Little bit for Emrie
Donation protected
A month or so ago the doctors found a wilms tumour on Emrie-Dawns right kidney. They have discovered this is a very aggressive cancer and have laid out a plan to attack it aggressively. This means weeks at a time hospital stays and about a year of treatments and years of monitoring. Our lives have been turned upside down. I’m just asking for support to help make things easier for our family, and to help the wee one get through this.
Edit from my wife so yours better understand Emrie story
My husband created this, when I seen this, I gave him shit. I pride ourselves on how hard we work together as husband and wife to financially and physically be the only providers for our children. So I was really disappointed that he created this, not realizing how much weight is on his shoulders. He works so incredibly hard for us and obviously he will want to be there as much as he can when emries admitted to Sick kids for 5 days or more at a time. So after seeing why he created this I understand, he feels we could use some help along the way.
Hes so to the point with emries story that I'd actually like for you to know her story if you dont already .
On June 16th late at night emrie was pointing at her diaper and seemed in discomfort, so I laid her down on the couch and she lifted up her legs, to our surprise she was definitely consipated, Aj began to rub her belly, he could feel something on her right side, asked me if I thought it could be poop as she was definitely consipated. I thought its possible, but it was late so I planned to take her first thing Sunday morning to the walkin. First thing Sunday june 17th went to the walkin and emrie wouldn't let the Dr really touch her tummy so he had to look down there and sure enough he said she is sooo consipated, said to give her fleet mineral oil and hopefully that would soften the stools but if she spiked a fever and puked to take her to the hospital right away. Got home did the fleet mineral oil, passed poop and back to happy emrie, later that night 10pm fever, low fever so gave her tylenol and watched her sleep 1am she spiked a high fever and I sat her her and she puked everywhere. So 130am off to bowmanville hospital, after hours and an xray the Dr on said she wasnt comfortable with emries xray and thought we should go to oshawa hospital, so now 430am myself and emrie drove down to oshawa. Blood work, IVs, anemic results than finally a ultrasound...the dr I might add the amazing dr who stood in the room for emries ultrasound ( which was a red flag) came out about 30 mins later and asked if I'd have a seat, refusing to sit and bawling my eyes out because you dont ask a parent to sit unless its bad news .. she proceeded to tell me emrie had a tumor and that in her 30 years of being a dr she was most certain it was a wilms tumor but that cant actually be determined till its tested on after being surgically removed. Trying to breath and process what shes saying, she walks away and I knew I had to facetime aj because I couldn't even speak so I knew hed need to see my face...trying to form words the dr looked back and helped me tell aj and also said they ambulance will arrive shortly to transport you to sick kids, I'm not sure why because I knew it was seriously but I didnt think wed be sent to sick kids especially in an ambulance...its now 830-9am on Monday June 18th a day I'll never forget, we arrived at sick kids, I cant even begin to write what emrie went through for the next 5 days, so many test. Let's just say you get a Bead for your bravery bracelet for every test etc you complete and emrie had 40 plus beads. After these first 5 days it was decided that the tumor needed to come out and so did her right kidney. 8 hours of surgery and an hour waiting on results we found out that the finding under the microscope appeared to be abnormal so they were sure it was 99.9 percent cancer. A week in the hospital again and that week full of testing and recovery time and than finally by the end of that week finding out that emries tumor was in fact the wilms tumour. We also found out that when in surgery they removed lympnodes that were enlarged and also tested positive for cancer, meaning emries cancer had spread, now stage 3 favourable wilms tumor. Weve been on week 4 of treatment and waiting for a final test to come back which is called a loh test ( very complex to explain) but it came back positive not what we had hoped for, meaning her cancer is a very aggressive form so they have to be more aggressive with treatment. This means instead of just weekly chemo treatments emrie will have 5 stays within now till February where she is admitted and cant leave the hospital and will have chemo every day for 5 straight days. On top of continuing with her every Tuesday chemo days. These 5 days where emries admitted I'll be staying with her and because Gibson will just have started school its going to be a juggle of figuring everything out, meals add up while there for myself and parking and gas, it's just going to be a lot, So in the end I see why Aj reached out but please dont feel you have to donate, will figure it out, but if you do this gives you the nightmare that all started a month ago for us.
My heart breaks for my baby girl, she shouldn't have to go through this, this just isnt fair. I wish I could trade her places.
Edit from my wife so yours better understand Emrie story
My husband created this, when I seen this, I gave him shit. I pride ourselves on how hard we work together as husband and wife to financially and physically be the only providers for our children. So I was really disappointed that he created this, not realizing how much weight is on his shoulders. He works so incredibly hard for us and obviously he will want to be there as much as he can when emries admitted to Sick kids for 5 days or more at a time. So after seeing why he created this I understand, he feels we could use some help along the way.
Hes so to the point with emries story that I'd actually like for you to know her story if you dont already .
On June 16th late at night emrie was pointing at her diaper and seemed in discomfort, so I laid her down on the couch and she lifted up her legs, to our surprise she was definitely consipated, Aj began to rub her belly, he could feel something on her right side, asked me if I thought it could be poop as she was definitely consipated. I thought its possible, but it was late so I planned to take her first thing Sunday morning to the walkin. First thing Sunday june 17th went to the walkin and emrie wouldn't let the Dr really touch her tummy so he had to look down there and sure enough he said she is sooo consipated, said to give her fleet mineral oil and hopefully that would soften the stools but if she spiked a fever and puked to take her to the hospital right away. Got home did the fleet mineral oil, passed poop and back to happy emrie, later that night 10pm fever, low fever so gave her tylenol and watched her sleep 1am she spiked a high fever and I sat her her and she puked everywhere. So 130am off to bowmanville hospital, after hours and an xray the Dr on said she wasnt comfortable with emries xray and thought we should go to oshawa hospital, so now 430am myself and emrie drove down to oshawa. Blood work, IVs, anemic results than finally a ultrasound...the dr I might add the amazing dr who stood in the room for emries ultrasound ( which was a red flag) came out about 30 mins later and asked if I'd have a seat, refusing to sit and bawling my eyes out because you dont ask a parent to sit unless its bad news .. she proceeded to tell me emrie had a tumor and that in her 30 years of being a dr she was most certain it was a wilms tumor but that cant actually be determined till its tested on after being surgically removed. Trying to breath and process what shes saying, she walks away and I knew I had to facetime aj because I couldn't even speak so I knew hed need to see my face...trying to form words the dr looked back and helped me tell aj and also said they ambulance will arrive shortly to transport you to sick kids, I'm not sure why because I knew it was seriously but I didnt think wed be sent to sick kids especially in an ambulance...its now 830-9am on Monday June 18th a day I'll never forget, we arrived at sick kids, I cant even begin to write what emrie went through for the next 5 days, so many test. Let's just say you get a Bead for your bravery bracelet for every test etc you complete and emrie had 40 plus beads. After these first 5 days it was decided that the tumor needed to come out and so did her right kidney. 8 hours of surgery and an hour waiting on results we found out that the finding under the microscope appeared to be abnormal so they were sure it was 99.9 percent cancer. A week in the hospital again and that week full of testing and recovery time and than finally by the end of that week finding out that emries tumor was in fact the wilms tumour. We also found out that when in surgery they removed lympnodes that were enlarged and also tested positive for cancer, meaning emries cancer had spread, now stage 3 favourable wilms tumor. Weve been on week 4 of treatment and waiting for a final test to come back which is called a loh test ( very complex to explain) but it came back positive not what we had hoped for, meaning her cancer is a very aggressive form so they have to be more aggressive with treatment. This means instead of just weekly chemo treatments emrie will have 5 stays within now till February where she is admitted and cant leave the hospital and will have chemo every day for 5 straight days. On top of continuing with her every Tuesday chemo days. These 5 days where emries admitted I'll be staying with her and because Gibson will just have started school its going to be a juggle of figuring everything out, meals add up while there for myself and parking and gas, it's just going to be a lot, So in the end I see why Aj reached out but please dont feel you have to donate, will figure it out, but if you do this gives you the nightmare that all started a month ago for us.
My heart breaks for my baby girl, she shouldn't have to go through this, this just isnt fair. I wish I could trade her places.
Organizer
Adam DeGiorgio
Organizer
Bowmanville, ON
