve on his pulmonary artery, they just left it with the conduit (meaning they made the artery larger with the tissue, but no valve) which is great, because he can potentially go longer before his next surgery!
Tonight is vital, It is where they will be able to determine how well he will do as he weans off anesthesia and ultimately if he can stay without a pacemaker.
Tuesday, May 19th is the official date of his open heart surgery, it will begin at 7:30 AM and take 6-7 hours to complete.
The surgeon sat down with Brandon and Hillary this week and informed them of what to expect and any/all possible risks. The doctors as well as Brandon and Hillary are all super optimistic and looking forward to their little Iron Man finally getting his little heart patched up.
Recovery time is dependent on the outcome of the surgery, but on average should be about two weeks.
Please send an extra amount of love and prayers our way Tuesday for a super successful surgery and recovery for Logan.
To help Logan gain weight quicker the Cardiologists have chosen to fortify the breast milk with formula. For every 90 ml of breast milk they have been putting 1 tsp of formula which increases his meals by 24 cal.
The first couple of days Logan was unable to keep this new caloric amount down. He has currently been reduced from eating 90ml to 70ml at each feeding. He has been able to retain this amount more successfully. As far as his open heart surgery, Brandon and Hillary have met with the surgeon and he informed them that it will hopefully be scheduled for mid-May.
The surgeon explained that he needs Logan's pulmonary artery and valve to grow at least a .5 mm if not 1 mm before surgery. He also reassured them that the waiting for him to grow, although stressful, is crucial and can make a world of difference in the outcome of the surgery and the recovery.
Brandon is now back working during the weekdays and staying home with and taking care of Stark while also commuting to and from the hospital. Hillary is spending her days in the hospital watching over Logan. Please keep not only Logan but Brandon and Hillary in your prayers to continue to stay strong while they wait to take their baby boy home with them.
Thank you SO MUCH to everyone who has donated...I can't believe we've already gotten as far as we have!
With it being very stressful on his heart to keep doing this, Brandon, Hillary and the Cardiologist agreed that they will not try to take him off of it again.
The Doctors are thinking of moving his open heart surgery to the week of the 27th. As of right now they don't foresee any issue but are still waiting on the donor valve/artery to replace his.
The best case scenario is the surgery will be performed in two weeks with another two weeks of recovery. But, only time will tell after the surgery is performed.