Life for Brittany
My name is Moriah. Over a year ago i sent a message to a girl on instagram who's story really touched me.. she shared some details of her health as a way to help her cope with her situation and to find a community of spoonies to encourage her as well as one another.
Something told me i needed to be her friend so i sent her a message and i started by telling her that i didn't know her but if she ever needed a friend that she could talk to me.. Little did i know that we would create one of the most amazing frienships i've ever had.
Brittany is the most kind hearted, strong individual i have ever met and probably will ever meet in my lifetime. Never have i encountered a person so positive amidst a living hell.
Brittany is 24. She is lives in St. Petersburg, Florida with her two dogs, one being a service dog.
At 13 years of age she lost her mother and just a few years ago she lost her step father as well..
Although her biological father is still alive and does help he doesn't have a job and can only do so much, Brittany is treading through life alone with a full-time job (disability is not an option. It is what motivates her everyday and helps her get through all of this, it keeps her motivated and distracts her at times), and paying for her own apartment, medications and treatment as well as the every day bills we all have and loads of medical bills.
Brittany has to take 22 oral medications 2-3 times a day as well as a nebulizer treatment 2 times a day. She also has to carry Epi Pens with her and two seperate inhalers. And lastly she has to get infusion treatments at the cancer center periodically.
I'm going to give you an idea of what her health looks like. Brittany's illnesses include:
Type 2 Diabetes
Anemia due to low iron.
Severe Gerd & Acid Reflux
Vitamin Defficient in all vitamins and minerals due to her Gastroparesis.
Paresthesia due to nerve damage.
Degenerative Disk Disease
POTS (Postural orthostatic tachycardia syndrome)
Last year in 2016 it was discovered Brittany also has genomic problems, she has a malformation in her gene's that right now at this time doctors are studying and trying to understand more about. Brittany joined a medical trial so that the doctors at Mayo can test her blood for the next five years to hopefully better understand her genomic issues.
She has random seizures as well that doctors don't understand what's causing them yet but her Neurolgist has inquired about possible Lyme disease.
Due to Brittany's Gastroparesis, she is unable to digest food like normal people and therefore has a diet limited to nutrition smoothies and liquid mostly. Even then her body rejects it and makes her vomit..sometimes lasting all day.
She has had her Gallbladder removed and a gastric pacemaker put in to help her not vomit as much.
Brittany has already been to Mayo Clinic and they started genetic testing. But it is 6 hours away...
She was denied a GJ feeding tube due to the fact that her body will reject it.. the doctor said he has no way of knowing if Brittany could tolerate the forumla with everything going on and the surgery would be too risky.
One of the doctors said something needs to be done soon or she will end up not living a long life and dying.
A Gastroectomy has been mentioned but Brittany is hoping it won't be needed.
At this point the bills are racking up and her insurance is going up in price; all this is more than she can afford.. With Mayo Clinic being so far, the commute alone is a huge cost. She needs help.
She has been sick her entire life so her medical debt is beyond her..
because of Brittany's medical debt her team of doctors do the best they can to help her but they can't just let her get everything done for free as much as they wish they could.
Brittany would never ask for help and so I am doing it for her. I wish i had the money to give her all of it myself but i don't.
This goal is very much a guess of what she could possibly need and it may be more. At this point we don't know. But we are taking ANYTHING we can get. And although there isn't any specific time frame, time is definitely of the essence.
Brittany doesn't have enough money for all her tests and surgeries that need to be done. And they NEED to be done.
I don't wanna live in a world without Brittany, knowing all she needed was the money for the treatments to save her life.
I don't know if anyone will read this or care. But Brittany means more than the world to me and i need her to stay on this earth. I need her to get the treatments she needs.
It's so hard for me to hear the crap that her body dishes out daily.. The never ending struggles she faces would have made me give up a long long time ago if i was her. But she still fights on and she still smiles through everything.
I would call myself a successful person if i could be half the person she is. If there is anyone deserving of help, it is Brittany. She has heart of solid gold and deserves to live a long, full, happy life. Please help me give that to her.. I would be forever in your debt.
A few months ago I was diagnosed with DDD degenerative disk disease, as well as my bone scans showed my bones have become much weaker. The last few weeks i've been falling more and more because my right leg keeps giving out. I constantly now have a really intense pain starting at the base of my spine and going all down my right leg. Only the right side of my body is being effected for now. My leg keeps giving out. I was taking a bath and noticed my leg is all black and blue. I imagine from falling so much recently. I can't get comfortable. It hurts when i lay on my left side, i can't lay on my stomach because of my pacemaker and it hurts when I lay flat on my back. It hurts to walk, it hurts to stand still, it hurts to bend in anyway, to sit or to get up.
I see a specialist about my bone disease already and she is trying to figure out what we can do next, its all just staring to really overwhelm me.
The balance on the site for Brittany's campaign is currently $4,739.00.
That is not accurate for a few reasons.. I'm going to break down how Gofundme campaigns work.
This picture is a direct screen shot of the Gofundme website stating how their fees work. Gofundme takes 7.9% of every donation + an extra $.30.
So if you donate $10.00, Brittany doesn't actually have $10.00.. She has $8.91.
That's just the first part. Aside from not even reaching an actually tangible $4,739.00, the money that has in fact been raised has already been used for surgeries, procedures, tests, medications, ER visits, and more.
Her campaign balance is zero..
Some very toxic people have tried to wreak havoc on Brittany's life. They are invading her privacy, assuming she has $4,739.00 in her bank account, and trying to invalidate her campaign as well as her existence through their ignorance and hatred.
So I thought I'd help spread some knowledge for anyone who didn't know this information already.
Now here is a little update of Brittany's current physical state:
"Today started out awful. My privacy was invaded and the one place I felt like I could vent about my health and never be judged was now filled with judgemental toxic people and that scared me because sometimes people seem to forget I am only human and things DO effect me. However I have wonderful people in my life who really were there for me today and I wanted to say thank you and I really love you"
If anyone ever has any doubts, Brittany's medical file is posted in the description of this campaign.
Much love and gratitude,
Moriah & Brittany <3
Both Brittany and I have been busy closing out the year of 2016 and bringing in the new one.
With 2017 there will be alot of changes for Brittany. (as has been previously stated-see other updates)
New policies, procedures, tests, prices, and much much more.
We are hopeful and optomistic!
Already, the big guy upstairs has shown how much he watches over Brittany day by day and minute by minute.
With the help of all her donors and the lovely people who stand by her supporting her every step of the way, we know this is possible.
Life is hard.. Life is especially hard for Brittany. But she is so strong and she pushes through every single time.
There is probably only a very small handle of people who see the details of what Brittany goes through, emotionally and physically. I am one of them that sees every emotional aspect.
It's hard on her.. very hard but she is one tough cookie! Her body pushes her to every limit and she still comes out shining!
The beams of light that explode off this girl, in spite of her circumstance, is what makes me so proud to call her my best friend!
She is a gift from heaven and a reminder to me every day to be thankful for what I have.
You all are helping a heart of gold. And if you are still wrestling with the thought of donating or not, I promise it will be worth your while.
Thank you for your continued support. She and I love and cherish you all! <3
After Mayo clinic discovered what was going on with my genetics, the hospital board decided that my current team at the time is no longer a benefit to me, I need a more advanced team who can better understand my health.
They wanted me to only see doctors at Mayo and Cleveland clinic but that's not possible so now i have to look for a new
Primary care doctor
All while keeping in contact with Mayo clinic and Cleveland clinic.
Since my health is complex, we always have to be selective of who actually handles me.
They have to understand my body, they have to accept challenges and understand that its ALL trial and error. I need them to be dedicated, to not constantly just point out how complex my health is. I need them to understand rare diseases and genomics..
So while i'm building a new team, whatever goes wrong I have been advised if its not something my Gastro can handle or urgent care then I need to go to the emergency room.
Heres to hoping I'm able to build a new team fast.