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Lily STRONG: Fierce Fighter

$18,750 of $30,000 goal

Raised by 181 people in 6 months
Lily’s Neuroblastoma has relapsed and she is back at Mott for treatment with her mom and dad at her side.   

Three months after being declared NED (no evidence of disease) mom saw a lump under her jaw which then lead to several tests and scans.  It
was discovered that the cancer was back and in several areas including her legs, hips, chest, arms, collar bone as well as jaw.  The tumor in her jaw bone has completely eroded the bone, this will cause mobility issues & already causes pain. She will eventually need reconstructive surgery to correct this (after we have disease under control), she has some enlarged lymph nodes (one was surgically removed last week), she has an area of disease by her left collar bone going into her chest, spots on her arms, legs & hips as well. Neuroblastoma does not have a set relapse treatment plan. This makes things tricky & scary. They have been told that it will be tough to beat it this time, that the chances are slight , but not impossible. So here they are, ready to fight...again. Only this time they have to fight harder, Neuroblastoma is a beast, it’s aggressive & it comes back with a vengeance. But they won’t give up & her doctors aren’t either.

A plan has been made. They need to get the disease under control, then need to get her into long term remission. This will be tough. But there are some options still. 

The financial and emotional support has been an unbelievable help during the first battle over the past two years to which the family is truly grateful. The funds have been exhausted and we are looking to continue to support the family in any way possible to help make finances a burden they don't have to bear.

Lily and her family will never give up and are ready to fight alongside with the amazing team and family at University of Michigan Mott Children Hospital and all of you.  Thank you for everything, it's not possible to get through this without each of you.
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Pet scan was done yesterday and the results are excellent!!! The treatment is working and Lily is kicking cancer’s butt again!! Thank you for the continued prayers and support❤️
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Love for Lily Update

I am going to give a quick update on Lily. She had scans done on Tuesday to determine the next step in her treatment. The results were not exactly what her oncologist hoped for in regards to the next treatment regimen. They are working on plan B.

In the meantime, Lily’s counts are still very lower and her absolute neutrophil count is zero. Which means she has no immune system to fight off infection. She started receiving her daily Leukine shots again in hopes to boost her WBCs.

She had an allergic reaction yesterday to one of the shots which has never happened in the past. Her beautiful face was swollen and she felt awful.

At 4:45am this morning she had a fever and Is currently in the ER and will be admitted

Thank you for all prayers
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Lily completed her first round of chemo/chimeric treatment of her relapse. She was able to come home and spend Thanksgiving with her family ❤️. Thank you for your continued prayers and support
At home
During treatment
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$18,750 of $30,000 goal

Raised by 181 people in 6 months
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$10
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6 days ago
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Ariella Meltzer
6 days ago
$25
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2 months ago
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$95
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2 months ago
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$100
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3 months ago
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Miranda D
3 months ago
$5,000
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3 months ago
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3 months ago
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4 months ago
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