Get Matt to Philly
Donation protected
Please take the time to read and share my story. Thank you and God Bless.
Matthew, my son was born healthy and at the age of three he slipped and fell. To be on the safe side we took him to the hospital and he had a MRI done. He was diagnosed with Vanishing White Matter Leukodystrophy. Leukodystrophy is an incurable, untreatable, terminal brain disease. I was told that my baby boy had six months to live within a matter of minutes our world was turned upside down. It's a parent's worst nightmare come true when finding out that our precious child has an incurable disease. After the intial shock sunk in, I became serverly depressed. Knowing that my baby boy had only a few months to live became unbearable to deal with. No matter how devasating our sitution was I had to snap out of it. Matthew and my other children needed me. I became a mom on a mission and was willing to do anything to help my son. I had to quit school and work when Matthew became ill. Matthew needs 24/7 care and has many doctors appointments.
Fast fowarding a little. I am beyond blessed to inform you that against all odds my son is still here with us today and has turned twelve this past January. He is truely a miracle and a fighter. He lost ablity to walk, talk and do normal actives that we take for granted. Also, he has severe scoliosis. Despite all this Matthew is a happy boy. He smiles and laughs when he is happy, cries when he sad or in pain and rolls his eyes when he is annoyed. We orginally started this gofundme to get my son a handicap van. I am more than happy to tell you that Sellyourrides.com has donated a handicap van to us. What a blessing! The money that we have recieved will being going to his medical expenses. Matthew still has many medical bills, precriptions and out of state appointments that aren't covered by insurance.
Our new goal is to get Matthew to Children's Hospital of Philadelphia Leukodystrophy Center. This is a center that specializes in Leukodystrophy and is home to one of the largest pediatric neurology divisions in the world. It is important that Matthew goes to Philadelphia.
The Children's Hospital of Philadelphia will provide Matthew with comprehensive clinical care, diagnostic testing and the most advanced treatments available for white matter diseases and state-of-the-art, multidisciplinary care. They will also pursue research that leads to clinical trials, new treatments and potential cures. Please help us get Matthew to Philadelphia.
Unfortunately, this medical visit will not be covered by our insurance because it's out of network. We don't know how long our stay will be in Philadelphia. This medical visit will be very beneficial for Matthew, but very expensive. We will have to travel from Michigan to Philadelphia more than a few times throughout the year. We need help to cover the cost of traveling , medical, hotel expenses. I will be most likey be making this trip without my husband. He has used up all his sick and vacation days. Honestly I don't think we can afford for him to miss any work. He had an accident last year, which prevented him form working for many months. This accident set us back finacially. We are still trying to recover from this set back. Any donation will be greatly apperciated. Thank for taking the time to read my story. You can follow Matthew's journey at https://www.facebook.com/savingmatthew/
Matthew, my son was born healthy and at the age of three he slipped and fell. To be on the safe side we took him to the hospital and he had a MRI done. He was diagnosed with Vanishing White Matter Leukodystrophy. Leukodystrophy is an incurable, untreatable, terminal brain disease. I was told that my baby boy had six months to live within a matter of minutes our world was turned upside down. It's a parent's worst nightmare come true when finding out that our precious child has an incurable disease. After the intial shock sunk in, I became serverly depressed. Knowing that my baby boy had only a few months to live became unbearable to deal with. No matter how devasating our sitution was I had to snap out of it. Matthew and my other children needed me. I became a mom on a mission and was willing to do anything to help my son. I had to quit school and work when Matthew became ill. Matthew needs 24/7 care and has many doctors appointments.
Fast fowarding a little. I am beyond blessed to inform you that against all odds my son is still here with us today and has turned twelve this past January. He is truely a miracle and a fighter. He lost ablity to walk, talk and do normal actives that we take for granted. Also, he has severe scoliosis. Despite all this Matthew is a happy boy. He smiles and laughs when he is happy, cries when he sad or in pain and rolls his eyes when he is annoyed. We orginally started this gofundme to get my son a handicap van. I am more than happy to tell you that Sellyourrides.com has donated a handicap van to us. What a blessing! The money that we have recieved will being going to his medical expenses. Matthew still has many medical bills, precriptions and out of state appointments that aren't covered by insurance.
Our new goal is to get Matthew to Children's Hospital of Philadelphia Leukodystrophy Center. This is a center that specializes in Leukodystrophy and is home to one of the largest pediatric neurology divisions in the world. It is important that Matthew goes to Philadelphia.
The Children's Hospital of Philadelphia will provide Matthew with comprehensive clinical care, diagnostic testing and the most advanced treatments available for white matter diseases and state-of-the-art, multidisciplinary care. They will also pursue research that leads to clinical trials, new treatments and potential cures. Please help us get Matthew to Philadelphia.
Unfortunately, this medical visit will not be covered by our insurance because it's out of network. We don't know how long our stay will be in Philadelphia. This medical visit will be very beneficial for Matthew, but very expensive. We will have to travel from Michigan to Philadelphia more than a few times throughout the year. We need help to cover the cost of traveling , medical, hotel expenses. I will be most likey be making this trip without my husband. He has used up all his sick and vacation days. Honestly I don't think we can afford for him to miss any work. He had an accident last year, which prevented him form working for many months. This accident set us back finacially. We are still trying to recover from this set back. Any donation will be greatly apperciated. Thank for taking the time to read my story. You can follow Matthew's journey at https://www.facebook.com/savingmatthew/
Organizer
Flora Armstrong
Organizer
Allen Park, MI
