Kristin's Kidneys

$4,970 of $4,000 goal

Raised by 74 people in 1 month
It was recommended that I start a GoFundMe. It wasnt something that I really thought to do or even really WANTED to do, honestly. Ive never been one who asked for help easily and what I am currently facing , I felt like help would be too much to ask for. I am basically fighting for my future, my health, and my life, in a nutshell.

Here is my story. 2 years ago, I wound up in the hospital for anemia. Iron supplements and b-12 shots were not improving which lead Dr's to believe that there was an underlying cause. It was discovered that I have a kidney disease called PKD (Polycystic Kidney Disease) The anemia has been one of a few side symptoms of the disease but it was what helped me get diagnosed.

 Here is the kicker. The multiple transfusions I've had to have regarding my anemia have caused me to have anti HLA antibodies which cause a HIGH rejection rate in organ transplantation. As a result, I am not eligible to get on the list to have one. I have been on dialysis for almost 2 yrs now and while its currently working, those treatments will become more and more necessary as the disease progresses. HLA antibodies do not go away on their own. The disease is bilateral, meaning it is in both kidneys and will only progress. The only way to stop its progression will be with a kidney transplant.

My nephrologist has informed me that there is a treatment avilable to me called a PLASMAPHERESIS. It is removing the plasma in my blood with a plasma replacement that will reduce the HLA antibodies and allow me to get on the list.

As with any major medical treatment, this one will cost me close to 10K  as Medicare doesnt pay for this treatment. It is considered experiemental. The closest specialized center near me  that does the "desensitization" treatments and is located in Greenville, NC. about 200 miles away from me.

My income is very low, I cant sugarcoat this. I make less than $875.00 a month on disability. With rent, electricity, insurance, gas, phone, and my internet being my only "luxury"..most months I am backwards. Ive been supplementing my bills by performing on SecondLife and cashing out the inworld currency to pay bills I wouldnt be able to pay for otherwise.

Ive been as resourceful as I can be, getting a lot of the medical fees reduced based on my income as well as involving Christian Charities. What it all boils down to is that each treatment will cost me $300.00 per treatment. The sessions are 5 times a week for two weeks. I also have to pay for travel expenses and lodging as it is outpatient treatment.

I dont know that I can describe to you the feeling of having this carrot dangled in front of me and then being told how much it will cost me. I already have troubles making ends meet, and being told that its "only" a fraction of what it would normally cost me to have this done to get on the donor list to save my life.. It is humiliating. It is debilitating. It's frightening to know that in the grand scheme of things, my life is really hanging in a 4 thousand dollar balance.

At this point, Ive realized I have probably said way to much. Im a singer, im wordy - sorry. I dont know how to keep things short and sweet. I can only say my most humbled, honored and sincerest "Thank you" to anyone who is willing to help and even then those words seem so very inadequate for what you would be helping me to do.
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I can not begin to express my eternal gratefulness to everyone who has contributed so far. We are halfway there and I am honestly overwhelmed and absolutely floored by the intense amount of love and support everyone has so kindly given me. When Aley told me that I should make this GoFundMe becuase people were asking about it, I was so reluctant to do so. I really and truly thought that people would roll their eyes and ridicule me for asking for help like this. I am in tears over the kindness, empathy, and incredible generosity. You all have given me such hope. Hope that I was afraid to have quite honestly. I didnt think that something like this would be possible and now in just a week into this, the amount of hope I have has just filled my heart so completely and I am FOREVER touched, changed, and grateful for you all, by you all. I love you.
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$4,970 of $4,000 goal

Raised by 74 people in 1 month
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$100
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3 days ago
$300
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4 days ago
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8 days ago
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9 days ago
$150
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