Lisa Browns Last Wishes Fund
As some of you may know, from previous articles, Lisa was in People Magazine last year spreading awareness for this HORRIBLE syndrome, SMAS. (Feel free to GOOGLE Lisa Brown SMAS, you will see all the articles about her) She was also later diagnosed with Gastroparesis. She spent a lot of time trying to help others, which i know she has. She dedicated so much time trying to cheer up anyone who was down. She would handmake personal cards for people who were/are sick, down about something, or just needed a little brightness in their day. She still continues to do this, however it is extremely hard for her to make time because she is so sick and weak.
This October she entered into hospice care because she was declining so quickly. They have been trying to help keep her symptoms under control and trying their best to keep her pain free. Her overall health has and is declining rapidly now. I, her husband, am taking off of work on FMLA, and not getting paid, to spend the rest of the time she has with her.
I am starting this fund to help pay for anything that she may want to keep her happy and comfortable in the last days she will be with us. It will also help cover the cost of her Memorial and for taking off work with no pay. We appreciate any help you may be able to give. I hope that her story has touch your life as i know it has for many people.
Thank you much,
I'm sorry I am not good at writing, which is why she would "help" me with my school papers :). But today I will never forget. Today marks the day where my best friend, my teammate, my wife is finally free from suffering and pain. She went to heaven peacefully with her family by her side. I would say an angel got her wings, but she was and is more than an angel.
I love you LiLi Luxe
Sure am gonna miss you
In the name of Jesus, I command the spirit of SMAS to leave Lisa's body and that her body return to its perfect design and weight. I speak wholeness into her right now and cover her with the blood of Jesus. I command the spirit of death to leave and the spirit of life to encompass her and the room. I declare restoration and joy. TY Jesus!
I know you are probably frustrated with hearing all of the things you should try by now, but I had a similar illness of gastroparesis with autonomic dysfunction and was told there was nothing else they could do and my weight had dropped into the 80s even with a feeding tube. A friend of a friend told me to see a Chinese herbalist and within a few days of accupuncture and being on the herbs, I was eating much better and gaining weight. I know your situation isn't exactly the same, but I thought I should mention it anyway since a stranger mentioned it to me when I didn't have anything else to try and that was about 20 years ago.
THIS MAY HAVE JUST SAVED MY LIFE! I have been going through the same thing for the past year and a half. So many tests being ran. I faint constantly. I am so sorry I don't have extra money to donate. All of my thanks go out to you, I just came from my gastro appointment at 4pm today. I am so sorry for you and your families loss.
RIP my sweet friend/sister!!! You're My Angel In Haven An You're Not Suffering Any More!! You're going to continue to be an anchor of support for so many forever and ever!! I'm going to miss you so but I know that you've been a garden me and others all the days of our life!! Your mother,husband and love ones are in my prayers!! You've been such a wonderful friend/sister and brought out such happiness to me an others to stay strong, fight,support,love,care an To never give up also to live life to the fullest no matter how hard it is!! She an I had a lot in common I loved crafting, making jewelry, helping others, doing what we can for those in need but also making the best out of being very sick with SMA Syndrome and in my case a lot of health problems the SMAS, autoimmune disease, Brest,ear, organs an many more things. My sweet soul of a friend had such a strength within her that moved mountains also touched so many life's!!! God Bless You My Sweet Loving Soul My Friend Lisa you'll continue to Touch/impact my life in such wonderful ways forever until we meet again in our heavenly home!! Pat Brown LiLi Luxe
Deepest condolences on the passing of your beautiful wife! May God assure you of her presence with Him, now healed, free and happy! God bless and sustain you sir in your grief! ❤
So sorry for your loss
Rest in peace, Lisa You are forever in my heart ♥
Thinking of you often. ♥ Thank you for sharing your journey with us.
Dear Lisa and her family, with all my heart - can't donate just yet as it'll constitute the opposite of the ultimate goal which is fight and LIVE! Fresh cabbage juice , please, please Lisa, I beg you to try it if you haven't so already...
Hi guys I'm so sorry your both having to go through this I'm very poorly with MALS which has the same symptoms to SMAS but it's a different compression not involving the duodenum. I'm flying out to have surgery in germany I was diagnosed with four artery compression out there by Prof scholbach he may be able to help you. He can do phone consultations if you can't travel? he knows some surgeons out there who perform a completly different surgery to the type they offer in the uk (where I'm from) and the US. I'm a member of the online community on Facebook for smas which you could join? But also even though you don't have MALS (mediate acurate ligament syndrome)
My heart goes out to you and your family. I remember when my mom realized it was her last days because she turned jaundiced and I could tell it in her voice that she didn't know what to do...she felt helpless. I will keep you all in my prayers. May God bless you and your family always! Rest assure you will be together in the later days ♥
My prayers are with you both during this time. May you find comfort and peace.