#LiamsJoubertJourney

$2,673 of $20,000 goal

Raised by 38 people in 38 months

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6166435_1491641366.2482_funddescription.#LetsHelpLiam #KickJoubertSyndromeBackSide
#LetsHelpLiamDefyHisDiagnosis
Hello and welcome to our campaign. 
Liam is a very much loved 4yr old son, brother., grandchild and nephew who is faced with challenges everyday of his life due to a very RARE condition he was born with called JOUBERT SYNDROME. 
Please help us help our little superman defy his diagnosis and give him a better chance at  life. 
This fund is to help with Tube Feeds, Equipment and Appointments in Sydney 3-4hrs away from our home. 

To those that have donated so far and to anyone that donates in the future a big thank you for your generosity no amount of words could ever describe just how truely greatful we are for your help. You guys are a blessing from above xoxo.

Donations can also be made to Liam through his paypal Link at
Paypal.me/LiamsJoubertJourney

You can also follow Liam's progress on facebook page called Liams Joubert Journey.





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This is a form for Liams Tube Feeds per month.
Liam Feed
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Liam is unwell at the moment. Late yesterday took him to ED as he couldn't keep anything down and was in alot of pain as nothing I tried was working to fix his constipation and he was very tired, lethargic and dehydrated we were sent home with liam now on a stool softner they've suggested to try using and hydrolight ice blocks. He still hasn't manage to poop but isn't in as much pain today but is still very dry in the mouth and still very tired may have to go back up to ED.
Liam asleep at the moment his little cheeks are so red
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Happy #InternationalNursesDay to all the wonderful nurses out there that work tiring long hard hours to look after our loved ones when we are unable to.
#NursesCareForLovedOnesWhenWeCannot #NursesShouldBeCelebrated
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Read a Previous Update
Mal Purves
28 months ago
2
2

Please write to Bathurst Lions Club PO Box 200 Bathurst 2795 requesting assistance with the walker. The club does not provide financial assistance to individuals however it can provide mobility devices to children through an Australian Lions Foundation. This assistance can progress through the changing needs of the child too.

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Jed Henry
32 months ago
1
1

i have a soft tomato chair near new with base

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Ange Robson
28 months ago

Hi Mal, Thank you, i will definately contact the lions club. Thanks Ange

+ Read More
Ange Robson
31 months ago

Hi Jed Henry I just realise my other reply was a post update so not sure if you seen it. Was wondering what size the chair is and a price. Thanks Ange ☺

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$2,673 of $20,000 goal

Raised by 38 people in 38 months
Created September 28, 2015
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Mal Purves
28 months ago
2
2

Please write to Bathurst Lions Club PO Box 200 Bathurst 2795 requesting assistance with the walker. The club does not provide financial assistance to individuals however it can provide mobility devices to children through an Australian Lions Foundation. This assistance can progress through the changing needs of the child too.

+ Read More
Jed Henry
32 months ago
1
1

i have a soft tomato chair near new with base

+ Read More
Ange Robson
28 months ago

Hi Mal, Thank you, i will definately contact the lions club. Thanks Ange

+ Read More
Ange Robson
31 months ago

Hi Jed Henry I just realise my other reply was a post update so not sure if you seen it. Was wondering what size the chair is and a price. Thanks Ange ☺

+ Read More
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