Lilac Lily - Dance Another Day

£13,894 of £42,000 goal

Raised by 182 people in 9 months


Lilac was diagnosed with Leukaemia in 2011 when she was only 5 years old.
After two and a half years of exhausting chemotherapy, Lilac survived cancer.

The hospital also discovered that Lilac had Scoliosis - curvature of the spine.
In the UK there is a wait and watch approach. We hoped it would not progress.

However, a growth spurt has caused her curves to progress rapidly,
so we need to act fast. Lilac has done everything possible to avoid surgery
including attending the Scoliosis Clinic, doing physiotherapy every day,
and wearing a body brace.

Lilac is a talented dancer and ballet is a big part of her life.
Dancing helped Lilac recover from cancer both physically and mentally.

At the present time, the UK only offers fusion surgery, which literally fuses the spine to a metal rod,and would leave Lilac inflexible, and unable to dance.

Purely by chance, we discovered VBT - Vertical Body Tethering- which is a
pioneering spinal surgery,which is only available in the USA and Europe at present.
It was on the NHS until last year, (another story)

VBT uses keyhole surgery and allows flexibility after the operation,so Lilac would be able to dance again.

We travelled to Germany in February and the surgeon thankfully accepted Lilac for VBT. Lilac is booked in for surgery on 1st August 2018.

We are desperate to raise the funds, as Lilac has a small window of opportunity to have this surgery.

We can not wait for this op to be available on the NHS, which it will be one day, as her curves will just keep progressing.

We can not imagine Lilac not being able to dance ever again, if she has fusion.

Lilac has already been through more than anyone deserves at her age,
and this operation would give her back her life, again.

Any help, however big or small truly appreciated.

John & Holly & Scarlette 

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We are waiting for Lilac to return to school and dance classes & then we will continue our fundraising !
As most of you know we had a small window of opportunity to get Lilacs surgery done. So thanks to all you generous people we raised a fantastic amount of money and had to borrow the balance. But now we are going to carry on fundraising to pay it back. So fundraising will commence after term - so watch this space ! Xx
Wendy Whatling School of Dance Show x
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Sorry for long delay in updates ! Just been concentrating on Lilac’s recovery which id slowly but surely. We saw her UK surgeon in RNOH last week, who checked her EOS scan and confirmed that everything is fine ! Lilac is busy doing physiotherapy and Pilates . Lilac is hoping to return to ballet after half term -yay !
Lilac hoping to return to ballet soon !x
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Lilac at the EOS centre, London for her scan x
Another scan ! X
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Thank you to the The Mollies & all the wonderful Wilburys who took part in The annual Wilbury Crescent street party for raising money for Lilac & another fundraiser - You rock ! What a great event ! Xxxx
The Mollies Wilbury Crescent St Party!
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£13,894 of £42,000 goal

Raised by 182 people in 9 months
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Jean Tothill
16 days ago
Marks & Co Accountants
2 months ago (Offline Donation)
Louise Rose
2 months ago (Offline Donation)
Ann Baker
2 months ago
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jo ralling
3 months ago
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Mitch And Ivy
3 months ago (Offline Donation)
Ann Baker
3 months ago
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