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LIS = Locked In Syndrome - aged 14

£18,950 of £30,000 goal

Raised by 255 people in 10 months
Updated May 2018 ... one year on ...

Hello. My name is Miranda Meldrum from Bradford on Avon, Wiltshire. I am now 14. I had just turned 13 & was loving my life, when tragically on April 25 last year - 2017 - I suffered from a very rare form of brain haemorrhage as a result of an arterial dissection in a small vessel in the Circle of Willis. The anterior inferior cerebellar artery.

This caused damage to my brain stem but preserved the upper part of my brain - which is "where we are/who we are". I spent the first four months on an intensive care unit, where I survived brain surgery and a temporary cardiac arrest.

I sufferered from LIS = locked in syndrome for the first 4 months; and I was therefore "still in there!".

I am recovering well - I could only use my eyes to communicate for the first 4 months, my body could not move at all & I was on a ventilator.  I repaired all major body functions - blood pressure/heart rate/temperature regulation/breathing/coughing/swallowing ... This past 8 months I have been on a neurorehabilitation ward and can now move every part of my body except my left drop foot - and am able to sit unassisted for an hour, and also take a few steps.

I have been working extremely hard with my therapies and my parents, friends, relatives & staff are all very proud of my courage & determination.

I have just started eating now, today had my first small drink & I am now able to say a few words & sing a little.

I require a motorised wheelchair for tired times (I hope to walk again though). My home will need major, expensive downstairs adaptations for my safety and ongoing recovery. I am looking forward very much to some home visits soon, this summer. I will also require ongoing intensive therapies to help continue to improve my functioning & for me return to my school & my friends, including specialist tutors.

Big thanks to anybody that wants to help raise funds for these things - or to any scientist interested in my case ... I'll keep you posted via my website on fb - "Miranda Panda".

My mum is Dr Stella Meldrum, a GP (doctor of 25 years now, so would be happy to discuss the medical details with other medics/neuroscientists interested) --- she knows me very well - so has written this on my behalf.

I've got no idea why my Circle of Willis misbehaved so badly - but then - neither does anybody else? No pre-existing aneurysm even - which is 1 in 100,000 chance of that bursting?

My event/insult - is nearer 1 in a million chance of happening. Maybe growth hormone & other hormones surges - yes, I did get all that the past 6 months prior?

Regardless. Here I still am - and still fighting on - back to my life!

#Big thanks - for reading/helping : )

My mother will be in charge of the funds you offer to help me.

Here is the link to a newspaper article written about my story : 

wiltshiretimes.co.uk/news/15508886.Appealforsickteenager/
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£18,950 of £30,000 goal

Raised by 255 people in 10 months
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HT
£10
Heidi Terry
5 days ago
FC
£50
Fiona Coulthard
6 days ago
£70
Anonymous
6 days ago
£50
Anonymous
6 days ago
JA
£20
James Augusztinyi
6 days ago
MD
£20
Michele Dunning
6 days ago
AC
£50
Annette Clinnick
6 days ago
AB
£10
Annette Brake
7 days ago
CP
£30
Charles Powell
7 days ago
£5
Anonymous
7 days ago
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