A Breath of Fresh Air for Logan
Donation protected
Since he was born, my brother Logan's fought with an extremely rare condition known as Job's syndrome – a genetic autoimmune deficiency. It started as a skin condition as a baby, and quickly grew to include regular ear and eye infections, cysts on the inside and outside of his body and an assortment of other troubles.
For most of Logan’s life, we’ve lived in fear of him getting sick. Even the simplest colds or flus, cuts or scratches that most of us would shake off as nothing have the potential for infection or other complications that could mean serious consequences and lengthy healing times for Logan.
At 3.5 years, he got his first lung abscess. At 5, he had part of his right lung removed. When he was 9, most of the rest had to be taken out (as a result of which, he spent an entire spring in the hospital). He’s suffered from regular skin outbreaks related to his condition, some of which have covered most of his body in sores and lasted for months, even years, at a time.
Logan’s always been a fighter. He lives his life with a healthy dose of defiance to his condition. As a kid, he was very active as a hockey goalie and downhill mountain biker. But more than anything, he’s always had a special love for cars. Long before he was old enough to drive, the ’74 Chevy Nova in our great aunt’s garage was earmarked. It was the first car he ever owned, and (while it’s gone through several makeovers and overhauls) still one of the loves of his life.
The other love of his life is Ciindy. It takes a weird sense of humour to survive in our family, and although we thought she was quiet and shy to begin with, Ciindy’s proven she can hold her own. They’ve been together since 2010, and through their many shared interests, and love for cats (they’re the proud parents of five fur babies), they’ve created their own little family.
Three years ago, Logan finally realized a dream and opened his own high-end car detailing business in Airdrie, called Sublime Detail. Through hard work, attention to detail and the many relationships he’s built within the car community, Sublime quickly gained an incredible reputation for quality and a loyal following of customers.
In June of 2016, that all groud to a halt when Logan was hospitalized for 2 1/2 weeks with an abscess in his left lung – his “good” lung. And while he was able to get out of the hospital by the summer, he was told in no uncertain terms that he would have to choose between his business and his health. The dampness, chemicals and physical work, the doctors told him, were not a sustainable environment for him. It was crushing news.
After months of unsuccessfully trying to either sell his business or find someone to run it for him, Logan was rushed to the hospital again last fall after being unable to breathe properly. He’s been in the hospital now for the last four months with a very serious lung infection and a hole in his “good” lung that refuses to heal.
Logan has had no income of any sort since last June. He’s survived off of the money he’s banked in the business, Ciindy’s salary and the generous help of my retired parents. Despite consulting many different sources and exploring a variety of options, being a small business owner means there is no money available to him through government programs.
On top of that, being stuck in the hospital means he’s been unable to sell or hire anyone to take over the business. As a result, he's had to fork out around $3,200 each month for the lease and other expenses on his closed dream business (which has rapidly depleted his savings). Add to that the rental costs (about $300/month) for two portable suction machines that allow him to get out of the hospital and spend time at home for brief periods (not to mention the constant travelling and parking at the hospital).
Logan found hope for a time in a man who expressed interest in purchasing his business. My parents drove back and forth repeatedly, and have bent over backwards to find a way to seal the deal and remove one of the major stressors for Logan. We recently found out, however, that this enterprising fellow has instead purchased the bay in which Sublime Detail operates out from under Logan.
He’s since not only decided he is no longer interested in purchasing the business from Logan (after months of dickering), but told Logan that he intends to hold him to the full term of the lease – a quick and easy buck on the back of an already devastated, sick young guy. Adding insult to injury, he’s gone so far as to suggest that Logan should simply allow him to use all of the thousands of dollars worth of equipment for free, since Logan can’t use it anyway. We’ve consulted a number of lawyers, and while everyone agrees it’s a callous thing to have happen, there’s nothing we can do legally.
Needless to say, this has been an incredibly difficult time for Logan (and our whole family). Not only does he feel like his body is waging constant war against him, but a dream he worked so long and hard to realize has been crushed and now trampled by someone with more avarice than compassion.
One piece of much-needed good news has come in the way of an experimental procedure that Logan has recently undergone, which may allow the hole in his lung to begin to heal. As it is experimental, we've been braced to expect a 50% chance of success, however we're all holding strong to the belief that Logan's well past due for some good luck! So far so good though. And if it works, he may regain some freedom from the confines of the hospital. Although, every step forward seems to be paired with one back, as the vital drugs fighting the lung infection, it was recently discovered, are causing damage to his liver.
As a family, we’d do anything to help Logan out of this dark place, but even our resources are quickly running dry. It’s not easy to ask for help, but Logan could desperately use any support and goodwill you’re able to offer in this incredibly difficult time.
Our primary focus right now is to help him sort out his business and remove that constant source of stress and despair, in the hopes that it will better allow his body to heal. It would take around $25,000 to pay out the last 15 months of the lease, as well as a few thousand to buy him some time to get back on his feet and able to make a living again.
Any donations to help Logan out during this difficult time would be greatly appreciated. We can’t thank you enough for your interest and generosity. Please share this with any one else that might know Logan, including and any of his car buddies.
For most of Logan’s life, we’ve lived in fear of him getting sick. Even the simplest colds or flus, cuts or scratches that most of us would shake off as nothing have the potential for infection or other complications that could mean serious consequences and lengthy healing times for Logan.
At 3.5 years, he got his first lung abscess. At 5, he had part of his right lung removed. When he was 9, most of the rest had to be taken out (as a result of which, he spent an entire spring in the hospital). He’s suffered from regular skin outbreaks related to his condition, some of which have covered most of his body in sores and lasted for months, even years, at a time.
Logan’s always been a fighter. He lives his life with a healthy dose of defiance to his condition. As a kid, he was very active as a hockey goalie and downhill mountain biker. But more than anything, he’s always had a special love for cars. Long before he was old enough to drive, the ’74 Chevy Nova in our great aunt’s garage was earmarked. It was the first car he ever owned, and (while it’s gone through several makeovers and overhauls) still one of the loves of his life.
The other love of his life is Ciindy. It takes a weird sense of humour to survive in our family, and although we thought she was quiet and shy to begin with, Ciindy’s proven she can hold her own. They’ve been together since 2010, and through their many shared interests, and love for cats (they’re the proud parents of five fur babies), they’ve created their own little family.
Three years ago, Logan finally realized a dream and opened his own high-end car detailing business in Airdrie, called Sublime Detail. Through hard work, attention to detail and the many relationships he’s built within the car community, Sublime quickly gained an incredible reputation for quality and a loyal following of customers.
In June of 2016, that all groud to a halt when Logan was hospitalized for 2 1/2 weeks with an abscess in his left lung – his “good” lung. And while he was able to get out of the hospital by the summer, he was told in no uncertain terms that he would have to choose between his business and his health. The dampness, chemicals and physical work, the doctors told him, were not a sustainable environment for him. It was crushing news.
After months of unsuccessfully trying to either sell his business or find someone to run it for him, Logan was rushed to the hospital again last fall after being unable to breathe properly. He’s been in the hospital now for the last four months with a very serious lung infection and a hole in his “good” lung that refuses to heal.
Logan has had no income of any sort since last June. He’s survived off of the money he’s banked in the business, Ciindy’s salary and the generous help of my retired parents. Despite consulting many different sources and exploring a variety of options, being a small business owner means there is no money available to him through government programs.
On top of that, being stuck in the hospital means he’s been unable to sell or hire anyone to take over the business. As a result, he's had to fork out around $3,200 each month for the lease and other expenses on his closed dream business (which has rapidly depleted his savings). Add to that the rental costs (about $300/month) for two portable suction machines that allow him to get out of the hospital and spend time at home for brief periods (not to mention the constant travelling and parking at the hospital).
Logan found hope for a time in a man who expressed interest in purchasing his business. My parents drove back and forth repeatedly, and have bent over backwards to find a way to seal the deal and remove one of the major stressors for Logan. We recently found out, however, that this enterprising fellow has instead purchased the bay in which Sublime Detail operates out from under Logan.
He’s since not only decided he is no longer interested in purchasing the business from Logan (after months of dickering), but told Logan that he intends to hold him to the full term of the lease – a quick and easy buck on the back of an already devastated, sick young guy. Adding insult to injury, he’s gone so far as to suggest that Logan should simply allow him to use all of the thousands of dollars worth of equipment for free, since Logan can’t use it anyway. We’ve consulted a number of lawyers, and while everyone agrees it’s a callous thing to have happen, there’s nothing we can do legally.
Needless to say, this has been an incredibly difficult time for Logan (and our whole family). Not only does he feel like his body is waging constant war against him, but a dream he worked so long and hard to realize has been crushed and now trampled by someone with more avarice than compassion.
One piece of much-needed good news has come in the way of an experimental procedure that Logan has recently undergone, which may allow the hole in his lung to begin to heal. As it is experimental, we've been braced to expect a 50% chance of success, however we're all holding strong to the belief that Logan's well past due for some good luck! So far so good though. And if it works, he may regain some freedom from the confines of the hospital. Although, every step forward seems to be paired with one back, as the vital drugs fighting the lung infection, it was recently discovered, are causing damage to his liver.
As a family, we’d do anything to help Logan out of this dark place, but even our resources are quickly running dry. It’s not easy to ask for help, but Logan could desperately use any support and goodwill you’re able to offer in this incredibly difficult time.
Our primary focus right now is to help him sort out his business and remove that constant source of stress and despair, in the hopes that it will better allow his body to heal. It would take around $25,000 to pay out the last 15 months of the lease, as well as a few thousand to buy him some time to get back on his feet and able to make a living again.
Any donations to help Logan out during this difficult time would be greatly appreciated. We can’t thank you enough for your interest and generosity. Please share this with any one else that might know Logan, including and any of his car buddies.
Organizer and beneficiary
Drew Sebesteny
Organizer
Saskatoon, SK
Logan Sebesteny
Beneficiary
