Life saving cancer treatment!

£94,493 of £200,000 goal

Raised by 2,630 people in 4 months

Help me save my son’s life

Billy is my loving and beautiful only child. He is incredibly compassionate as well as talented and has everything to live for, and so much to give.

But when he was just finishing his A-levels Billy was told he had aggressive cancer.

In the three years since, through gruelling chemotherapy, radiotherapy and surgery which severely impacted his mobility Billy has battled Ewing’s Sarcoma, a bone cancer which mainly affects young people. There were occasions when we thought he had beaten it but we have now been given the devastating news that it’s returned.

There is an opportunity to save his life though. We have been fortunate enough to have been introduced to a specialist molecular oncologist based in America. His approach is at the cutting edge of cancer treatment and involves using the patient’s own immune system to develop a vaccine to fight the cancer causing genes.
The process happens in several stages beginning with a sample of Billy’s tumor being removed by a biopsy. It then takes several months to screen the sample to identify it’s specific genetic code which then forms the basis for the development of the vaccine immunotherapy treatment which is given every three weeks.
Billy has active disease right now in his lungs and traces of disease in his shoulder and lower back. As a result he is having some standard chemotherapy treatment at home which we hope at best will control things until the targeted therapy can be given.
In the long term however, this standard chemotherapy available here is palliative and will not result in a cure.
As any mother can imagine, I am desperate for my beautiful boy to have the chance to access a new treatment that can potentially save his life.
There have been a number of cases in the press recently about the positive outcomes of this targeted approach to treating cancer and it is very much a genuine and scientifically based approach gaining momentum in the mainstream. A type of this treatment has recently been approved to treat young people with Leukemia in the Uk.
Unfortunately, this has not been extended to Billy’s type of cancer at this time and this is why we are raising the money so Billy can access the treatment elsewhere.

We have already spoken with the consultant in America who believes Billy is an excellent candidate for the treatment.

As this process and treatment regime can run to around 2 years we are initially aiming to raise £200,000. This is for the medical costs and provision of the treatment. We will also be required to travel every 3 weeks to Germany for Billy to receive the immunotherapy vaccine.

We desperately need your help in raising these funds urgently so that Billy stands a chance and can have a future. 

Time is increasingly against us so I am urgently appealing to you to help me save my child’s life. Billy needs to be receiving this treatment as soon as possible and every day that passes is another one against us.  The anxiety I feel as a mum about getting the funds quickly enough to save Billy’s life is consuming every second of the day.

Please donate whatever you can and share Billy’s story with as many people as possible. If you can’t donate, please just share everywhere you can. You will have helped just by doing this.

All I want is to carry on being Billy’s mum. I cannot bear to think of what will happen if we don’t raise the funds.

Billy has everything to live for. Ever since he was little he was a lovely, kind soul.

He has gone on to help raise awareness around mental health issues for other young people going through cancer, including this interview with Channel 4 news and through some published articles he has written. He recently went on Radio Norfolk with me to talk about his ordeal and this campaign.

He has a huge love of music and art which has motivated him to focus on his future. This year Billy even graduated from the Access Creative College artist development programme, despite his relentless ordeal and having to do most  of his work remotely, usually from his bed, due to his cancer treatment.

During long periods of treatment and being isolated from friends, Billy focused upon writing, producing and recording his own songs from his bedroom in Norwich and has been catching the eye of several prominent artists in the field. He is an incredibly talented song writer with a beautiful voice and has the potential to be a successful musician.

To say that Billy has been through a traumatic time is an understatement. When most young people are making plans for their futures, becoming independent and having fun, Billy has spent most of the last three years undergoing harrowing hospital treatment or at home sick with the side effects.

This nightmare disease has run rampage over every aspect our lives. Yet in the face of all this, Billy has managed to remain as positive as possible and, as his mum, I have encouraged him to focus on his future and to never give up.

Billy is an incredibly strong young man and despite battling this disease for three years he shows the strength of an ox. He has immense mental resilience that even I didn’t know he had. He seems to bounce back after each round of treatment and there have been times when we thought Billy had beaten his cancer for good, only for it to return.

I am making an urgent and heartfelt plea for as many of you as possible to please help my son access this treatment and let him live.

As a mum who is both frightened yet absolutely determined to save my son's life, I ask please please help me to get this treatment for Billy.

Anything that can help us reach this target will be so greatly appreciated and everything raised will be directly for the purpose of accessing and paying for this treatment.

If you would like to help us it would be wonderful if you could share this campaign accross your social media platforms with a message of support as the more people we can reach the faster Billy can receive this treatment.

I will personally be posting regular updates about our progress to keep you involved in our journey.

Thank you so much, with all my heart, hope and faith.

Love and Light,

Becky, Billy's mum. xxx

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Hello everyone,

It has been a little while since our last update and I know many of you like to hear how Billy is doing.
Billy has been battling a very persistent lung infection over the last few months which has seen us being in the hospital with him for extended amounts of time where he has been on extensive antibiotic and anti fungal treatments.
He has been very poorly which is difficult for him both physically and emotionally.
He is in hospital right now and has been here for
the last 3 weeks. Having said that, he does seem much better today and we are hoping we will be at home for christmas.

In terms of the treatment planning, we had some delays with getting his biopsy sent to Germany for one reason and another and then had to send further samples as they required slightly more volume of tissue to run the genomic testing.

We really hope to hear the results of this very soon as it will clearly show which drugs we need to use to best help Billy in the interim period between now and the imunotherapy vaccine being developed for him.

As mentioned before, the treatment is a personalised immunotherapy vaccine which will be developed specifically based on the results of the testing currently being done to Billy's tumour samples. It takes several months to make therefore, there is a little while to go before Billy will be able to start this treatment.

As a result, we will need to access specific new drugs to help keep the cancer under control in the meantime. These drugs are called PARP inhibitors and to access them privately costs £3,500 per month approximately. They are not currently available on the NHS for Billy's type of cancer. Therefore we will need to pay for them privately.

For the last couple of months Billy has been feeling more unwell and due to the tumours and infections in his lungs, has not been able to do many of the normal things that we all take for granted when we have healthy bodies. He has found this particularly upsetting at times as have I when I see him very sick.

We are so grateful for all the continued support and love you show to Billy, your support is truly making a difference and giving Billy the chance of life. We simply cannot express enough in words how much this means to us as a family.
So many of you wonderful people have held fund raising events and it is incredible that human beings rally together to help a person in need. It is truly moving.

When Billy is better we have so much we want to achieve to raise awareness around the need for access to new treatments for cancer patients and we are looking forwards to helping others in need when we are able.

We have a way to go and a journey ahead but thanks to you all so far, we have been able to get this process started and we have made positive steps in the right direction.
Please may I ask of you to keep sharing the campaign and to keep this energy going because your help is making an enormous difference and is giving Billy hope for his future.
Thank you all so very much,
with so much Love,

Becky, Billy's mum.
+ Read More

A story about Billy in the press this week, click the link to view. so far the story has been on Metro news, yahoo news and in pick me up magazine. Please take a look and continue to share the link and also Billys campaign. We urgently need to raise these funds to get Billy life saving treatment. I’m sure you agree, he has everything to live for and so much to share with the world. Please share, and help us keep his campaign moving. We really need all of your help and appreciate all the love and support you have shown.
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Hi friends,

I just wanted to give an update as it’s been a little while since the last one.
I am sharing this link to an article published by The Guardian about the treatment we are raising these funds for. It explains clearly about the type of treatment we are raising money for and it’s great to see this treatment getting the acknowledgment it deserves. Read about it by following the link or it can be viewed on Billy’s life saving treatment page on Facebook.

Billy has been in hospital a lot recently as he has been battling a serious lung infection. This delayed our ability to retrieve a lung biopsy which forms the first part of the treatment process.
However, this was eventually done two weeks ago and the sample has been sent to The clinic where it will be genomically screened. A personal immunotherapy vaccine will then be developed from this.
We are working closely with the specialist oncologist from America who is overseeing each step of the process.
We are very grateful for all of your continuing support and ask please, to keep sharing Billy’s campaign and help us raise enough to enable Billy to have the treatment he needs to save his life.
There will also be an article About Billy in The Uk national press this coming week so please look out for that, it will be online also.
Billy’s recent lung infections really knocked him for six and he was feeling very poorly and low.
Thankfully, although he is still very tired he is back to eating well again and has regained the weight he lost.
Billy is a complete fighter and is focusing on getting better and making lots of music for everyone to enjoy both now and in the future.
Please stay with us, keep sharing Billy’s campaign and know we are so grateful to you all for the love and support you have given to us.
Lots of love, Becky, Billy’s mum. Xxxxxx
+ Read More
The incredible Team at Epic Studios in Norwich held a fundraiser for Billy recently and raised £3k!
Thanks to all of those involved and the amazing artists that gave their time to help Billy.
Read all about it in the article here:
+ Read More
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£94,493 of £200,000 goal

Raised by 2,630 people in 4 months
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