Kelly's Fight against AML Leukemia

$23,256 of $50,000 goal

Raised by 252 people in 19 months
Kelly is by far one of the best people I know. After being diagnosed in October 2014, after a routine visit to the OB/GYN, she spent most of 2015 battling AML, an aggressive form of Leukemia. Within days of diagnosis, Kelly was thrown immediately into instense and debilitating chemotherapy treatments that went on for almost 9 months. Within a couple of days, she went from a happy, carefree and 'normal' 26 year old, (literally voted Life of the Party in highschool for her fun-loving and inclusive spirit) to a cancer patient. During this entire ordeal, round after round of chemo, months in the hopsital, and a very scary stint in ICU, Kelly showed us all the true meaning of strength and grace. July 2015 she was given the all clear, and man has it been incredible leaving cancer in the dust these last 12 months. Immediately after Kelly was released from treatement, she started a 501c3 non-profit to support other cancer survivors. She literally didn't even have her hair back yet and here she was, concerned about giving back. In November 2015 we had our first large event, raising thousands for another local family. Just 2 months ago, Kelly competed for the Leukemia & Lymphoma Society's Man and Woman of the Year, a 10-week fundraising contest, which raised collectively over $300k for blood cancer research and patient advocacy.  This is the special kind of person Kelly is. Now is the time we ask for help again, and support for our Kelly girl. 

Yesterday, she got the results back from her regularly-scheduled 6-month bone marrow biopsy. The results were not what anybody expected -- her Leukemia is back. Once again, in a matter of days Kelly's world will be upside down, as she'll leave tomorrow for Dana Farber hospital in Boston, MA, where she will undergo treatment with the best Leukemia doctors available for the next year. Kelly will be in need of a Bone Marrow transplant. Please consider visiting BeTheMatch.org to register into the Bone Marrow Donor registery. All it takes is a cheek swab, and you could save a life. 

For a year, Kelly and her family will be away from work, while the cost of 'normal' life goes on. Bills are the absolute last thing that should be on someones mind while they fight for their life and undergo painful cancer treatment. 

Kelly kicked cancer's butt first time around, and we know she will do it again. The support of so many people in the community, both emotionally and financially means the world to so many people - most of all to Kelly and to those who love her so much.

You can read Kel's blog about her journey so far, and her desire to start A Second Go, Inc. here.
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Hi all! Happy Sunday. Kelly here with an update. I can't get myself to blog for some reason so this has to suffice! I'm on day +52 from my bone marrow transplant. For the first 100 days, I'm on very strict restrictions so I am not able to do much. It's starting to get pretty cold in Boston so my walks have become less frequent. But overall, I've been feeling good! The little bit of graft vs. host disease (GVHD) I have is being controlled well with steroids so we just have to hope that they continue to work! Reminder, GVHD is the body rejecting the new stem cells but a small case of it is good as it is a sign that the transplant is taking. It can be life threatening so they are keeping a close eye on it.

I've had people ask me what's next. I don't have any more chemotherapy or treatments to complete. I just have to rest and recover at this point! Avoiding infection is key as I have a compromised immune system. Anytime I go into public, which is rare, I have to wear a hospital mask and gloves. It makes me feel super anxious so I don't go out often. I've had kids in the grocery store ask me if I'm sick or why I have to wear the mask and gloves. Some days it doesn't bother me but other times it makes me really sad and insecure. At least I know this is only temporary!

I've heard some good and bad stories relating to others experience with transplants and I'm trying really hard to not listen too intently to either. I'm often reminded that a transplant is so specific to each individual that no two experiences are going to be the same. It can be difficult to not have anyone know exactly what I'm going through. I'm just taking it day by day and not having too many expectations, physically or emotionally.

Thank you all for your continued support! Hoping to be back in Florida sometime in March but I will keep you all updated as I progress these next few months. I'm still in the 'danger zone' so prayers are always welcomed!

For those who have asked my address is:
Kelly Sudell
PO Box 301548
Jamaica Plain, MA 02130

Xo Kelly
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Kelly's brother posted this update on facebook on Thursday October 20: 'My visit with Kelly this week: For those of you who don't know, Kelly is really struggling right now, so it's really really hard for her to post any updates.
I've never personally seen anyone deal with so much constant pain and suffering before, let alone my younger sister. It's heartbreaking.
When I arrived on Friday, Kelly's decline began. She went from having small conversations to not being able to talk at all due to severe mucositits in her mouth. This caused her tongue to swell to the level where she can't even move it, and it's now covered in open sores.
On Saturday, due to the intense pain, Kelly switched to a constant pain drip with additional pain medication every 20 min from the RN which basically turned her into a zombie. Quite the catch 22. The high levels of pain meds started to affect her inability to swallow, so the doctors issued her a "mucous sucker" that helps her get saliva out when she is unable to swallow. It's used so much that they've had to replace the tube twice from getting clogged.
She hasn't been able to sleep more than 20 minutes at a time, and when she wakes, the constant gagging and spitting consumes her for another 20-30 minutes. She hasn't eaten anything in 16 days, all of her calories are fed directly through IV.
Kelly's only way of expressing herself is to cry, which she does a lot, not because she is weak, but because she is frustrated, emotional and exhausted. There is no way I can imagine the pain she is experiencing right now. It's the most heartbreaking thing to watch someone you love go through this.
Kelly's white blood cell counts are slowly climbing and my last day with her, I could see that she had more energy, and her sarcasm is returning, she was able to walk about 100' in the hallway, but the pain is constant and her ability to
Communicate remains low.
I just wanted to keep you guys updated that we remain hopeful for her successful return to health, but the struggle is real. She still needs your love and support to get her out of the hospital and back to her old self.
Please be grateful for your health, cherish the time that you have with your family, and put aside petty differences. Life is too short. -Steve'

Kelly will have another update for you in the next few days!
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Quick update while I'm feeling up for it. Currently on day 10 of being admitted into Brigham and Women's Hospital in Boston. I had the two hickman lines placed on September 30 then was direct admitted to begin chemotherapy in preparation for the bone marrow transplant which happened October 6, 2016. I have a new birthday to celebrate!

We won't know for a few weeks whether or not my body has accepted the transplant and if it will be creating the cells on its own. Nerve-wracking processes but I just have to be patient.

I've been hanging in there but have had severe nausea and vomiting the entire time I've been in the hospital from the high dose chemotherapy. It's been awful. I am receiving the nutrients I need through an IV but I need to eat some food nonetheless. Send some prayers that I am able to keep some food down tonight.

It's been difficult to stay awake long enough to do updates but I will post another as soon as I am able. Thanks to you all for your continued support! Let's beat this leukemia once and for all! Xo Kelly
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Hi all! Update from Kelly. I've been home since last Monday and doing my best to enjoy each and every second I have in Florida before I return to Boston for the bone marrow transplant. The big determining factor for the transplant date, is the pursuit to freeze my eggs since infertility is a likely, and devastating, side effect of the transplant. Thanks to the doctors at IVF Florida for being so helpful and fitting me in to get the process started ASAP. I'll begin the cycle Monday which will consist of 10-12 days of high doses of hormones (I will probably be a little crazy) and if I respond, I will proceed with the egg retrieval process. It's always been a dream, as it is for most women, to become a mom and even though I know there are other ways to build a family, it would be amazing to have a biological child one day. I need lots of prayers and positive energy that the hormones work and they are able to get nice, healthy eggs! The main downside of pursuing this option is the cost. IVF Florida is part of a program where they provide a discounted cycle and they connect you with a nonprofit, Livestrong Fertility, who are providing the medication for free. All in all, it will be about $6,000 for the cycle and storage (for the first year, I believe). Considering it normally would cost $15,000 - $20,000, I'm getting a solid deal.

Transplant is tentatively scheduled for September 30 so once I return to Boston, I will be there for the next 6 months. I'm definitely starting to get scared about the upcoming transplant since it is such a huge deal but I'm really doing my best to try to put the stress to the side and enjoy the time I have home with my pup, friends and at the beach of course... Yes, I'm wearing tons of sunscreen and not staying long!

Reminder that the Happy Hour Fundraiser at Twisted Trunk is coming up on September 21 from 6-9pm! Make sure you come out for a great time. Hopefully I'll be able to make an appearance! We'll see how I'm doing with those hormones :) https://www.facebook.com/events/1077209892347841/permalink/1089698907765606/?notif_t=event_comment_follow&notif_id=1473425747044017

My selfless girlfriends are also hosting a volleyball tournament fundraiser on October 15 at Ocean Cay Park (Marcinski) in Juno Beach! It's going to be an epic day so make sure to save the date!

Your support is always so appreciated! Please continue to share.

Xo

Kelly
Volleyball Tourney Flyer!
My sweetest boy, Bumper!
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Read a Previous Update
David Quido Palus
16 months ago

Steve, look for phoenixtears.ca it could help.

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Maureen Cooper
16 months ago

Saying stay strong is an understatement. You are more then strong. Even at your weakest. We are praying for you to be healed.

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Jonathan St.John
16 months ago

Thinking of you today Kelly. Keep up the fight and move forward. We are all here for you.

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$23,256 of $50,000 goal

Raised by 252 people in 19 months
Created July 13, 2016
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$50
Natalia Torosian
13 months ago

Kelly, I know we've never met ,but your Uncle Mike Sudell told me about your fight. Wanted to tell you that I'm truly rooting for you and keeping you in prayers!!!

TM
$100
Tim Murphy
13 months ago

Kelly, all the best to you,get well soon. An old family friend

$20
Anonymous
13 months ago
$5
Anonymous
13 months ago
SJ
$20
sv j
14 months ago

praying

$50
DeniseFaye Huxtable
14 months ago

Love you!!! You are so strong & will kick cancers butt!!! & I can't wait to do yoga with you again!!! & I would Love to help out with a second go when I get home (at this rate it will have to be called a 3rd Go!! or another Go Around!!!) you go girl

David Quido Palus
16 months ago

Steve, look for phoenixtears.ca it could help.

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Maureen Cooper
16 months ago

Saying stay strong is an understatement. You are more then strong. Even at your weakest. We are praying for you to be healed.

+ Read More
Jonathan St.John
16 months ago

Thinking of you today Kelly. Keep up the fight and move forward. We are all here for you.

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