McKynsie Faith's Journey

$5,525 of $10,000 goal

Raised by 96 people in 39 months
In Honor of McKynsie Faith Jones

On June 16, 2015, McKynsie's family received the devastating news that she had leukemia. They were on a family vacation, enjoying being on the river, playing in the pool, just having fun as a family. At the very end of May, McKynsie's mother, Jennifer, noticed McKynsie wanting to nap during the day, which was something she never wanted to do. It started to progress to more and more naps each day. Then about a week later, bruises would start to appear all over her body; on her legs, arms, back, belly, neck. Then one day, besides the bruises all over, purple dots, called "petechiae" started appearing. Mom knew a little bit about what this could be and knew something was very wrong and planned to call the doctor the next day.

On June 16, 2015, Kynsie woke up very happy, played fashion show with her sister doing their hair and makeup. They went for a walk, picked flowers and Kynsie complained of being tired and her legs hurting. Jennifer brought her inside, so she could rest. After she was up, she seemed more energized, but that was only for a short while. They were playing in the pool and McKynsie was laughing one minute, and then hit severe exhaustion the next. She wanted to lay down on the lounge chair. As soon as she was put down, she went right to sleep and mom called the doctor. It was 4:17 p.m., and the nurse on the other end said to get to the office ASAP and that they would wait for them to arrive.

She was seen by the doctor who did her hemoglobin and it was determined that it was not just low, it was worrisome low. Due to the low hemoglobin, bruising, enlarged liver and spleen, the doctor believed it was something with her "bone marrow," which mom knew right away what that could be linked to – leukemia. They told her to go straight to the Golisano Children's Hospital for further evaluation. As soon as they got to the 4th Floor, they were greeted by nurses who started explaining processes of what was to happen. She spoke to a doctor while the nurses placed an I.V. in McKynsie to get her labs.

It was determined that day, June 16, that McKynsie did have leukemia but to confirm factually, as well as what type it was, they would need to do a bone marrow test to know for certain. She also was so low in her platelets and hemoglobin that they needed to do a transfusion. They were told that they were staying there until the following week for further tests and to start chemo.

Everything happened so quickly. The family was having fun in the sun that day, but that night, sitting in a hospital with their little girl getting a blood transfusion, awaiting to see which type of leukemia she had. On June 18, 2015, after her bone marrow procedure, they determined it to be A.L.L. – Acute Lymphoblastic Leukemia, and she would begin her chemo the following day. She had chemo done through I.V., orally and also during a lumbar puncture (spinal). They were to remain in the hospital for another 5 days.



This has hit the family very hard mentally, emotionally and financially. Justin, McKynsie's father, had requested his time off for vacation months in advance, but here they were faced with having to take even more time off, plus depend on the support of family and friends for their other two children – Anthony, 13; Madison, 8. They never thought this would happen to their family, or to their sweet little girl, McKynsie. This is a reminder that cancer does not discriminate! It can happen to any family at any time. Although childhood cancer is rare, it still happens.

Everyone has been such an amazing support to the family but leukemia is not a quick fix. Every day is a waiting game to see how Kynsie will feel, react to treatments, what her labs will show. A simple visit to the clinic for chemo one day can determine they need to stay overnight, or for a week. They will be facing treatments for 2.5 to 3 years for this nasty disease and we are trying to help the family with whatever may come their way in the form of a burden. Every little bit will help, even if only your thoughts and prayers!


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We just wanted to share our FaceBook page with our new supporters! You can follow McKynsie and her journey at: https://www.facebook.com/McKynsieFaith. We thank each and every one of you that has donated and reached out with your prayers and support! Our family appreciates you!
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Thank you to each and every person who has donated and is keeping our family in your thoughts and prayers! You can now follow McKynsie Faith and her journey on Facebook! https://www.facebook.com/McKynsieFaith. Please like and share the page. Thank you for your support!
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Yesterday was a very long and emotional day for Justin and I. We arrived at clinic for Kynsie's appointment at 10:20 for her chemo treatment via IV, through her Mediport in her chest. We found out that her labs were low. Her hemoglobin was at 7.9 and her platelets was only at a 3. Her ANC level (Absolute Neutrophil Count) was also very low at 32! Your ANC is what helps your body to fight infection. When she is lower than 500, we have to be very careful about taking her out in public/those who come around her since her body is very vulnerable to infection. Thirty-two is very low for her little body. Because of having such low labs, we were to remain at clinic for a blood and platelet transfusion.

McKynsie was miserable and confused, as this was only our second visit to clinic as of yesterday. She kept asking "why" does she have to take her medicine, "why" can we not go home, "why" is she sick. It was very heartbreaking to watch her scream and cry. She was laying on my chest and I was rubbing her head. I went to reposition her and noticed my black top covered in strands of her hair. That added to the emotional roller coaster we were dealing with that day, as well as making this ordeal all the more real. Here she was, showing the beginning signs of hair loss.

At 4:30, after her transfusions were complete and vitals looked good, we were able to go home. We spent six long hours at clinic – watching Paddington, Finding Nemo and Monsters University – none of which made the time go by any quicker. It is amazing how when you are sitting in a hospital/doctor office setting, the time seems to go as slow as possible. We headed for home and not even a mile from the hospital, Kynsie was getting sick in the car and pretty weak from there on out.

Once we got settled at home, she hardly ever left the couch. Later in the evening she started complaining of belly pain and jaw pain, which we understood were side effects of her meds, and were possible. We made it through the night and this morning, although it is only 8 a.m., she is smiling and happy. Justin and I are hoping it is a good day for McKynsie. She has stopped one of her medicines as of last night, which was a steroid, so hopefully her mood will be a little happier going forward.

Thank you very much to everyone who has donated, who is following her journey and contacting us, as well as still holding her in your thoughts and prayers. It truly means the world to our family!

Jennifer & Justin
July 2 treatment
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Lynn Temple
39 months ago

McKynsie is such a beautiful little ray of sunshine and I never heard them say she ever complained about her pain, especially her treatments! God bless her, and her family during this horrible time! If you can donate $5, you ARE making a difference! Please help McKynsie's family through this difficult time!! They shouldn't have to take her to treatments, that poor little girl should be out, enjoying her Summer, not battling for her life. Please, even a dollar donated by every single person who reads her story, would make such a difference in her life!!! Praying for you McKynsie! You are one tough little girl! Don't ever give up sweetie!! You are so loved by many!!

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Lynn Temple
39 months ago

McKynsie is such a beautiful little ray of sunshine and I never heard them say she ever complained about her pain, especially her treatments! God bless her, and her family during this horrible time! If you can donate $5, you ARE making a difference! Please help McKynsie's family through this difficult time!! They shouldn't have to take her to treatments, that poor little girl should be out, enjoying her Summer, not battling for her life. Please, even a dollar donated by every single person who reads her story, would make such a difference in her life!!! Praying for you McKynsie! You are one tough little girl! Don't ever give up sweetie!! You are so loved by many!!

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$5,525 of $10,000 goal

Raised by 96 people in 39 months
Created June 29, 2015
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GC
$50
Gale Chmidling
3 months ago

Fight McKynsie!

$50
Brenna Anne
19 months ago

Love and prayer to this brave girl and her family xoxo

CO
$25
Corrine OKeefe
22 months ago

McKynsie Strong....Yes you are!!!! Love you, baby girl ♥

TW
$20
Tassy Williamson
23 months ago

You can do it little girl!! prayers sent

Lynn Temple
39 months ago

McKynsie is such a beautiful little ray of sunshine and I never heard them say she ever complained about her pain, especially her treatments! God bless her, and her family during this horrible time! If you can donate $5, you ARE making a difference! Please help McKynsie's family through this difficult time!! They shouldn't have to take her to treatments, that poor little girl should be out, enjoying her Summer, not battling for her life. Please, even a dollar donated by every single person who reads her story, would make such a difference in her life!!! Praying for you McKynsie! You are one tough little girl! Don't ever give up sweetie!! You are so loved by many!!

+ Read More
Lynn Temple
39 months ago

McKynsie is such a beautiful little ray of sunshine and I never heard them say she ever complained about her pain, especially her treatments! God bless her, and her family during this horrible time! If you can donate $5, you ARE making a difference! Please help McKynsie's family through this difficult time!! They shouldn't have to take her to treatments, that poor little girl should be out, enjoying her Summer, not battling for her life. Please, even a dollar donated by every single person who reads her story, would make such a difference in her life!!! Praying for you McKynsie! You are one tough little girl! Don't ever give up sweetie!! You are so loved by many!!

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