Kelly Family Fund
Sarah woke up on Tuesday March 24th unable to walk or see. She was immediately admitted to Rogue Regional Medical Center in Medford, OR. As of today, (Sunday March 29th), the doctors are still not able to identify an exact diagnosis. Currently, her eyes have gotten significantly better but she is still not able to walk. She has begun rehabbing in the hospital, but it's slow going.
While most people know Scott from his work with his bands (Neurosis, Tribes of Neurot, Corrections House, etc...), his most cherished role is that of a father and husband. As he stays close to Sarah at this time, medical bills and every day living costs are building. I'm asking you to help where you can, spread the word of this fundraiser and please keep Sarah in your thoughts. I will provide updates on how she is doing as soon as I receive them. Thank you for considering to help The Kelly Family at this time.
Love & light to you all,
Sarah is back home and knows what she's dealing with now. Though it will still be a long road to recovery, she finally has a treatment plan!! #WarriorSarah
Below is an update from Sarah herself.
…..."Basically, that Zoster virus that caused all my trouble with the shingles, got into my vestibular system. It caused a kind of viral vestibular neuritis. The nerve swelling makes your brain think you are moving all the time, so your eyes compensate my bouncing back and forth like crazy and for a while there is a lot of uncontrolled vomiting. My eyes are still having micro movements, but improving. I spent the better part of the last month learning to walk with a walker, because I have no vestibular system. Currently, I am still in that condition. I can't move my head forward with out falling and I get super sick if I move too much. It's like wearing a big weighted helmet, I just fall the direction I turn. I have most of the vomiting under control, but it takes work and consistent medicine.
They have been treating me with steroids, which have made my face swell to a crazy size and then the antivirals and the antibiotics. Now, we wait and I am monitored here in Medford.. Then for better or worse, I go back to OHSU in May and we figure out where we are at. They have a group of people who work exclusively with this stuff. The part that I am having the hardest time dealing with right now, is that because I am having the reoccurrence of the zoster, this can happen all over again.
That is the long and short of it for now. The OHSU people are awesome. It is gonna take some trips up and back, but they have treatment options, even when the vestibular system doesn't come around all the way. They really can do some amazing stuff.
Thank you all, for everything. I don't know how we would have done this. There are just no words to express the depth of our gratitude."
Sarah was admitted to OHSU in Portland over the weekend. More tests and more waiting.... Sadly, she's not feeling well at all and has developed even more motor control problems. Please keep your good vibes coming. We need these doctors to figure this out and give our Sarah back to herself. Thank you all for your continued love and support. <3
I wish I could report that Sarah has been diagnosed and well on her way to healing. Unfortunately, the protocol regarding paperwork and transfer to the specialists at OHSU in Portland is taking more time than expected. Her home town doctors in Medford have her on medications to try to help alleviate her pain and symptoms and will continue with more tests until she can get in with the specialists. We are hoping and praying she can get to OHSU this week.
How does a beautiful, young and healthy woman wake up one day (almost 4 WEEKS ago) to find herself in a wheelchair and not able to care for herself?? It's heartbreaking. Sarah is taking each day as positive as possible. Scott and Sarah continue to be overwhelmed with gratitude for all of your love and support at this time. There are no words to relay just how much you all are helping them through this. <3
Zoster virus ???? I had a shingles outbreak over the winter and still get residual outbreaks!! That's painful shit ! that's a trip that it can cause that much trouble to someone like it has to you Sarah ! If you learn anything as to how to keep that Zoster virus under control please let us know because it could help me, i know that shit's living in my spine. . I wish you the best in healing
So relieved for you guys that finally it's diagnosed, but bad that you had to suffer for weeks before getting to OHSU, and have felt so crap in the meantime. But hey, this is so positive, and the 'not knowing' is always the worst part of any situation! And I bet you and Scott are so glad that you can be back with the family :-D Thinking of you all, Bobbie & Jon xxx
Blessings to you! Hope you are feeling much better. I did vestibular rehab for Menieres syndrome (less severe than your neuritis) and it did really help. I still have nystagmus which sucks but take Anti Vert for it. Hope your treatment plan brings you much success! Go Sarah and the Kelly family!!!!
great news and the news will get even better! we will see the times of grace we shall
This last update made my day. So happy that things are looking up finally. Hope the recovery goes well from now on!
So happy to hear that Sarah has been admitted. Sending positive energy and warmth for the Kelly family.
So glad that Sarah has finally got to OHSU, and sorry it's taken soooo long. All best wishes, and high hopes that they can sort her out. Only downside is that she isn't now near her family.... Everything crossed and all love and good vibes to Scott and Sarah. Thinking of them xxx
Stay strong and know that you're in our hearts. Much love!
One of the donors mentioned Guillain-Barre syndrome, which looks like a likely candidate. Sure they will have already tested for that, but just in case, here's some good information from our good old NHS (National Health Service) in the UK. http://www.nhs.uk/conditions/Guillain-Barre-syndrome/Pages/Introduction.aspx
Ohhhhhhh....that's not what I was expecting...imagining Sarah, and Scott to be in Portland making progress. SO sorry it's taking a painfully long time to get her to the right place. Can't believe it's 4 weeks now. All positive thoughts and love - Bobbie & Jon
Any updates? Continuing to think healing thoughts. xoxo
Any updates on Sarah's condition? Hope all is well.
Hi Karrie, how's Sarah doing? And Scott & their kids? Assuming she's in Portland now. That's a heck of a way from their home. Fantastic that the funds are going up and up :-) But of course the best result would be to have her home, as I'm sure all the family and friends think . Keep us posted if you have a minute, and big love to you all. xxx
i watched one of those health programs about rare diseases. a boy who went through this found out it was something in his blood attacking his body. like an immunodeficiency disease. cant remember if it was lymphatic, or exactly what.
Wishing your family strength and healing energy.
Any updates on Sarah's condition?
Have they looked into MS. I have MS and its sounds neurological. I wish you the best.
Be strong, big hug !!! All my love for Sarah, Scott and all the family !!!