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LIS = Locked In Syndrome - aged 13

£17,245 of £20,000 goal

Raised by 229 people in 6 months
Hello. My name is Miranda Meldrum from Bradford on Avon, Wiltshire. I have just turned 13. I was loving my life, but tragically on April 25 this year - 2017 - I suffered from a very rare form of brain haemorrhage as a result of an arterial dissection in a small vessel in the Circle of Willis. The anterior inferior cerebellar artery.

This caused damage to my brain stem but preserved the upper part of my brain - which is "where we are/who we are". I spent the first two months on an intensive care unit, where I survived brain surgery and a temporary cardiac arrest.

I suffer from LIS = locked in syndrome; and I am therefore "still in here!".

I am recovering well and can use my eyes to communicate.  This past couple of months I have been on a neurorehabilitation ward and this past month I have started to move most of my body - although I am still unable to sit or stand at all. I have been working extremely hard with my therapies and my parents, friends, relatives & staff are all very proud of my courage & determination.

I need IT equipment to help me spell, draw (which I love), play Minecraft - and communicate again --- speech is a few months away yet - all being well.  I hope one day to sing again, which I was very good at & gave me & others great joy.

Eye Gaze equipment is about 10K. I have acheived this target now with your kind help.

I need longer-term --- muscle stimulation and possibly robotics equipment. (Happy to be a guinea pig for research - so long as it doesn't involve any more needles!)

I also require a motorised wheelchair for tired times (I hope to walk again though). Also my parents will need their cars adapted and my home will need major, expensive alterations for my safety and ongoing recovery. I am looking forward very much to some home visits - it might be possible for me to spend xmas day at home - if property adaptations can be sorted out in time. I will also require ongoing intensive therapies to help continue to improve my functioning & for me return to my school & my friends, including specialist tutors.

Big thanks to anybody that wants to help raise funds for these things - or to any scientist interested in my case ... I'll keep you posted via my website on fb - "Miranda Panda".

My mum is Dr Stella Meldrum, a GP (doctor of 25 years now, so would be happy to discuss the medical details with other medics/neuroscientists interested) --- she knows me very well - so has written this on my behalf.

I've got no idea why my Circle of Willis misbehaved so badly - but then - neither does anybody else? No pre-existing aneurysm even - which is 1 in 100,000 chance of that bursting?

My event/insult - is nearer 1 in a million chance of happening. Maybe growth hormone & other hormones surges - yes, I did get all that the past 6 months prior?

Regardless. Here I still am - and still fighting on - back to my life!

#Big thanks - for reading/helping : )

My mother will be in charge of the funds you offer to help me.

Here is the link to a newspaper article written about my story : 

wiltshiretimes.co.uk/news/15508886.Appealforsickteenager/
+ Read More
Determined to get « my Wings » !
Determined to get my Wings!
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Like to keep a check on my bedtime supper drink ... why oh why can’t they give me ng liquid chocolate?! ... « when? » ... oh the patience required of one with this brain haemorrhage malarkey!
+ Read More
One of my ace physios just brought in her new baby & let me hold the cutie!
+ Read More
Xmas fox ... with Demi ...
+ Read More
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£17,245 of £20,000 goal

Raised by 229 people in 6 months
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CM
£150
Charlotte Marley
22 days ago
GH
£100
George & Karen Hostford
29 days ago
£500
Anonymous
1 month ago
JT
£200
Jim Trueman
2 months ago
PC
£50
Pete & Chris Cockshott
2 months ago
£50
Anonymous
2 months ago
£20
Steve Bowker
2 months ago
IG
£10
Isabella Geddes
2 months ago
HO
£500
Helen and Dominic Oughton
2 months ago
AE
£10
Alice Evans
2 months ago
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