Kennedy Family Trust
Donation protected
Valerie Kennedy's home is not a safe place for either her son or her husband. Noel has to sleep in a converted office downstairs, Adam upstairs and Valerie in the hallway so she can tend to both. On any given night Valarie will have to change Adams bedding at least once and also Noel’s due to excessive sweating.
Valerie’s son, Adam was born with Achondroplasia(Dwarfism), later diagnosed with Autism and then Epilepsy. Adam is non verbal, wets the bed by night, needs constant supervision, and help with all aspects of everyday life. He has no sleep routine often starting his day at 2-3 am. Adam’s frustration leads to him getting hysterical at times, banging his head off walls or thumping himself in the head for relief, to such an extent he has given himself concussion.
Valerie's husband Noel’s health issues are like an episode of “House” that has lasted for 7 years. Noel has been diagnosed with Panniculitis, Pyoderma Gangrenous, Myelodysplasia, Sweets Syndrome, heart failure and is presently recovering from major heart surgery in the Mater Hospital in Dublin. He has limited mobility, is blood transfusion and oxygen dependent and his recovery is expected to take years.
Valerie has another son Luke who has lived in the shadow of illness all of his short life. He is an amazing young man, quick with a smile and show courage and wisdom beyond his years.
Their family home needs to have two bedrooms down stairs, bathroom facilities and wheelchair access in order for Valerie to continue to care for and keep her family safe.
On behalf of the Kennedy Family we thank you for taking the time to read this, your support is very much appreciated. We would also please ask you to donate blood as often as you can.
Valerie’s son, Adam was born with Achondroplasia(Dwarfism), later diagnosed with Autism and then Epilepsy. Adam is non verbal, wets the bed by night, needs constant supervision, and help with all aspects of everyday life. He has no sleep routine often starting his day at 2-3 am. Adam’s frustration leads to him getting hysterical at times, banging his head off walls or thumping himself in the head for relief, to such an extent he has given himself concussion.
Valerie's husband Noel’s health issues are like an episode of “House” that has lasted for 7 years. Noel has been diagnosed with Panniculitis, Pyoderma Gangrenous, Myelodysplasia, Sweets Syndrome, heart failure and is presently recovering from major heart surgery in the Mater Hospital in Dublin. He has limited mobility, is blood transfusion and oxygen dependent and his recovery is expected to take years.
Valerie has another son Luke who has lived in the shadow of illness all of his short life. He is an amazing young man, quick with a smile and show courage and wisdom beyond his years.
Their family home needs to have two bedrooms down stairs, bathroom facilities and wheelchair access in order for Valerie to continue to care for and keep her family safe.
On behalf of the Kennedy Family we thank you for taking the time to read this, your support is very much appreciated. We would also please ask you to donate blood as often as you can.
Organizer
Valerie Kennedy
Organizer
County Sligo
