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Lilac Lily - Dance Another Day

£12,810 of £42,000 goal

Raised by 168 people in 5 months

CANCER SURVIVOR REQUIRES LIFE CHANGING SURGERY

Lilac was diagnosed with Leukaemia in 2011 when she was only 5 years old.
After two and a half years of exhausting chemotherapy, Lilac survived cancer.

The hospital also discovered that Lilac had Scoliosis - curvature of the spine.
In the UK there is a wait and watch approach. We hoped it would not progress.

However, a growth spurt has caused her curves to progress rapidly,
so we need to act fast. Lilac has done everything possible to avoid surgery
including attending the Scoliosis Clinic, doing physiotherapy every day,
and wearing a body brace.

Lilac is a talented dancer and ballet is a big part of her life.
Dancing helped Lilac recover from cancer both physically and mentally.

At the present time, the UK only offers fusion surgery, which literally fuses the spine to a metal rod,and would leave Lilac inflexible, and unable to dance.

Purely by chance, we discovered VBT - Vertical Body Tethering- which is a
pioneering spinal surgery,which is only available in the USA and Europe at present.
It was on the NHS until last year, (another story)

VBT uses keyhole surgery and allows flexibility after the operation,so Lilac would be able to dance again.

We travelled to Germany in February and the surgeon thankfully accepted Lilac for VBT. Lilac is booked in for surgery on 1st August 2018.

We are desperate to raise the funds, as Lilac has a small window of opportunity to have this surgery.

We can not wait for this op to be available on the NHS, which it will be one day, as her curves will just keep progressing.

We can not imagine Lilac not being able to dance ever again, if she has fusion.

Lilac has already been through more than anyone deserves at her age,
and this operation would give her back her life, again.

Any help, however big or small truly appreciated.


John & Holly & Scarlette 

xxxx
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After a few rocky days and an exhausting journey we made it home late last night !
Still a long road to recovery but Lilac is a determined young girl. Onwards and upwards ! Thank you for all your support ! Xxxx
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Wow - thank you for your donations ! A big thank you to Rob Smyth at The Guardian & all you lovely cricket fans ! Xx
Chilling x
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Wow Thank you for all your donations ! Xx
Lilac having a rest after physio !
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Wow Thank you so much for all your donations ! X
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£12,810 of £42,000 goal

Raised by 168 people in 5 months
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£50
Anonymous
2 days ago
JG
£20
Jonathan GRAIN
2 days ago
£10
Anonymous
2 days ago
£10
Anonymous
2 days ago
MT
£5
miriam thangaraj
2 days ago
MF
£20
Michael Foy
2 days ago
£20
Anonymous
2 days ago
EC
£5
Edmund Caldecott
2 days ago
SM
£20
Spike Marchant
2 days ago
£20
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4 days ago
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